Team Evie

A charity set up in memory of Evie Johnston helping sick children and their families! She went to theatre 14 times in her short life.

Evie was a TOF baby, she had lots of complex cardiac problems, complex respiratory problems and problems with her tummy. I could go on about the challenges, but that is not how Evie went about things. She smiled whenever she could, was positive and fought with all her might. Throughout the 6 months we spent with her in hospital we learned a lot and became experts in many things we never expected t

o. Through Team Evie we are determined to use our knew found knowledge and experience to help children and their families who are going through the tough times that we did. We aim to raise money for important medical equipment, support for parents, to buy lots of things to improve childrens time in hospital, to raise awareness with the aim to support families who are in the situation we experienced and much much more...

We feel something special is building with Team Evie,she has inspired so many people and we will continue her good work...

05/09/2026

𝗖𝗼𝘂𝗹𝗱 𝘆𝗼𝘂 𝗯𝗲 𝗼𝗻𝗲 𝗼𝗳 𝗼𝘂𝗿 𝗣𝗲𝗲𝗿 𝗦𝘂𝗽𝗽𝗼𝗿𝘁𝗲𝗿𝘀?

We are looking for more parents to join our expanding team of volunteer Peer Supporters.

Specifically, we need some more Peer Supporters who have experience of a loss during pregnancy or a still birth. Ideally if we are able to get both a mum and dad to add to the team it would be amazing to help us support the growing number of parents needing our support.

Peer Support is essentially connecting parents and families with someone who has 'been there and done it' so that they have someone to speak to who understands, cares and provides support.

The service is delivered by volunteer peer supporters, trained and supported by Team Evie. This could be the perfect role for you to support others if you have experienced:

💚 A diagnosis during pregnancy
💚 A loss during pregnancy of any gestation
💚 A still birth
💚 The death of a child in hospital

𝘠𝘰𝘶𝘳 𝘦𝘹𝘱𝘦𝘳𝘪𝘦𝘯𝘤𝘦 𝘯𝘦𝘦𝘥𝘴 𝘵𝘰 𝘩𝘢𝘷𝘦 𝘣𝘦𝘦𝘯 𝘢𝘵 𝘭𝘦𝘢𝘴𝘵 1 𝘺𝘦𝘢𝘳 𝘢𝘨𝘰

If you are interested and would like to join our team, or hear more about the role , you can register your interest in the Peer Support Service by following the link in the comments. ⬇️

This is not a commitment, and doesn't mean you are committing to the role - following registering your interest we will be in touch to let you know how to apply for the role and go from there!

𝘈𝘴 𝘱𝘢𝘳𝘵 𝘰𝘧 𝘣𝘦𝘪𝘯𝘨 𝘢 𝘗𝘦𝘦𝘳 𝘚𝘶𝘱𝘱𝘰𝘳𝘵𝘦𝘳 𝘺𝘰𝘶 𝘸𝘰𝘶𝘭𝘥 𝘳𝘦𝘤𝘦𝘪𝘷𝘦 𝘢𝘯 𝘦𝘯𝘩𝘢𝘯𝘤𝘦𝘥 𝘋𝘉𝘚 𝘤𝘩𝘦𝘤𝘬, 𝘵𝘳𝘢𝘪𝘯𝘪𝘯𝘨 𝘧𝘳𝘰𝘮 𝘛𝘦𝘢𝘮 𝘌𝘷𝘪𝘦 𝘢𝘯𝘥 𝘚𝘶𝘱𝘦𝘳𝘷𝘪𝘴𝘪𝘰𝘯 𝘧𝘰𝘳 𝘺𝘰𝘶𝘳 𝘸𝘦𝘭𝘭𝘣𝘦𝘪𝘯𝘨 𝘵𝘩𝘳𝘰𝘶𝘨𝘩𝘰𝘶𝘵.

04/09/2026

Thank you so much to Tasha and Scott who chose to support Team Evie through their wedding favours! 💍

How amazing do they look?! 😍

I was so kind of Tasha and Scott to support other families like theirs on the special day, after they spent time in Special Care with their son.

💚

03/09/2026

Posts like this are tough to put out, even after 11 years - but we always want to be honest and share the reality with our followers, as your support means so much to us. It also feels important to show others facing similar challenges with their children that they aren't alone ✊🏻

We were always driven by positivity during Evie's life, alongside her to do everything we could to help her.

But the reality of what we faced was incredibly tough, and 11 years ago today we shared this post, to keep everyone posted on the severity of the challenges before us as a family. We weren't aware that less than 4 weeks later Evie would not be able to cope with the challenges any more...

It is always a tough month in September for us, even subconsciously, as the memories of everything that happened then are never too far away.

We are building up towards the 27th September, the day Evie died, and as always will be asking you to 'Go Green for Evie' to remember her on that day - more information in the coming weeks 💚

Here is our post from September 3rd 2015.

"Evening all.
Today has been more challenging than yesterday unfortunately. Evie had a really rough night with a few 'episodes' which luckily the nurses and doctors managed to sort out.
She has been quite a poorly little girl today. The main issues being:
She is on a pacemaker as her heart rate was slower than they really wanted.
She is very swollen all over as she is retaining fluid. Because she is storing fluid in the wrong places they have to keep giving her more to keep her blood pressure up, so the problem keeps getting worse and she looks awful bless her.
She needs to be paralysed as whenever they stop the medicine which does this she starts (typically) fighting against the ventilator which means she drop her oxygen levels dangerously. The way to alleviate this is to give her more sedation, but when they try her blood pressure drops dangerously low.
A constant balancing act which at times seems impossible to get on top of...
Never the less, the team are working really hard and are making slow progress. We still clearly have a long way to go to win this battle, but my word we are going to!
I thought it was important to keep everyone in the picture (honestly the level of support for is getting out of hand, you are all incredible!) and that as tough as it is we would share where she is and what we are facing with a picture. Apologies if this is upsetting for anyone... To help I have also included a picture of her from yesterday morning before the operation!
Night all, we love you all x"

02/09/2026

Our Bobby’s Little Explorer Bags are a collaborative project between us at Team Evie, and

But what are they, and what is inside each one??

🐶💚

01/09/2026

Special Baby Group is BACK this Thursday at

10.30am - 12.00pm

Anyone is welcome with their little one who has spent time in Special Care, or who has an ongoing medical need.

We know the group provides a huge support for parents, being in a safe space with the staff from SCBU, alongside others who understand their journey and with our amazing Peer Supporter Katie listening and helping too 💚

16/08/2026

A huge good luck to everyone taking on ‘Levi’s Walk’ today!!

You will remember Joe taking on Levi’s Loop last year to raise money for us - today a team from the Ambulance Service take on a version of the event on foot! An amazing challenge all in memory of Levi, thanks to his amazing family!

Good luck everyone - enjoy the cooler conditions 🌧️

Link in comments if you want to read more or sponsor the team ⬇️

11/08/2026

We love hearing from the families we have helped 😊

If you have been helped or supported by Team Evie during your time in hospital, or caring for your child at home, we would love to hear from you! 💚

Why not comment below with your experience of how we helped on your journey 👇

Address

Unit 2b, Gate House, Hallwood Road
Workington
CA144JR

Website

http://www.teamevie.org/

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