Cure JM Foundation

06/17/2026

Meet the Carpenter Family from West Virginia, proudly walking for their daughter, Adley, in Walk Strong Across America.

“Many days, Adley may look perfectly healthy, but those closest to her know the battle happening inside her body.”

For Alyssa, raising awareness and pushing for earlier diagnosis is personal — and every step their family takes helps fuel JM research and support families nationwide.

👉 Read their full Family Spotlight
https://www.curejm.org/wsaa-family-spotlights/

Join families like the Carpenters as we walk across America for a future free from JM. 💙

06/16/2026

JM families near New York — you’re invited!
Join Professional Race‑car Driver Austin Krainz June 25–28 for a special VIP experience at IMSA 2026. You’ll enjoy trackside views, time with other families, and a close‑up look at the Cure JM race car.

Austin is dedicating his races to raising awareness for juvenile myositis and honoring the families impacted by this rare disease. This is a chance to be part of that mission and enjoy an unforgettable day at the track.

We’d love to see you there.
👉 RSVP Here: https://www.curejm.org/hope-on-the-track/

06/16/2026

Hope is moving fast.
New CAR-T RESET clinical trial data this month shows encouraging progress for autoimmune diseases, including JM — and we’re breaking it down TONIGHT.

Join us this evening at 8 PM ET for a special Town Hall with Cabaletta Bio to hear what this means for JM families and what’s coming next.

Read the update + register for the Town Hall:
https://www.curejm.org/breaking-news-cabaletta/

06/15/2026

Our CAR‑T Town Hall is TOMORROW, June 16.
Experts from Cabaletta Bio and Boston Children’s Hospital will walk JM families through how CAR‑T works, early results, safety insights, and how to learn whether your child, teen, or young adult may be eligible.

Don’t miss this important update on a fast‑moving area of JM research.

Register here: https://us02web.zoom.us/meeting/register/wfqz1_ozRTi5FzvdF8gLCQ

06/11/2026

🚨 We're looking for 35 more states.

15 states have already answered the challenge.

Will yours be next?

Walk Strong Across America is bringing families together across the country to help us reach all 50 states and raise $50,000 for children and families affected by JM.

You don't need a large team.
You don't need a big event.
You don't need fundraising experience.

Just represent your state and help us complete the map!
Sign up here: https://www.curejm.org/walkstrongacrossamerica/

06/09/2026

💙 Northern California Family Day is THIS Saturday!
Walnut Creek: UCSF Benioff Children's Hospital
We can’t wait to bring our JM community together for an afternoon of connection, learning, and hope.

Families will meet others who truly understand the JM journey, kids will enjoy fun activities, and parents will hear from leading pediatric rheumatologists about advances in care and research.

✨Please register by Tuesday, June 9 at 11:59 PM ET.
We’d love to see you there.

Find Your People. Fuel Your Fight.

Come together with other Northern California Juvenile Myositis families for a day that is as inspiring as it is practical.

06/08/2026

Walk Strong Across America is building a nationwide movement, state by state. 💙

“Every family, advocate, donor, and researcher plays a role in moving us closer to a cure.”

The Ortiz‑Meza family is walking for their brave 4-year-old daughter Leilani, and helping put California on the map. But the real challenge is on: which state can bring together the biggest team for JM research?

How many walkers will YOUR state rally?

👉 Read the full Q&A and Join Walk Strong Across America today: https://www.curejm.org/walkstrongacrossamerica/
https://www.curejm.org/wsaa-family-spotlights/

06/05/2026

⭐ Walk Strong Across America
This summer, we’re rallying the JM community to represent all 50 states and raise $50,000 for children and families affected by juvenile myositis.

As America celebrates its 250th birthday, you can walk with family, gather with friends, participate from home, or make a gift to represent your state. Every step, every share, every donation moves us closer to a future free from JM.

Will your state be represented?

Sign up here: https://www.curejm.org/walkstrongacrossamerica/

06/04/2026

When your child's insurance denies a medication recommended by their doctor, it can feel overwhelming.

The reality is that many JM families face denials for JAK inhibitors and other treatments, especially when they're prescribed off-label for a rare disease.

The good news? Many denials can be overturned.

Our new guide walks families through the appeal process, including letters of medical necessity, peer-to-peer reviews, external appeals, and practical tips from families and clinicians who have been through it.

Read the guide: https://www.curejm.org/appealing-a-jak-inhibitor-denial/

You are not alone, and there are steps you can take.

06/02/2026

Our community is powering real progress.

In his May Executive Director Update, Jim Minow shares gratitude for the incredible energy behind this year’s Walk Strong events — and exciting updates on CAR‑T trials, JAK inhibitors, and the growing momentum across Cure JM’s Clinical Care Network.

Together, we’re helping accelerate the most promising research our community has ever seen.

Read the full update: https://www.curejm.org/executive-director-update-may-2026/