Max Appeal 22q, DiGeorge, vcfs

14/06/2026

Sleep Detectives are Recruiting....

11/06/2026

Introduction to Patient and Public Involvement (PPI) in Heart Research

A free online webinar by the BHF and BHF CRC

The BHF and BHF CRC are teaming up to offer an exciting opportunity for anyone interested in using their experience of heart health to help shape research alongside clinical researchers.

This session will demystify “PPI” and explain how patients, carers, and members of the public can work with researchers to shape the studies we fund and support. Whether you’re new to PPI or already involved, this session is open to all.

You’ll also hear from a panel of speakers:

Wendy Davis (BHF Patient Representative)

Rashmi Kumar (BHF CRC Patient Representative)

Dr Ann Cheng (University of Leicester)

Event details

Tuesday, 30 June

7:00 PM – 8:00 PM

Microsoft Teams

Secure your place via the link or QR code provided below:

Please share this event with anyone who may be interested.

Questions? Contact the BHF CRC team at [email protected].
Registrations here or on the QR code below.
3aba60f3-c489-47da-83d4-0e6650481440@ae9d26ef-a753-4f6b-a2d4-48e15ab01edb?fbclid=IwY2xjawSXbiNleHRuA2FlbQIxMABzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeVrh0BT-LI24vLNLvNEpQsmC8S2ekrOFmVIPTOj8ZDY1lglqWlQDKcYLPISc_aem_q_Vm197Rua6hFqBeNK_YBg" rel="ugc" target="_blank">https://events.teams.microsoft.com/event/3aba60f3-c489-47da-83d4-0e6650481440@ae9d26ef-a753-4f6b-a2d4-48e15ab01edb?fbclid=IwY2xjawSXbiNleHRuA2FlbQIxMABzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeVrh0BT-LI24vLNLvNEpQsmC8S2ekrOFmVIPTOj8ZDY1lglqWlQDKcYLPISc_aem_q_Vm197Rua6hFqBeNK_YBg

30/04/2026

Come along and support Max Appeal. 24th May Charity Football event. Eastwood Hanley FC. Please like and share the post to help raise awareness.

30/04/2026

Give your favourite charity a chance to win £1000.
https://movementforgood.com/draws/1000?utm_source=Email-giving&utm_campaign=12days24-launch&cmp=1&utm_medium=HTMLEmail
Use charity number - 1088432
Please share and help support Max Appeal, it takes just 30 seconds of your time.

Nominate a charity for a Movement for Good award now.

26/04/2026

Good luck to our amazing Max Appeal runners taking part in the London Marathon! We’re all cheering you on every step of the way.
If you’d like to support their incredible efforts, please click here to donate to Max Appeal.
Feeling inspired? Why not take on the challenge yourself next year? Click the link below to find out how you can join the London Marathon and run for Max Appeal. (public ballot)

We have four amazing participants for 2026 London Marathon: Zoe Pryce Joshua Humphreys Emily Cox Katie Cox If you would like to read more about Zoe’s & Emily’s story and donate, please click here:  Max Appeal: Zoe's Fundraiser for Max Appeal Emily Cox - Fundraiser by Emi

23/04/2026

Did you know Max Appeal has an Instagram page?
We would really appreciate a follow.

640 Followers, 59 Following, 182 Posts - See Instagram photos and videos from Max Appeal ()

13/04/2026

Max Appeal Newsletter 2026, full of fantastic news and events..

We’re so excited to share this month’s updates with you! As we step into April, there’s so much happening across our amazing community, and we can’t wait for you to dive in.

09/02/2026

Caregiver survey. Taking part involves completing a short survey about the challenges faced by family caregivers of individuals with these conditions. - 22Q Deletion Syndrome, Angelman Syndrome, Fragile X Syndrome, Rett Syndrome. Your experiences help improve support for families with these and other similar conditions.

Caregiver Survey Calling for carers of:Angelman SyndromeFragile X Syndrome Rett Syndrome22Q Deletion SyndromeWe want to hear your voiceTaking part involves completing a short survey about the challenges faced by family caregivers of individuals with these conditions. The survey is open to family car...

30/01/2026

This European webinar is intended for families, healthcare professionals, educators, and support staff involved in the care of individuals with 22q11.2 deletion syndrome. Each session will feature a topic presented by a leading European expert in the field. Training Information Three pricing options...

30/01/2026

Waiting times for children’s community health services have hit record highs, according to latest NHS data.