National Scleroderma Foundation Tri-State Chapter

09/02/2026

Metro 5 Support Group Meeting is tonight! Perfect time to join us for open discussion and share how your journey is going! There is still time to register to join us!

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, September 2, 2026

Time: 7:00 pm - 8:30 pm EST

Scan the QR code or Register at

https://us02web.zoom.us/j/83612251422

All are welcome! Join us!

08/27/2026

CT join us on September 19th to Step Out and Cure Scleroderma!
Make a Team Today https://events.scleroderma.org/event/somelissamarquisct2026/home

08/26/2026

🩵 Scleroderma Day Education Day (Rochester, NY) Join Us In Person or on Zoom! 🩵 https://gqr.sh/Ebw2

We truly hope you’ll be able to join us in person for Rochester Scleroderma Day on September 12th! There’s nothing quite like being together in the room connecting with others, learning, sharing, and supporting one another. 🩵

We also understand that travel, health, schedules, and other limitations can make attending in person difficult. We don’t want that to keep you from being part of the day!

That’s why we’re opening the event up virtually through Zoom! 💻🩵 We’ll have a we**am set up at the event so those who can’t attend in person can still join us and be part of the presentations and conversation.

📅 September 12th
📍 Rochester, NY
💻 In person or via Zoom

Register below to join us! ⬇️
https://gqr.sh/Ebw2

We hope to see you there whether it’s in the room or on the screen! 🩵

08/19/2026

🩵Join us September 19th at the Connecticut Walk in memory of Melissa Marquis in New Britain CT

https://events.scleroderma.org/event/somelissamarquisct2026

08/14/2026

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, September 2, 2026

Time: 7:00 pm - 8:30 pm EST

Scan the QR code or Register at

https://us02web.zoom.us/j/83612251422

All are welcome! Join us!

08/13/2026

Rochester NY 🩵FREE to attend! IN PERSON

🔬 Hope in Progress: Understanding the Future of Scleroderma Research 💜

👉 Register today: https://gqr.sh/Ebw2

📅 September 12, 2026
⏰ 1:00–3:30 PM
📍 Gates Public Library
902 Elmgrove Road, Rochester, NY 14624

Join us for an afternoon of education and hope as we hear from researchers and clinical research professionals from the University of Rochester about the future of scleroderma research.

Learn more about the science behind scleroderma, clinical trials, and how patient participation in research can help shape new possibilities for the future.

Hear from:
• Roberta Goncalves Marangoni, MD, PhD
• Gayathri “Gaya” Guru Murthy, PhD Candidate
• Layla Wynn, CCRC

Whether you are living with scleroderma, supporting a loved one, or simply want to learn more about where research is headed, we hope you’ll join us!

👉 Register today: https://gqr.sh/Ebw2

08/11/2026

The Buffalo Scleroderma Support Group Meeting is IN PERSON and invite local members to join us on:

Date : Saturday, September 12, 2026 at 11:00 am to 1:00 pm EST
Place: Clearfield Branch Library, 770 Hopkins Road , Williamsville, NY 14221

Please reach out to the Support Group Facilitator, Paulette Reed at [email protected] with any questions.

We hope to see you!

08/11/2026

🔗: https://ow.ly/X9Ls50ZwcZU

The National Scleroderma Foundation partners with Carebox to make finding scleroderma clinical trials easier.

This free, confidential tool lets patients, caregivers, and healthcare professionals create a profile, search for trials, and decide their next steps.

Carebox keeps your information private and puts you in control. Participation is always optional.

08/08/2026

Reminder — Orange County Support Group meeting is this coming Tuesday! There is still time to join us in person, if you are nearby!

The Orange County Support Group Meeting is IN-PERSON and invite local members to join us on

Date : Tuesday, August 11, 2026 at 1:00 pm EST
Place: Josephine-Louise Public Library, 5 Scofield Street, 2nd Floor Community Room, Walden, NY.

Evamarie Cole, Chair of Advocacy and Awareness of the Chapter Advisory Committee, will be videoing in to share her experience at the recent National Scleroderma Conference in Baltimore, MD.

Please reach out to the Support Group Facilitator, Jodi Lynn at [email protected] with any questions. Hope to see you!

08/08/2026

🩵Rochester, NY Spreading Scleroderma Awareness 🩵

Rochester Scleroderma Support Group members are participating in the Jordan Health 6th Annual Front Porch Festival and Health Fair. 12 noon – 4:00 PM. at Baden Park (near the intersection of Hudson Ave. and Upper Falls Blvd.) Rochester, NY