01/08/2026
Today we took a little time out from the busy world of school, work, appointments, fundraising, advocacy, and everyday life to enjoy a walk along the beautiful White Cliffs of Dover.
It was wonderful to catch up with Gareth, Michelle and Mrs Bown, share plenty of laughs, and soak up some of the most spectacular scenery England has to offer.
Watching Hermione enjoy the open spaces, explore at her own pace, and simply be herself reminds us just how important these moments are.
Living with a rare condition like BPAN means life can often feel overwhelming. Hospital visits, therapy appointments, paperwork, and the uncertainty of the future can take their toll.
Days like today remind us why making memories matters so much.
As families caring for children with complex disabilities know, opportunities to relax together don't come often. That's why we're so passionate about not only raising awareness and funding research through Hope for Hermione, but also highlighting the importance of giving families the chance to enjoy life beyond diagnoses.
The White Cliffs were simply stunning, the views across the English Channel were incredible, and Dover Castle standing proudly above the cliffs made the walk even more special.
Thank you for sharing such a lovely day with us. Sometimes it's the simplest moments that become the memories we treasure most. ❤️
Thank you to everyone who continues to support Hope for Hermione. Every share, donation, and word of encouragement helps us move one step closer to a brighter future for Hermione and every family affected by BPAN.
Creating memories. Raising awareness. Funding hope. 💕🦋💕🦋
