09/06/2026
An opportunity to connect as a community and have your voice heard. See details to register attendance.
This is my son Riley, and he is autistic.
I've never publicly named one of my kids before, but this issue is too important not to.
When I talk about neurodivergence and the NDIS, I'm often thinking about Riley.
If these issues matter to you too, I'd like to invite you to a community forum we're hosting at Bethania Community Centre next Tuesday, 16 June.
More about that in a moment.
Like many neurodivergent people, Riley's autism is both a strength and a challenge.
It makes him who he is. Bright, funny and interesting.
And it creates obstacles that don't exist for most people.
Riley is also why I think so much about the NDIS.
One of the reasons we never tried to get support for Riley through the NDIS is because I've seen too many people go through too much anguish trying to navigate it.
Frankly, we thought the very limited supports he would get wouldn't be worth the heartache.
Another reason is that I never really thought the NDIS was meant for Riley.
But these days, I'm not sure where the line should be drawn, and that's part of the problem.
And now, any supports outside the NDIS have disappeared, so that families like ours feel we have no choice but to try to get onto it.
The NDIS has become the last lifeboat in the ocean.
Here in Forde, around 4,000 people on the NDIS have autism as their primary disability.
So if 4,000 autistic people are receiving support through the NDIS, how many more people need help but aren't getting it?
And even for people on the NDIS, the level of support varies enormously, even between people with very similar circumstances.
We've got to do better.
The reforms to the NDIS are a chance to do better.
We can make the NDIS work properly for the people it was originally designed to support.
And we can build up supports outside the NDIS for those who don't access it.
There is a lot of anxiety in the neurodivergent community about these changes.
I want to reassure people these reforms are not about removing anyone from the NDIS simply because they are autistic.
The goal is to make sure people get the support they need.
For some people that will be through the NDIS.
For others, it may be through supports outside the NDIS.
What matters is that people aren't left without support.
The neurodivergent community is also one of the least heard communities in our country.
That's why we're hosting this forum.
Not because I have the answers.
Because I want to hear from people who live this every day.
Autistic people.
Parents.
Carers.
Advocates.
Friends.
We'll be joined by advocates from QAI (Queensland Advocacy for Inclusion), LAQ (Legal Aid Queensland) and ADA (Aged and Disability Advocacy), who can help navigate the system.
If you're neurodivergent, or care about someone who is, I'd love to see you there.
Bethania Community Centre
Tuesday, 16 June
Informal catch-up from 12:30pm
Forum from 1:00pm to 2:00pm
The forum will:
Bring people together in a safe and welcoming environment.
Focus on what supports should be available both through and outside the NDIS.
Highlight advocacy services available to assist people navigating the system.
Most importantly, it will give people with lived experience a chance to shape where we go next.
If you're neurodivergent or care about someone who is, I'd love to see you there.
Please see the comments for the link to RSVP.