Central Kentucky Epilepsy Support Network - CKESN

05/28/2026

Stroll & Roll for Epilepsy is the Epilepsy Foundation of Kentuckiana’s reimagined signature community event, formerly known as the Walk to END Epilepsy. This family-friendly, inclusive initiative brings together individuals, families, caregivers, and supporters to raise awareness and ensure that no one faces epilepsy alone. United by a shared mission, our community comes together to help those living with epilepsy overcome the many challenges associated with seizures.

The Epilepsy Foundation of Kentuckiana is proud to be an unwavering ally in this often-lonely diagnosis. Proceeds from Stroll & Roll for Epilepsy support life-changing programs and essential services that provide help and hope to more than 174,000 children, adults, and veterans that will live with epilepsy in Kentucky and southern Indiana.

Register Online @: Register online at: https://www.efky.org/events/walk

05/28/2026

05/21/2026

Favor: If you shop at Kroger and don’t already have a community reward recipient, would you consider signing up for the Epilepsy Foundation of Kentuckiana? The rewards aren’t large from one person, but every little bit counts. Please and thank you! 💜

05/21/2026

We are having a Summer Youth Work Experience for high school students with an IEP, 504 and/or a diagnosed disability. Please reach out if interested!

05/21/2026

So excited to see this! 💜

Announcing the June line up for Under the Lights screenings - the movie breaking epilepsy stigma forever!

Under the Lights follows a teenager ready to risk everything for one unforgettable shot at prom, first love, and the kind of trouble that might make him feel ‘normal’ even if epilepsy turns that night into a dangerous gamble.

We are coming to cities that want to see the movie the most. Let’s do this!

Get tickets and vote for your city to get added to the calendar at the same link:

www.underthelightsfilm.com/voteforyourcity

Will I see you there?

05/20/2026

Calling your boyfriend by an ex's name post-seizure. Having “Bridget Jones-ing” moments during a seizure. Forgetting conversations, faces, and entire vacations (remembering names is out of the question).

On the latest episode of the What the EF podcast, Ivana Garcia, Alison Kukla, and Torie Robinson get brutally honest about the weird, embarrassing, heartbreaking, and hilarious parts of living with epilepsy. (If nothing else, tune in for the sexy British, Argentinian – and Ohio – accents!)

But underneath the chaos and laughter is something deeper: real talk about mental health, the isolation of not feeling understood, and why we became advocates in the first place.

12/24/2025

Luke Birkes has lived with epilepsy for over 20 years. From childhood challenges to statewide advocacy, he has dedicated his life to fighting stigma, raising awareness, and supporting others with epilepsy. Read more about his journey in our latest Foundation Quarterly:
https://www.epilepsy.com/foundationquarterly?utm_campaign=fq&utm_source=facebook&utm_medium=social&utm_content=1766536080