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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

Greater Ohio Bleeding Disorders Foundation

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United States
Cleveland, OH
Greater Ohio Bleeding Disorders Foundation

17407 Lorain Ave. Suite 206
Cleveland, OH 44111

Phone: (216) 834-0051
Toll Free: (800) 554-HEMO (4

06/03/2026

🎣 Last chance to reel this one in!

Registration is still open for our Annual Youth Fishing Clinic — but not for long. Grab your spot before it's gone!

📅 Saturday, June 13th
📍 Richfield Woods Park, 4410 W. Streetsboro Rd., Richfield, OH
⏰ 9:00am – 1:00pm

Open to youth 17 and under with a bleeding disorder and their immediate family members living in the same household. No experience needed — we've got you covered with all the gear, tackle, bait, and know-how. Plus snacks and lunch, because good fishing deserves good food. 🌤️

Don't let this one get away. Register here 👇
https://form.jotform.com/260835157064155

06/01/2026

Joy doesn't need a reason. Not a special occasion, not a milestone, not a perfect day. Just... joy. Wishing our whole community a June full of it. 💛

05/29/2026

😎 Summer fun + bleeding disorders CAN go together.

As families head into camps, vacations, sports, pool days, and outdoor adventures, a little preparation can help kids and teens stay active, confident, and safe all summer long.

Here are a few simple reminders for families living with hemophilia, von Willebrand disease (VWD), and other factor deficient bleeding disorders:
✔ Stay hydrated
✔ Wear protective gear
✔ Keep medications + supplies nearby
✔ Communicate with camps/coaches
✔ Watch for signs of bleeds or fatigue
✔ Check in with your care team when needed

Every child is different — and every family navigates summer in their own way. We hope these reminders help make the season feel a little easier, safer, and more fun. ☀️

Save this post for summer activities, travel days, and camp prep!

🌐 Learn more about GOBDF: https://gobdf.org

05/27/2026

☀️ Summer adventures are waiting at GOBDF!

From casting a line at our Fishing Clinic 🎣
to hitting the green at Youth Golf ⛳
dancing at our Silent Disco Party 🪩
and making unforgettable memories at camp with Flying Horse Farms 🏕️

…our Youth + Teen programs are all about community, confidence, friendship, and FUN for kids living with bleeding disorders. 💙

We know summer can come with extra planning for families in the bleeding disorders community — which is why we’re proud to create experiences where kids and teens can safely be active, build independence, and simply enjoy being kids.

Spots for some events are limited, so be sure to register soon!
🌐 https://gobdf.org/calendar/

05/25/2026

We all have hard days: moments that feel overwhelming or uncertain.

But those moments pass.

If today is one of those days, hold onto this:
hard days don’t last forever. ❤️

05/23/2026

🧠💙 DID YOU KNOW?

Living with a rare or chronic condition can impact more than physical health — mental health matters, too. Research shows people living with rare diseases experience significantly higher rates of anxiety and depression compared to the general population.

At GOBDF, we believe caring for the bleeding disorders community means supporting the whole person — mind and body. During Mental Health Awareness Month, we’re highlighting services available to eligible members with factor deficient bleeding disorders throughout our 52-county service area in Ohio.

Programs & Support Include:
💙 Counseling Assistance
💙 Wellness Programs & Movement Activities
💙 Emergency Financial Assistance

From therapy support to wellness opportunities that encourage movement, confidence, and connection, these services are designed to help our community thrive.

Services are available to eligible members with a factor deficient bleeding disorder. Diagnosis confirmation through your HTC or healthcare team is required.

✨ Not a member yet? Membership is FREE.
🔗 Visit: GOBDF.org

05/22/2026

⛳ FORE the love of golf… our Cleveland Youth Golf Clinic is officially FULL!

But don’t put your clubs away just yet — spots are still available for our Columbus session this July!

Join us for three days of golf instruction, movement, connection, and fun at SportsOhio in Dublin, followed by a Graduation Celebration at Top Golf Columbus!

📍 Columbus Session Details
🗓 Monday, July 6 – Wednesday, July 8
⏰ 9:30 AM – 2:30 PM
📍 SportsOhio | Dublin, OH

🏆 Graduation Ceremony
🗓 Thursday, July 9
⏰ 10:00 AM – 2:00 PM
📍 Top Golf Columbus

Youth golfers will enjoy:
⛳ Pro golf instruction
🧘 Yoga lessons
🏌️ Golf clubs & gear provided if needed
🥪 Lunch & water daily
🩸 Light bleeding disorders education during lunch

This program is open to youth ages 8–17 with a bleeding disorder. Siblings may attend if space allows and the participant with a bleeding disorder is registered.

📌 Need golf clubs? Register by June 1
📌 General registration remains open until June 22 or until the clinic reaches capacity (only 12 spots available!)

Don’t miss your shot — spots are going fast! ⛳

👉 Scan the QR code to register
🔗 FB Registration Link: https://form.jotform.com/260074110943145

05/19/2026

We’re just TWO MONTHS away from the 2026 Schwager Family Golf Outing ⛳

Momentum is building, and now is the perfect time to get involved.

This outing supports the Greater Ohio Bleeding Disorders Foundation and helps fund programs, advocacy, education, and community support for families across Ohio living with bleeding disorders.

We’re currently looking for:
• Event sponsors
• Raffle/auction donations
• Community partners
• Golfers ready to hit the course for a great cause

Whether you sponsor, donate, or register to play, every contribution helps make an impact.

Sponsor opportunities are available now, and foursomes are beginning to fill.

Register or sponsor here:
https://secure.qgiv.com/event/theschwagerfamilygolfouting2026/

05/18/2026

There’s a lot of pressure to “handle everything,” especially when you’re caring for yourself or someone you love.

But no one is meant to do it alone.

It’s okay to ask for help.

That’s what community is for. 💛

05/15/2026

This month’s Community Spotlight features Anne Goodman ❤️

Anne is a mother, advocate, Certified Grief Recovery Specialist®, and member of the GOBDF community whose journey through diagnosis, caregiving, grief, and healing has helped support others navigating life with a bleeding disorder.

After years of searching for answers for her daughter’s unexplained symptoms, Anne and her daughter were both eventually diagnosed with bleeding disorders — a journey that deeply shaped her work in grief recovery and mental health advocacy.

During Mental Health Awareness Month and Mother’s Day season, Anne’s story is a powerful reminder that strength and vulnerability can exist together.

“Grief is not a problem to be fixed. It is a sign of love, of connection, of being deeply human.”

Thank you, Anne, for sharing your story and helping others feel less alone.

Address

17407 Lorain Avenue , Suite 206
Cleveland, OH
44131

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+12168340051

Website

http://www.gobdf.org/

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