ACMCRN

09/13/2026

What are EURORDIS, ERN-RITA and ePAG, and why do they matter to people living with Arachnoiditis around the world?

Join ACMCRN for an international webinar presented by Marion Roosen - de Haard, Founder of Arachnoiditis Nederland, exploring these important European rare-disease networks, the role of patient representation, and how their work can help strengthen recognition, collaboration, and the patient voice globally.

You’ll also learn about opportunities to become involved as an Outreach Coordinator and help expand awareness and advocacy in your own country or region.

📅 Saturday, September 19, 2026
🕙 10:00 AM ET | 9:00 AM CT | 8:00 AM MT | 7:00 AM PT
🌍 4:00 PM Central European Time
💻 Online via Google Meet

Learn more and register:
[https://wix.to/KG0oBGf](https://wix.to/KG0oBGf)

Please share with patients, caregivers, advocates, and others in the Arachnoiditis community around the world.

09/10/2026

Managing an !

Arachnoiditis flares can escalate into a dangerous cycle of uncontrolled pain. Learn how to build a flare plan, what medications to have on hand, and what Dr. Tennant's most current guidance recommends for breaking a flare fast — including new non-opioid options.

08/23/2026

A Message from Miriam Tennant to Our Community

We would like to share this beautiful and heartfelt message from Miriam Tennant, announcing the passing of her beloved husband, Dr. Forest Tennant, and speaking directly to the Arachnoiditis community he cared so deeply about.

Dr. Tennant devoted so much of his life to helping people living with Arachnoiditis and intractable pain. Miriam’s words are a touching reminder of his love for this community, his extraordinary dedication, and the legacy he leaves behind.

Please take a few moments to watch and hear her message.

❤️ Watch here:
https://youtu.be/OP9i55o83rw?is=K1z38RPsfhdQ3Ktd

Our hearts remain with Miriam, their family, and everyone whose life was touched by Dr. Tennant.

The meeting was a gathering of patients, advocates, and supporters ...

08/20/2026

We're super proud of you! 🫶

04/26/2026

Looking for a quick look at who we are, and what we do?
We are an international Arachnoiditis/Chronic Meningitis non-profit(and serving associated conditions like Tarlov, EDS, CSF leak ). We started as a 3 member group in 2016, (Lori Verton, Louise Carbonneau Vermeiren and Dr Terri Lewis) and incorporated as a non-profit in Canada in 2018.

We have grown exponentially since then! Our peer support program, education and global outreach and research programs have been 90% volunteer run since its inception! We are people/patient powered and funded by private donations and support from other Arachnoiditis related foundations and groups.

More information:
www.acmcrn.org

See our ECRD2024 conference related Learning Toolbox here:

https://api.ltb.io/show/ACBIF

03/09/2026

https://www.acmcrn.org/post/lidocaine-infusions-new-interest-in-older-treatment

Nothing touches the pain of your ? This older treatment may be what you need to try.

# #

02/28/2026

Today is Rare Disease Day!

If you live with Arachnoiditis, you know that "rare" usually means more than just a medical label. It often means feeling invisible, being misunderstood by doctors, or having to explain your symptoms over and over again.

At ACMCRN.org, we are working hard to change that. We believe everyone deserves to be seen and supported, no matter how rare their condition is.

We have a special page live for today and we would love for you to check it out. We even added some social media graphics you can download and share to help us raise awareness on your own pages!

How you can help today:

Check out our page and grab your share graphics: https://www.acmcrn.org/rare-disease-day

Support our mission with a donation: https://www.acmcrn.org/rare-disease-day-donation

Every gift helps us continue our work in advocacy, awareness, and research. Whether you can give a little or just share a graphic to help us spread the word, it makes a huge difference for our community. Let’s show the world that rare is actually everywhere.

02/27/2026

Only 2 more days until 2026!

Share ! Shareable media available for free here: https://www.acmcrn.org/rare-disease-day