National Scleroderma Foundation Tri-State Chapter

06/02/2026

🔗: https://ow.ly/X5JS50Z4xxm

Young voices matter, especially in rare disease advocacy. 💬

Join the next generation of advocates at Virtual Youth Hill Day on June 18 and help shape policies that impact the rare disease community.

Participants (ages 10–18) will meet with Members of Congress and share their stories to drive real change!

06/02/2026

🔗: https://ow.ly/la0g50Z4J2t

Researchers join us Friday, June 12, for our Global Webinar on Advances in Scleroderma Research!

We're bringing together experts from around the world to share the latest breakthroughs in understanding and treating scleroderma.

Presenters include Kazuki M. Matsuda, MD, PhD, Harry Karmouty-Quintana, PhD, and Shervin Assassi, MD.

Register today and be part of a global community striving for progress!

06/02/2026

A special thank you to Mediar Therapeutics for serving as a Champion Sponsor of Stepping Out to Cure Scleroderma!

We’re grateful for their ongoing support of the scleroderma community.

Their partnership is instrumental in advancing our mission to improve the lives of those affected by scleroderma.

06/02/2026

Today marks the start of Scleroderma Awareness Month! 💙

Throughout June, we celebrate the unwavering courage and hope of the scleroderma community.

Our 2026 theme, Beacons of Hope, shines a light on the power of unity, support, advocacy, research, and the shared strength that lifts us all.

Thanks for helping us shine bright and spread awareness this month! ✨

05/20/2026

05/20/2026

🔗: https://scleroderma.org/hope-line/

The HOPE Line is the best way to connect with our team for any questions you might have. 💬

This free service offers information, resources, and support for people living with scleroderma, caregivers, families, and the public.

📞 Call (800) 722-4673 (Mon–Fri, 8:30 am–5 pm ET) or email [email protected].

Our trained team will ensure you get the answers and help you need!

05/20/2026

We have scleroderma advocates on Capitol Hill today, joining the Coalition of Skin DiseasesHill Day event. Leah, Evamarie and Dionna will be meeting with representatives and advocating for funding and policies that will improve the lives of people with scleroderma!

05/20/2026

🔗: https://ow.ly/vnry50YZ24g

Caregiving can be one of the most meaningful, and most challenging roles a person takes on.

If you care for someone living with scleroderma, this webinar offers a space for support and understanding.

Hear from Foundation volunteers who are also caregivers as they share advice, personal experiences, and encouragement.

05/20/2026

🔗: https://ow.ly/nOaV50YYium

Applications for the FY27 Scleroderma Research Grant program are now OPEN! ✨🔬

We’re supporting both new and established researchers with funding to drive innovative scleroderma research.

Apply today and help provide hope and a path to future advancements for the scleroderma community.