National Scleroderma Foundation New England Chapter

10/14/2026

🩵 Join us IN PERSON on October 24th from 10:00 AM–1:00 PM!

Join us for an open conversation about scleroderma, where patients meet researchers and have the opportunity to learn, ask questions, and connect directly with experts working to advance scleroderma research.

📅 October 24th
⏰ 10:00 AM–1:00 PM
📍 In Person

Come be part of the conversation and help connect the patient experience with the research that can shape the future. 🩵

Register below! 👇

https://host.nxt.blackbaud.com/registration-form/?formId=a450828c-a8d1-4b75-b2e8-f67880d2bd6d&envId=p-JWRarjDScUO0zGLKk5a83g&zone=usa

09/22/2026

🎉 Congratulations to our Boston Walk Raffle Winners! 🎉

A big congratulations to everyone who took home a raffle prize at this year’s Boston Walk! 💙

And a huge thank you to everyone who donated raffle items, purchased tickets, and helped make this year’s raffle such a success. Your generosity and support mean so much to our scleroderma community. 💚

We couldn’t do it without you! Thank you for helping make this year’s Boston Walk so special! 🩵

09/20/2026

🩵 Thank You, Boston! 🩵

What a beautiful day! Yesterday, close to 200 people and 21 incredible teams came together for the Boston Walk, and we are so grateful for every single one of you.

Thank you for walking, supporting, fundraising, and being part of this amazing community. We’re still counting our final totals, but we already know the impact of your support is so meaningful. 🩵

We hope everyone had a wonderful time! More photos are coming soon, but in the meantime, please share your favorite photos from the day in the comments below! 📸

Thank you for making yesterday so special! 🩵

09/18/2026

We will see you bright and early ☀️
1 Franklin Park Rd, Boston, MA 02121
Zebra Entrance pictured below.

09/18/2026

We are so excited to see everyone tomorrow!! 🩵

Register: https://events.scleroderma.org/event/sobostonma2026

09/08/2026

🩵Join us THIS SATURDAY in Westfield MA 🩵

https://events.scleroderma.org/event/sowestfieldma2026

Westfield MA Walk is coming back on September 12th 2026 at Stanley Park.

Register Here: https://events.scleroderma.org/event/sowestfieldma2026

09/02/2026

We wanted to share the Boston Walk- Walk Route. The walk is 1.1 miles long following the Boston Lights. If you can't join the walk route, feel free to stay at the tent, walk around the zoo, see animals, participate in raffles, and join us in a great day raising awareness for scleroderma.

Register Below
https://events.scleroderma.org/event/sobostonma2026

09/02/2026

National Scleroderma Foundation leadership is aware of the pause in two CAR-T clinical development programs and is closely following developments. We are still learning about the circumstances surrounding these pauses, and it would be premature to speculate about what they may mean. We will continue to follow the information as it becomes available, advocate for clear and timely communication with the patient community, and support the rigorous research needed to advance new treatment options for people living with scleroderma. Read more about what we know and our continued commitment to scleroderma research: https://scleroderma.org/two-car-t-clinical-trials-paused-an-update/

09/01/2026

Would you like to become a volunteer for our New England Chapter? Want to help us at a walk, education event, or raise awareness?

Sign up to be a volunteer below.

https://forms.monday.com/forms/7fdb48f527cd31ed5ad35ff5e2278fe9?r=use1