Lone Star Bleeding Disorders Foundation

05/26/2026

For far too long, women and girls with bleeding disorders have faced delayed diagnoses and barriers to care. Now, the work that our advocates and allies in Congress have paid off.

The FED UP with Bleeding Disorders Act aims to advance research, awareness, provider education, and equitable access to care for women and girls with bleeding disorders.

To everyone who has fought for this, THANK YOU! This is an important first step in changing the landscape for diagnosis & treatment for women and girls. Representative Julie Johnson Joe Wilson

Read more here: https://bit.ly/4nQ6SPS

05/22/2026

05/19/2026

Don't miss out, order your TBDC 2026 shirt today! Both LSBDF and Texas Central are represented on the sleeves! We can't wait to see everyone in June!

Jump in on the opportunity to get our first conference shirt! We are so excited. The Tag line expresses what conference is all about. Follow this link to preorder your today! You will pick them up at registration! https://www.lonestarbleedingdisorders.org/lsbdf-store/p/tbdc-2026-conference-t-shirt

05/14/2026

Jump in on the opportunity to get our first conference shirt! We are so excited. The Tag line expresses what conference is all about. Follow this link to preorder your today! You will pick them up at registration! https://www.lonestarbleedingdisorders.org/lsbdf-store/p/tbdc-2026-conference-t-shirt

05/05/2026

This past weekend, Levi went to CSL Behring’s Gettin’ in the Game Junior National Championship. This program brings kids with bleeding disorders together for a weekend to learn from professional athletes in their sport, and how to safely play their sport. Levi represented us in baseball, and received the good sportsmanship award. This doesn’t surprise us! Levi is always kind, encouraging, and supporting other kids! We are proud of you Levi!!

04/29/2026

We missed Mission Monday, so how about Why Wednesday!? This year's 11th Annual Heroes in the Hills Golf Tournament was a big success, and a great time was had by all! Our amazing Chairs of the event, JC and Shelley West Clawson did an amazing job organizing and hosting. Take a moment and listen to their "WHY". We are so grateful for the Clawsons and all of their wonderful friends and volunteers. We look forward to next year and hope you will join us!

04/28/2026

If you live in Texas and you are a member of Lone Star or Texas Central, don't forget to register for the 2026 Texas Bleeding Disorders Conference! Deadline to Register for TBDC is May 3rd at Midnight!!!

There will be new programming and activities, and as always, fun with your bleeding disorders family! Mark your calendars and join us at the JW Marriott Austin, June 12-14, 2026! Use this link to register: https://cvent.me/lqePlv

04/28/2026

Don't forget to register for the Texas Bleeding Disorders Conference today! You won't want to miss this weekend!

04/24/2026

Today, along with Texas Central Bleeding Disorders, we are testifying at the Texas Health and Human Services Drug Utilization Review Board to ensure all hemophilia drugs remain on the Medicaid PDL in Texas!