The Nemasket Group Southeastern Massachusetts Medically Complex Project

05/16/2026

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05/16/2026

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05/14/2026

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Becoming the primary caregiver for a medically complex child frequently means forgoing a career and often any type of monetary income for their family.

For some, this is their preference. But for many, it feels much less like a choice and more like the result from a lack of systemic support, childcare options, and career flexibility needed to both maintain a job and care for a disabled child at the same time.

And in a time when many are feeling the financial crunch, this reality can put families and their medically complex kids in a stressful financial situation.

It shouldn’t be this way. Expanded home and community-based services, robust educational programs, adequate nursing, paid caregiver programs, and waivers systems that easy to access and apply for are just a few of the interventions that could alleviate some of this stress.

And it’s going to require the advocacy of caregivers to make this a reality.

05/10/2026

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From our friends at SCIboston, applications are now open for the Travis Roy Legacy Grant Program.

Grants of up to $5,000 are available to individuals living with spinal cord injuries to help cover things like durable medical equipment, home modifications, and vehicle adaptations that support greater independence.

These supports can make a real difference in day-to-day life. If you or someone you know could benefit, now is a great time to apply.

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05/10/2026

05/09/2026

05/09/2026

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Policymakers will have to decide among four basic LTSS models: Medicaid; Medicare; public insurance; or leaving people and their families to fend for themselves.