Cure HHT Canada

Cure HHT Canada Official FB of Cure HHT Canada: The Canadian hub for Hereditary Hemorrhagic Telangiectasia awareness

10/23/2025

For many families, the path to an HHT diagnosis is long, confusing, and filled with unanswered questions — often taking five times longer than the average rare disease.

Cure HHT is here to change the story. Together with patients, families, and physicians, we’re building awareness, training experts, and accelerating the path to answers.

💙 Because every family deserves a clear diagnosis — and hope for the future.

🔗 curehht.org/give

HHT Canada THH and Cure HHT Canada have officially joined forces into one aligned organization—bringing our communities,...
07/01/2025

HHT Canada THH and Cure HHT Canada have officially joined forces into one aligned organization—bringing our communities, resources, and passion together to make an even bigger impact.

Our name may be new, but our mission remains the same: to educate, advocate, and support Canadians affected by Hereditary Hemorrhagic Telangiectasia (HHT).

Follow along to stay up-to-date and help us raise awareness, push for progress, rally support, and build a stronger future for everyone living with HHT.

In Loving Memory of Lorna Vokey (December 31, 1970 – October 2024)It is with heavy hearts that we announce the passing o...
10/28/2024

In Loving Memory of Lorna Vokey (December 31, 1970 – October 2024)

It is with heavy hearts that we announce the passing of our beloved Treasurer, Lorna Vokey. Lorna dedicated her life to advocating for those affected by hereditary hemorrhagic telangiectasia (HHT). Her unwavering dedication played a pivotal role in supporting, and growing HHT Canada THH. She was not just a colleague but a dear friend to many of us.

Lorna's passion and commitment were the driving force behind many of our achievements. She championed our cause with relentless energy and enthusiasm, ensuring that the voices of the HHT community were heard and supported. Her legacy will continue to inspire us all.

We extend our deepest condolences to her loved ones during this difficult time. Lorna will be missed dearly by all who knew her and the entire HHT community.

In loving memory of Lorna Vokey, who touched so many lives and made an indelible mark on our hearts.

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Toronto, ON

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Monday 9am - 5pm
Tuesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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Welcome to the official FB page of HHT Canada THH

HHT Canada THH is a charity that aims to raise funds and spread awareness for the rare genetic disease, Hereditary Hemorrhagic Telangiectasia. This disease afflicts more than 1.5 million people world wide and can cause serious and life threatening complications.