09/25/2026
Axel lives with cerebral palsy dystonia, a movement disorder that causes painful, involuntary muscle contractions. This condition affects his movement and touches every part of his daily life. He has overcome more challenges than most kids his age, including undergoing major hip surgery and receiving a pain management pump to help him feel better.
Even through all this, he keeps his spirit strong.
His parents are true heroes. They work opposite shifts in the housekeeping department at different hospitals and arrange their lives so Axel never stays alone. When he comes home from school, someone who loves him always welcomes him. Their dedication stands out, but love alone cannot make their home accessible.
Since his bedroom and bathroom are not wheelchair-accessible, Axel cannot move around his home independently. He sleeps in his parents' room, separated from his twin brother, Angelo, and misses out on the simple, everyday moments that brothers should share.
We are so excited that, thank you to the incredible donors at our Evening of Sunshine Gala, that we will be giving Axel and his brother a room of their own AND an accessible bathroom.
This design was an out-of-the-box idea and we can’t wait to see it come to life!
