ME Respite

16/06/2026

ME RESPITE ACCOMMODATION AND CARE SURVEY
https://forms.gle/AGFbCLGnKAPst8uY8
We'd love your input and feel free to share.

ME Respite recognises the need many in our community with mild, moderate and severe/very severe ME/CFS and LC have for accommodation and care. We would like to find out the level of need and what level accommodation and care is required.
This survey will help us answer these questions:
I. Do you need accommodation and care?
2. What level of accommodation and care do you need?
3. What area do you live in?
4. Would you consider shared accommodation?
5. What could you afford to pay for this accommodation and care?
6. Would you like to make a financial donation, or have expertise you'd like to offer - to help us progress our vision of providing a dedicated accommodation facility?

14/06/2026

With heartfelt thanks and deepest appreciation to all our wonderful volunteers. We think you are all amazing!! ❤️ x

11/06/2026

An inside view on life with ME/CFS and the tough choices patients face.

05/06/2026

05/06/2026

Today the team got together at The Charity Boutique to celebrate our relocation!! We were honored to have the Hon Simeon Brown MP for Pakuranga, our board members Phil Letford and Jan Sudmann, CEO Phil Morton, long time supporter Richie Barnett, Shop Managers Cara Marris and Annie Cross plus Wally Rice and Marilyn Bakker, plus volunteers and many more share the occasion. Thank you everyone!!! ❤️ New location 10 Central Terrace, Howick.

01/06/2026

Don't forget to have your say. We know there's a huge need in our community for Accommodation and Care. A place where it's quiet, there's help and the loads are lifted off allowing for any progress that's possible to be made. We'd love to hear your thoughts. Our survey asks the questions we need answered to plan ahead. If you don't wish to answer a question just write n/a but if you wish to be contacted make sure you fill out, at least, one contact option.

ME Respite recognises the need many in our community with mild, moderate and severe/very severe ME/CFS and LC have for accommodation and care. We would like to find out the level of need and what level accommodation and care is required. This survey will help us answer these questions: I. Do you nee...

29/05/2026

New research from the University of Otago – Ōtākou Whakaihu Waka has confirmed what so many in our community already know firsthand.

Led by Dr Nick Bowden of the University of Otago's Department of Paediatrics and Child Health, the study provides the first national picture of how people with ME/CFS are faring across multiple aspects of life.

People living with ME/CFS and Long Covid in Aotearoa face not only serious health challenges, but also limited access to support and significant long-term economic hardship.

This isn't just about being unwell. It's about the financial strain, the barriers to care, and the exhausting fight to access the help that should be there.

For those living with ME/CFS or Long Covid — or caring for someone who is — this research matters. It puts evidence behind the lived reality, and makes the case for real, meaningful change.

You can read more about the study here: https://www.otago.ac.nz/news/newsroom/chronic-illness-linked-to-hardship-study

It's why access to the right support matters so much. 💙

29/05/2026

Our Waiheke ME Co Op Stall is operating tomorrow. Come along and say hi to Marion, she'd love to meet you ❤️.

26/05/2026

It's important to listen to your body.