Aortic Hope

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Aortic Hope ♥️Aortic Hope is a community-led global organization that supports patients and caregivers during the recovery and management of Aortic Disease.

We spread hope, create awareness and provide support.

♥️Connecting Hearts One Beat At a Time Aortic Hope 2026 Board of Directors:
~Carin Andersen - Chair of the Board/Founder
~Terri Cook - President
~Jeni Shaffer - Vice President
~Deb Oxborough- Treasurer
~William (Bill) Barnhart - Director of Marfan Outreach & Community Outreach
~Sarah Coupland - Director of Social Media
~Deb Joly-Warcholik - Asst. Treasurer/Director of Volunteer Services
~Robb Seltzer - Director of Support Services (Aortic Chef)
~Molly Thomas - Director of Social Media

The Board and Volunteers work tirelessly in managing their own Aortic Disease, personal lives as well as organizing fundraisers, online support groups, providing daily inspiration and wisdom, hope mail care packages, and MUCH, MUCH more.

*𝙏𝙝𝙚 𝙘𝙤𝙣𝙩𝙚𝙣𝙩 𝙨𝙝𝙖𝙧𝙚𝙙 𝙤𝙣 𝙤𝙪𝙧 𝙨𝙤𝙘𝙞𝙖𝙡 𝙢𝙚𝙙𝙞𝙖 𝙞𝙨 𝙛𝙤𝙧 𝙞𝙣𝙛𝙤𝙧𝙢𝙖𝙩𝙞𝙤𝙣𝙖𝙡 𝙥𝙪𝙧𝙥𝙤𝙨𝙚𝙨 𝙤𝙣𝙡𝙮 𝙖𝙣𝙙 𝙞𝙨 𝙣𝙤𝙩 𝙞𝙣𝙩𝙚𝙣𝙙𝙚𝙙 𝙩𝙤 𝙨𝙪𝙗𝙨𝙩𝙞𝙩𝙪𝙩𝙚 𝙥𝙧𝙤𝙛𝙚𝙨𝙨𝙞𝙤𝙣𝙖𝙡 𝙖𝙙𝙫𝙞𝙘𝙚 𝙤𝙧 𝙨𝙚𝙧𝙫𝙞𝙘𝙚𝙨. 𝙒𝙝𝙞𝙡𝙚 𝙬𝙚 𝙨𝙩𝙧𝙞𝙫𝙚 𝙩𝙤 𝙥𝙧𝙤𝙫𝙞𝙙𝙚 𝙖𝙘𝙘𝙪𝙧𝙖𝙩𝙚 𝙖𝙣𝙙 𝙪𝙥-𝙩𝙤-𝙙𝙖𝙩𝙚 𝙞𝙣𝙛𝙤𝙧𝙢𝙖𝙩𝙞𝙤𝙣, 𝙬𝙚 𝙢𝙖𝙠𝙚 𝙣𝙤 𝙜𝙪𝙖𝙧𝙖𝙣𝙩𝙚𝙚𝙨 𝙧𝙚𝙜𝙖𝙧𝙙𝙞𝙣𝙜 𝙩𝙝𝙚 𝙘𝙤𝙢𝙥𝙡𝙚𝙩𝙚𝙣𝙚𝙨𝙨, 𝙖𝙘𝙘𝙪𝙧𝙖𝙘𝙮, 𝙤𝙧 𝙧𝙚𝙡𝙞𝙖𝙗𝙞𝙡𝙞𝙩𝙮 𝙤𝙛 𝙩𝙝𝙚 𝙘𝙤𝙣𝙩𝙚𝙣𝙩.

𝘼𝙣𝙮 𝙤𝙥𝙞𝙣𝙞𝙤𝙣𝙨 𝙚𝙭𝙥𝙧𝙚𝙨𝙨𝙚𝙙 𝙗𝙮 𝙘𝙤𝙣𝙩𝙧𝙞𝙗𝙪𝙩𝙤𝙧𝙨 𝙤𝙧 𝙪𝙨𝙚𝙧𝙨 𝙖𝙧𝙚 𝙩𝙝𝙚𝙞𝙧 𝙤𝙬𝙣 𝙖𝙣𝙙 𝙙𝙤 𝙣𝙤𝙩 𝙧𝙚𝙛𝙡𝙚𝙘𝙩 𝙩𝙝𝙚 𝙫𝙞𝙚𝙬𝙨 𝙤𝙛 𝙤𝙪𝙧 𝙤𝙧𝙜𝙖𝙣𝙞𝙯𝙖𝙩𝙞𝙤𝙣. 𝙇𝙞𝙣𝙠𝙨 𝙩𝙤 𝙚𝙭𝙩𝙚𝙧𝙣𝙖𝙡 𝙬𝙚𝙗𝙨𝙞𝙩𝙚𝙨 𝙖𝙧𝙚 𝙥𝙧𝙤𝙫𝙞𝙙𝙚𝙙 𝙛𝙤𝙧 𝙘𝙤𝙣𝙫𝙚𝙣𝙞𝙚𝙣𝙘𝙚 𝙖𝙣𝙙 𝙙𝙤 𝙣𝙤𝙩 𝙞𝙢𝙥𝙡𝙮 𝙚𝙣𝙙𝙤𝙧𝙨𝙚𝙢𝙚𝙣𝙩.

𝘽𝙮 𝙖𝙘𝙘𝙚𝙨𝙨𝙞𝙣𝙜 𝙤𝙧 𝙨𝙝𝙖𝙧𝙞𝙣𝙜 𝙘𝙤𝙣𝙩𝙚𝙣𝙩 𝙤𝙣 𝙩𝙝𝙞𝙨 𝙨𝙞𝙩𝙚, 𝙮𝙤𝙪 𝙖𝙜𝙧𝙚𝙚 𝙩𝙝𝙖𝙩 𝙤𝙪𝙧 𝙤𝙧𝙜𝙖𝙣𝙞𝙯𝙖𝙩𝙞𝙤𝙣 𝙞𝙨 𝙣𝙤𝙩 𝙧𝙚𝙨𝙥𝙤𝙣𝙨𝙞𝙗𝙡𝙚 𝙛𝙤𝙧 𝙖𝙣𝙮 𝙙𝙚𝙘𝙞𝙨𝙞𝙤𝙣𝙨, 𝙖𝙘𝙩𝙞𝙤𝙣𝙨, 𝙤𝙧 𝙤𝙪𝙩𝙘𝙤𝙢𝙚𝙨 𝙧𝙚𝙨𝙪𝙡𝙩𝙞𝙣𝙜 𝙛𝙧𝙤𝙢 𝙩𝙝𝙚 𝙪𝙨𝙚 𝙤𝙛 𝙩𝙝𝙞𝙨 𝙞𝙣𝙛𝙤𝙧𝙢𝙖𝙩𝙞𝙤𝙣. 𝙁𝙤𝙧 𝙨𝙥𝙚𝙘𝙞𝙛𝙞𝙘 𝙖𝙙𝙫𝙞𝙘𝙚 𝙤𝙧 𝙘𝙤𝙣𝙘𝙚𝙧𝙣𝙨, 𝙥𝙡𝙚𝙖𝙨𝙚 𝙘𝙤𝙣𝙨𝙪𝙡𝙩 𝙖 𝙦𝙪𝙖𝙡𝙞𝙛𝙞𝙚𝙙 𝙥𝙧𝙤𝙛𝙚𝙨𝙨𝙞𝙤𝙣𝙖𝙡.

10/16/2026

❤️🫀 YOUR EXPERIENCE HAS VALUE — AND YOUR VOICE MATTERS.

Aortic Hope is excited to continue our collaboration with Rare Patient Voice, helping connect members of the aortic community with opportunities to share their real-world experiences with researchers.

Rare Patient Voice gives patients and caregivers the opportunity to participate in research such as interviews, surveys and other studies — and participants are paid for their time when they qualify.

Why does this collaboration matter to us?
Because research shouldn't happen around patients. Patients and caregivers should be part of the conversation.

Your experiences with diagnosis, surgery, recovery, medications, caregiving and simply navigating life with aortic disease can provide insights researchers can't get anywhere else.

❤️ Your story matters.
🎤 Your experience matters.
🔬 Your participation can help shape future research.

We’re proud to continue working with Rare Patient Voice to help make sure the voices of the aortic community are heard.

👇Take a look at the video and CLICK to join today...earn up to $150 for participating and Aortic Hope earns $10 for every new registration:

https://rarepatientvoice.com/AorticHope/?fbclid=IwAR2medetaJ7LSi6CDlsjKLcljX6m3Ofy5U8mw6pF1-RJdNl4XUA7Ekub3rY

10/16/2026

10/16
🎉 Happy Aortaversary! ❤️
❤️Please join us in wishing a very special Happy Aortaversary to the incredible members of our community celebrating today!
❤️An Aortaversary may mark the anniversary of a diagnosis, aortic dissection, surgery, or another life-changing moment in your aortic journey. Each anniversary represents another year of strength, resilience, hope, and life. ❤️
Help us celebrate them by leaving a ❤️, 🎉, or special message in the comments!
❓Would you like to be acknowledged on your Aortaversary?
Visit our Facebook album titled “Aortaversary Club.” Find the photo that corresponds with your Aortaversary date (please choose just one) and comment beneath it with your name, date, and year of your surgery or diagnosis.
https://www.facebook.com/media/set/?set=a.1019667614871512&type=3
We would be honored to celebrate with you! ❤️

10/16/2026

What are you cheering for? 📣

❤️🫀 How Has Perfusion Helped Make Aortic Surgery Safer?The African Perfusionist, Emmanuel Mbaka is back!The heart-lung m...
10/15/2026

❤️🫀 How Has Perfusion Helped Make Aortic Surgery Safer?

The African Perfusionist, Emmanuel Mbaka is back!

The heart-lung machine has one extraordinary job: keep blood circulating and oxygen reaching the body while surgeons repair the heart or aorta.

But while that mission hasn’t changed, how perfusionists accomplish it has evolved tremendously over the past 10–20 years.

🧠 More sophisticated brain-protection strategies
📊 Better monitoring and real-time data
🩸 Greater focus on blood conservation
🌡️ More deliberate cooling and rewarming
❤️ Perfusion tailored more closely to the individual patient
🤝 And stronger teamwork across the entire surgical team

And what comes next may be just as exciting—from smarter monitoring and predictive analytics to AI-assisted decision support.

But there’s one thing technology can’t replace:

The perfusionist behind the heart-lung machine—and the team surrounding them.

Take a look back at how perfusion has evolved, what it means for complex aortic surgery today, and where it may be headed next.

👇 READ MORE: https://www.aortichope.org/blog

10/15/2026

10/15
🎉 Happy Aortaversary! ❤️
❤️Please join us in wishing a very special Happy Aortaversary to the incredible members of our community celebrating today!
❤️An Aortaversary may mark the anniversary of a diagnosis, aortic dissection, surgery, or another life-changing moment in your aortic journey. Each anniversary represents another year of strength, resilience, hope, and life. ❤️
Help us celebrate them by leaving a ❤️, 🎉, or special message in the comments!
❓Would you like to be acknowledged on your Aortaversary?
Visit our Facebook album titled “Aortaversary Club.” Find the photo that corresponds with your Aortaversary date (please choose just one) and comment beneath it with your name, date, and year of your surgery or diagnosis.
https://www.facebook.com/media/set/?set=a.1019667614871512&type=3
We would be honored to celebrate with you! ❤️

10/15/2026

Who gets a shout-out today?

10/14/2026

🌀It's Wacky Wednesday🌀 at Aortic Hope!
On Wednesdays, we will pick one lucky person from the comments below whose name will be entered into a drawing at the end of the month.

🎁That person will win a prize from Aortic Hope valued at $25!
💥Remember, you have to play to win.
⬇️So drop a comment below!

10/14/2026

10/14
🎉 Happy Aortaversary! ❤️
❤️Please join us in wishing a very special Happy Aortaversary to the incredible members of our community celebrating today!
❤️An Aortaversary may mark the anniversary of a diagnosis, aortic dissection, surgery, or another life-changing moment in your aortic journey. Each anniversary represents another year of strength, resilience, hope, and life. ❤️
Help us celebrate them by leaving a ❤️, 🎉, or special message in the comments!
❓Would you like to be acknowledged on your Aortaversary?
Visit our Facebook album titled “Aortaversary Club.” Find the photo that corresponds with your Aortaversary date (please choose just one) and comment beneath it with your name, date, and year of your surgery or diagnosis.
https://www.facebook.com/media/set/?set=a.1019667614871512&type=3
We would be honored to celebrate with you! ❤️

10/14/2026

What’s making you say YES?

♥️Aortic Hope Community Liaison Bonit Sharma recently had the opportunity to speak at the Hackensack University Medical ...
10/13/2026

♥️Aortic Hope Community Liaison Bonit Sharma recently had the opportunity to speak at the Hackensack University Medical Center Symposium, sharing his powerful survivor story, the important lessons he learned along the way, and how those experiences led him to advocacy and his work with Aortic Hope.

♥️There is something incredibly impactful about bringing the patient voice into a room of medical professionals—putting a real person and a real journey behind the disease they treat.

Watch it on our AHTV YouTube channel:

https://youtu.be/9ciYCXf1URQ

🎥 This is just a snippet of Bonit’s wonderful presentation, and we are so proud to have him representing Aortic Hope and our community.

Survivor. Advocate. Community Liaison. Making a difference by sharing his story. ❤️🫀


Get Aortic Disease: The Patient Guide | http://bit.ly/AorticDisease...

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