The Daisy Garland

Call Directions Website Contact the organisation

The Daisy Garland A family-run, national, registered children’s charity working exclusively for children with epilepsy.

The Daisy Garland was set up in 2004 in memory of our daughter Daisy. Daisy was diagnosed with severe myoclonic epilepsy when she was 5½ months old, and later various tests confirmed that she had Dravet Syndrome. For almost two years we battled with one anticonvulsant drug after another, each drug took Daisy further away from us and brought with it more seizures and unwanted side-effects. In 2000 we discovered the Ketogenic Diet, a drug-free treatment, which gradually reduced the severity and frequency of Daisy’s seizures. Sadly Daisy died from SUDEP (sudden unexpected death in epilepsy patients) three days after her 6th birthday.

07/11/2026
Please will you take a few moments today to sign up to Give As You Live to support The Daisy Garland? Every time you mak...
06/11/2026

Please will you take a few moments today to sign up to Give As You Live to support The Daisy Garland?

Every time you make an online purchase, order a grocery delivery, book a trip or switch your insurance providers, you can generate donations that support our work, for free.

Perfect for if you are unable to support us in any other way, Give As You Live helps us generates much-needed funds really quickly and easily.

Please click on this link to sign-up now, it really does take only a few minutes and every penny you generate will be used to help children in the UK who suffer from drug-resistant epilepsy 💜 xx

https://www.giveasyoulive.com/join/the-daisy-garland?utm_source=charitytoolkit&utm_content=569091&utm_medium=post&utm_campaign=FRFortnightlyResourcesCampaign&fbclid=IwY2xjawVafzVleHRuA2FlbQIxMABwZG9mAWJyaWQRMDVFVEpBZURQRDhqcGx3ZTVzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEfZbzubZ-Sv5U3-sw1EuKRe_u_FN00Jmz5tbkwU_KJAxnvCQzozpUqQE3vR_k_aem_EBdC7AR37IDcqhdi9oqV5g

On Monday (9th November) at 21:00 BBC Two will be showing Mums vs Big Pharma a hugely important programme about Sodium V...
06/11/2026

On Monday (9th November) at 21:00 BBC Two will be showing Mums vs Big Pharma a hugely important programme about Sodium Valproate.

Two mums from north west England tell the story, based on their experience, of taking on a drugs company, doctors and the government, fighting a scandal that led to at least 20,000 babies being born disabled - the truly shocking scandal of sodium valproate.

The film reveals, for the first time, the ‘David v Goliath’ battle as they search for answers and fight for justice for their children.

We will be watching x

https://www.bbc.co.uk/programmes/m00344mn

Two mums tell their story of a scandal that led to 20,000 babies being born disabled.

Our Daisy Garland night-time breathing (SATs/Epilepsy) Monitor programme has been put in place with the aim of giving pa...
06/11/2026

Our Daisy Garland night-time breathing (SATs/Epilepsy) Monitor programme has been put in place with the aim of giving parents peace of mind in knowing that their child is being monitored for night-time seizures.

If you live in the UK and your child has been diagnosed with epilepsy, is taking daily anticonvulsant medication and/or is on the ketogenic diet, but continues to have regular seizure activity, please click on the link below or email [email protected] to find out more about your eligibility for a monitor grant now.
https://www.thedaisygarland.org.uk/forms/monitor-grant-enquiry-form

To help fund a life-saving monitor for the next child on our monitor waiting list please click here to make a donation now…
https://www.thedaisygarland.org.uk/donate/donate/20/credit-card

Thank you for your support 💜xx

Please will you support The Daisy Garland this Christmas? Our fundraising is being hit hard by the ongoing cost of livin...
06/11/2026

Please will you support The Daisy Garland this Christmas?

Our fundraising is being hit hard by the ongoing cost of living crisis. So instead of sending Christmas cards this year please, please donate towards a night-time breathing monitor for a child with epilepsy. This is truly a gift that will keep on giving and help to save a life, save the trees and save on postage too.

Please click here to donate now…

https://www.facebook.com/donate/2545129882665868/

Let's hear it for wonderful Laura Lewis-Copeman, another fabulous Team Daisy London Marathon runner, who is running to s...
06/11/2026

Let's hear it for wonderful Laura Lewis-Copeman, another fabulous Team Daisy London Marathon runner, who is running to show her support for her best friend's daughter, Margot, who suffers from drug-resistant epilepsy.

We are completely delighted to have you onboard Laura and are wishing you all the luck in the world for your training 🍀

"One More Marathon. One Much Bigger Reason.... Margot 💜
Earlier this year, I ran the London Marathon. It was one of the hardest things I’ve ever done. Crossing that finish line was one of the proudest moments of my life.

I thought I was done. But I kept thinking about my best friend’s little girl, Margot. 💜

Margot is such a special little girl and, in her short three years, she has faced challenges that no child should ever have to face.

Before starting the ketogenic diet, Margot was having multiple seizures every single day and her EEG showed chaotic brain activity. Life was incredibly uncertain, and watching her and her family go through that has been heartbreaking. But then came keto.

With the specialist expertise, guidance and support made possible through The Daisy Garland, keto has completely transformed Margot’s life.

Her most recent EEG scans have shown no signs of epilepsy.

She is now starting to take steps with support. Things that once seemed unreachable are now becoming possible, and watching her achieve these milestones is something very special.

None of this would have been possible without the ketogenic diet and the expertise behind it. That is why The Daisy Garland has become so important to me.

The Daisy Garland is dedicated to supporting children living with drug-resistant epilepsy and their families. They provide access to specialist ketogenic dietitians and dietetic support workers, help fund essential equipment and monitoring, provide grants and practical support, and give families something that can be incredibly difficult to find when facing childhood epilepsy — hope.

I’ve seen first-hand what that support can mean. I’ve seen the difference it can make to a child. I’ve seen the difference it can make to an entire family. So, somehow, I’ve found myself signing up to do it all over again.

London Marathon 2027. 🏃‍♀️💜

This time, though, I’m not running for a PB or simply for the achievement of finishing another marathon.

I’m running for Margot. 💜

I’m running for all the children living with drug-resistant epilepsy who are still waiting for their own breakthrough. 💜

I’m running for The Daisy Garland, so they can continue providing the specialist support, equipment, knowledge and hope that can change lives 💜

There will definitely be days when the training is hard. There will be early mornings when I don’t want to get out of bed, long runs when my legs hurt and moments when I wonder why I thought running another marathon was a good idea!

But when it gets tough, I’ll think about Margot. 💜

If you would like to support my fundraising, I would be so grateful. Whether you donate, share my journey or simply cheer me on along the way, you’ll be helping a charity that makes a real difference to children and families affected by drug-resistant epilepsy.

London 2027. Here we go again. 💜🏃‍♀️"

Please click here to show your support for inspirational Laura now…
https://2027tcslondonmarathon.enthuse.com/pf/laura-lewis-copeman

Wishing everyone a peaceful weekend xx
06/11/2026

Wishing everyone a peaceful weekend xx

Jessica’s Story.
06/11/2026

Jessica’s Story.

“It’s hard to imagine now that she was having up to 50 seizures a day pre-diet!”

Address

The Daisy Garland
Totnes
TQ95AL

Alerts

Be the first to know and let us send you an email when The Daisy Garland posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organisation

Send a message to The Daisy Garland:

Shortcuts

Share