HAE UK

HAE UK is a registered charity supporting patients and their family members with Hereditary Angioedema in the UK.

04/09/2026

🌟 3 WEEKS TO GO! 🌟

HAE UK Patient Day 2026 is getting closer! 💙

Join us on 26th & 27th September at the Holiday Inn, Bloomsbury, London for a weekend of inspiring guest speakers, patient stories, Q&A, support and connection.

✨ FREE EVENT — open to adults and children aged 12+.

📧 Registration is required: [email protected]

We can’t wait to see you there! 💙
PatientSupport HAECommunity

02/09/2026

Living with Hereditary Angioedema (HAE) can sometimes feel isolating — but you don’t have to face it alone. 💙

HAE is genetic and can affect generations of the same family. That’s why having a community that understands, supports and shares experiences can make such a difference. 💜

👥 Connect with people who truly understand life with HAE.
📢 Stay updated on treatments, medical trials and management tips.
🗓️ Get access to patient days, resources and expert insights.

If you’re already part of the HAE UK community, help us spread the word.

❤️ Share this post or tag a family member who may benefit from being connected.
👉 Follow HAE UK on Facebook: facebook.com/haeuk
👉 Follow us on Instagram:

Together, we can make sure no one — and no family — has to navigate HAE alone. 💙💜

31/08/2026

💙 Did you know?

HAE can affect more than one person in a family. Understanding your family history and knowing the signs of HAE can make a real difference.

If HAE runs in your family, talking to your healthcare team can help you understand what this means for you and your loved ones.

💙 Know your family history. Know the signs.

28/08/2026

🌟 4 WEEKS TO GO! 🌟

HAE UK Patient Day 2026 is getting closer! 💙

Join us on 26th & 27th September at the Holiday Inn, Bloomsbury, London for a weekend of inspiring guest speakers, patient stories, Q&A, support and connection.

✨ FREE EVENT — open to adults and children aged 12+.

📧 Registration is required: [email protected]

We can’t wait to see you there! 💙
PatientSupport HAECommunity

22/08/2026

🌟 5 WEEKS TO GO! 🌟

HAE UK Patient Day 2026 is getting closer! 💙

Join us on 26th & 27th September at the Holiday Inn, Bloomsbury, London for a weekend of inspiring guest speakers, patient stories, Q&A, support and connection.

✨ FREE EVENT — open to adults and children aged 12+.

📧 Registration is required: [email protected]

We can’t wait to see you there! 💙

31/07/2026

💙 Living for today...Planning for tomorrow.💙

Our HAE UK Patient Day is more than just a schedule of events—it’s a chance to connect with people who truly understand your journey.

Come along to the Holiday Inn in Bloomsbury, London on 26th & 27th September 2026 for guest speakers, shared stories, a Q&A session, and a wonderful dinner together.

🎟️ Attendance is completely FREE.

📧 Register by sending an email to:
[email protected]

Let's navigate the future together. See you there!🌟

28/07/2026

🏆We won! Thanks to your incredible support, HAE UK and BioCryst Pharmaceuticals took home Partnership Project of the year at the inaugural Excellence in healthcare partnership awards in February 2026!

Our winning Initiative, The power of Partnership, focuses on shared decision-making. It ensures patients receive effective, informed and supportive communication with healthcare professionals to achieve optimal care.

We are also thrilled to share that HAE UK was named:

✨Runner-up for the Leadership in Partnership working award
✨Highly commended in the Multi-Sector Partnership of the year category

Thank you to every single member who made this success possible. Together, we are transforming patient lives! 💙

25/07/2026

Countdown clock is ticking! ⏳

Only 9 weeks left until the next HAE UK Patient Day! 🎉 Have you booked your place for our two-day event yet?

There is no charge to attend the event itself.

However if you would like to stay overnight, we ask for contribution towards your accommodation 🛏️

If you would like to join us, please email
[email protected] to secure your spot! 💙

Please note: this event is for adults and children aged 12 and older.

14/07/2026

Reflecting on a proud moment for our team!

Huge congratulations to HAE UK chairman Ann Harding for winning the prestigious NOVI ‘Women on Board’ award.
This recognition is incredibly well deserved.
Since joining HAE in 2010 and stepping into Chair role in 2021, Ann’s leadership has been transformative. Under her guidance, the charity has raised vital funds, heightened public awareness, and secured major national media coverage.

Thankyou, Ann, for your dedication!

09/07/2026

We are pleased to invite you to our 2026 patient day!

We invite HAE patients and their families to join us, as-well as medical professionals and industry representatives.

🗞️ You will hear the latest news
🩺 Listen to presentations from HAE specialists
❤️‍🩹 Hear patient stories
🫶 Meet friends
🍴Not to forget lunch and refreshments ☕️

This will be followed by an evening drinks reception and a three course meal! 🥂

Heading to our Patient Day?
Enjoy heavily subsidized accommodation on us! 💙 We want to make attending as easy as possible so you can focus on what matters!

The event will be on the 26th & 27th of September in central London, to allow people to travel to and from, over the weekend!

🚨Register now, email: [email protected]

Address

PO Box 448
Bridgwater
TA69GB

Telephone

+447975611787

Website

http://www.haeuk.org/, https://www.instagram.com/uk_hae/

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