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The Association for Frontotemporal Degeneration

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The Association for Frontotemporal Degeneration

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The Association for Frontotemporal Degeneration, Nonprofit Organization, 2700 Horizon Drive, Suite 120, King of Prussia, PA.

11/03/2026

Navigating public settings with FTD can sometimes be challenging. ❤️

AFTD’s Awareness Cards help people living with FTD, as well as their care partners, explain how the disease may affect behavior or communication. General FTD cards are available, along with cards specific to behavioral variant FTD (bvFTD) and primary progressive aphasia (PPA).

Available in English and Spanish, these wallet-sized cards are easy to carry and can help others better understand your experience.

🪪 Learn more and download your Awareness Cards: https://bit.ly/3WhlaQ5

11/02/2026

At 44, after several misdiagnoses, Natasha learned she had FTD. Through AFTD, she found support and ways to advocate for others affected by the disease.

Through the end of the year, we’ll share more of her story and how AFTD supports families today while working toward a better future. ❤️

You make this work possible. Give today: https://bit.ly/4iLTbR9

11/01/2026

November is National Family Caregivers Month. ❤️

This month and always, we recognize the care partners who support loved ones living with frontotemporal degeneration (FTD). We honor the compassion, patience, and dedication they bring to a journey that can be challenging in many ways.

To all FTD care partners, thank you for all that you do. You are an important part of the FTD community.

Learn more about AFTD’s resources: https://bit.ly/4ifodzs

10/31/2026

What started as a passion for cycling became a powerful way to raise awareness for FTD. Mayo Clinic ADRC staff members Kevin Nelson and Nick Rethemeier rode 243 miles over two days to shine a light on frontotemporal degeneration and support those affected by the disorder.

Click here to learn more: https://bit.ly/4zyFquL

10/30/2026

Two communities, one shared purpose. ❤️⛳

This year, 164 golfers came together at AFTD’s 2026 Driving Hope Golf Tournaments in Colorado and New York, raising more than $174,000 to support AFTD’s mission!

Thank you to everyone who participated, volunteered, and sponsored these events. We’re grateful to everyone who helped make Driving Hope 2026 a success and support families affected by FTD. ❤️

10/28/2026

What is anosognosia, and how can it affect people living with FTD? ❤️

Anosognosia is the inability to recognize or understand one’s own illness and its associated limitations. It is a hallmark symptom of FTD, particularly behavioral variant FTD (bvFTD).

Read Kevin Rhodes’s The Lived Experience of FTD: Anosognosia to learn more about this symptom and how it can affect people with FTD and their families: https://bit.ly/4yINfy1

10/27/2026

There are many ways to make a difference for FTD. ❤️

🏋️ Valerie completed her first solo HYROX fitness competition in Boston, raising $885 in memory of her father and in support of the FTD community.

We’re grateful to Valerie and everyone finding meaningful ways to support AFTD’s mission. ❤️

👉 Want to start your own fundraiser?: https://bit.ly/3UgIUmA

10/25/2026

Meaningful support starts with connection. ❤️

AFTD is seeking Peer Support Volunteers to connect one-on-one with care partners navigating the challenges of frontotemporal degeneration (FTD). Through compassionate conversations and sharing relevant resources, volunteers can help care partners feel heard and find support along the way.

Interested in becoming a volunteer? Join an upcoming Volunteer Intro Session to learn more about the opportunity and how to get involved with AFTD.

👉 Sign up here: https://bit.ly/4hVq8cp

10/23/2026

Novartis is preparing to expand clinical studies of NIO752 to non-Richardson syndrome PSP, CBS, and FTD-MAPT with a new Phase 2 trial. Trials are already underway evaluating the drug in PSP-RS.

Click here to learn more: https://bit.ly/4Brhcof

10/22/2026

3 things people often misunderstand about FTD. 🧠

FTD does not primarily affect memory loss. Instead, it impacts behavior, communication, and movement. Most cases occur between ages 45 and 60, and each person’s experience with FTD can be different.

Watch to learn the facts about FTD, then click here for more information and resources: https://bit.ly/4dtgsV3

Address

2700 Horizon Drive, Suite 120
King Of Prussia, PA
19406

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+18665077222

Website

facebook.com

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