Myalgic Encephalomyelitis Group Australia Ltd

04/11/2026

Happy November!

Our November Newsletter is here!

We hope you enjoy this edition and find it interesting and informative. Thank you for being part of our community and supporting our work.

Warmly
Team MEGA 💙



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30/10/2026

𝗣𝗿𝗼𝗳𝗲𝘀𝘀𝗼𝗿 𝗝𝗮𝗺𝗲𝘀 𝗕𝗮𝗿𝗮𝗻𝗶𝘂𝗸/𝗡𝗖𝗡𝗘𝗗 𝗖𝗼𝗹𝗹𝗮𝗯𝗼𝗿𝗮𝘁𝗶𝗼𝗻

NCNED is pleased to welcome back Professor James Baraniuk from Georgetown University, Washington, DC, as he continues his collaboration with the Centre.

His return provides an opportunity to build on previous work, share expertise and further develop areas of mutual research interest. We look forward to continuing this collaboration and to the valuable insights and contributions Professor Baraniuk will bring to NCNED during his time with us.

Best wishes,
Sonya and the NCNED team

NCNED would like to express our gratitude and appreciation to all the volunteers, Support Groups and the following Organizations:
• The Stafford Fox Medical Research Foundation
• National Health and Medical Research Council
• MERUK
• Dr John Hamwood
• The McCusker Charitable Foundation
• Mr Adrian Flack
• Talei Stewart
• The Alison Hunter Memorial Foundation
• The Buxton Foundation
• The Henty Community
• The Blake Beckett Foundation
• Change for ME Charity
• QLD ME/CFS/FM Support Association
• WA ME/CFS and Lyme Association
• Fibromyalgia ME/CFS Gold Coast Support Group Inc
• Tweed ME/CFS/FM Lyme Support Group
• ME/CFS South Australia Inc
• ME/CFS & FM Association NSW Inc
• ME/CFS Australia

Griffith University, Griffith Health, , , , , , , , , , , , , , , , , , Tom Kindlon's ME CFS & related page: News, Research and more, ME/CFS Australia, ME Australia, ME CFS and Lyme Association of WA, ME/CFS/FM Support Association QLD Inc, Fibromyalgia me/cfs Gold Coast Support Group Inc., Chronic Fatigue Syndrome & Fibromyalgia NSW, Australia, My QoL, ME/ CFS South Australia Inc, Myalgic Encephalomyelitis Group Australia Ltd, ME Research UK, Me/cfs San Diego, Myalgic Encephalomyelitis M.E Chronic Fatigue Syndrome CFS Science, Leeds ME Network, Stichting ME Research, Bristol ME Support Group, Oxfordshire ME Group for Action, ME Long Covid unite SA, May 12th International ME CFS FM Awareness Day Australia, FJD/Robotech Robot line markers Australia

20/10/2026

🤓🥳🏅🙏💙

They are also the longest specialised Australian research centre.

We are grateful for their commitment, dedication and progress in research on ME and ME/CFS.

14/10/2026

Sometimes it can feel like things are standing still. Especially for severe ME patients who can't easily participate in research. But in the Netherlands, they are being included.

"Patients with ME or postcovid are often so ill that they do not leave their home. That is why they hardly participate in scientific research. Doctors now drive through the country on a laboratory bus: ‘This experience cannot be described.’"

"There, Dymphna's blood is stored in one of the largest biobanks in the world with body material from PAIS patients. She is almost the thousandth participant, says Bosch, who heads the research consortium that includes the biobank from the Amsterdam UMC and the LUMC. Scientists from home and abroad can request blood, cells, saliva, f***s and DNA and RNA samples from patients with ME or another post-acute infection syndrome for their research."

http://archive.today/8DqOm

13/10/2026

Congratulations! 🥳🌟🏅💙

𝗡𝗖𝗡𝗘𝗗 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵𝗲𝗿 𝗪𝗶𝗻𝘀 𝗖𝗵𝗮𝗻𝗰𝗲𝗹𝗹𝗼𝗿'𝘀 𝗠𝗲𝗱𝗮𝗹 𝗳𝗼𝗿 𝗘𝘅𝗰𝗲𝗹𝗹𝗲𝗻𝗰𝗲 𝗳𝗼𝗿 𝘁𝗵𝗲 𝗣𝗵𝗗 𝗧𝗵𝗲𝘀𝗶𝘀

We are thrilled to share that Dr. Sasso has been awarded the Chancellor's Medal for Excellence for the PhD Thesis of 2025 by Griffith University, recognising her as one of the highest-achieving PhD graduates and the Griffith Health Group's top-ranked candidate for 2025!

Presented by The Honourable Andrew Fraser, Chancellor of Griffith University, this award celebrates Etianne's outstanding contribution to research at the NCNED.

Her groundbreaking work on immune cell ion channel dysfunction is helping uncover the pathomechanism of ME/CFS, long COVID and GWI research that could shape future treatments for patients living with these debilitating conditions.

Congratulations also to her supervisory team, Professor Sonya Marshall-Gradisnik, Dr Natalie Eaton-Fitch, and Dr Kiran Thapaliya, for their guidance and support along the way.

Best wishes,
Sonya and the NCNED team

NCNED would like to express our gratitude and appreciation to all the volunteers, Support Groups and the following Organizations:
• The Stafford Fox Medical Research Foundation
• National Health and Medical Research Council
• MERUK
• Dr John Hamwood
• The McCusker Charitable Foundation
• Mr Adrian Flack
• Talei Stewart
• The Alison Hunter Memorial Foundation
• The Buxton Foundation
• The Henty Community
• The Blake Beckett Foundation
• Change for ME Charity
• QLD ME/CFS/FM Support Association
• WA ME/CFS and Lyme Association
• Fibromyalgia ME/CFS Gold Coast Support Group Inc
• Tweed ME/CFS/FM Lyme Support Group
• ME/CFS South Australia Inc
• ME/CFS & FM Association NSW Inc
• ME/CFS Australia

Griffith University, Griffith Health, , , , , , , , , , , , , , , , , , Tom Kindlon's ME CFS & related page: News, Research and more, ME/CFS Australia, ME Australia, ME CFS and Lyme Association of WA, ME/CFS/FM Support Association QLD Inc, Fibromyalgia me/cfs Gold Coast Support Group Inc., Chronic Fatigue Syndrome & Fibromyalgia NSW, Australia, My QoL, ME/ CFS South Australia Inc, Myalgic Encephalomyelitis Group Australia Ltd, ME Research UK, Me/cfs San Diego, Myalgic Encephalomyelitis M.E Chronic Fatigue Syndrome CFS Science, Leeds ME Network, Stichting ME Research, Bristol ME Support Group, Oxfordshire ME Group for Action, ME Long Covid unite SA, May 12th International ME CFS FM Awareness Day Australia, FJD/Robotech Robot line markers Australia

08/10/2026

🥳💙

𝗡𝗖𝗡𝗘𝗗 𝗥𝗲𝘀𝗲𝗮𝗿𝗰𝗵𝗲𝗿𝘀 𝗜𝗻𝘃𝗶𝘁𝗲𝗱 𝘁𝗼 𝗣𝗿𝗲𝘀𝗲𝗻𝘁 𝗮𝘁 𝗡𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗩𝗲𝘁𝗲𝗿𝗮𝗻𝘀 𝗛𝗲𝗮𝗹𝘁𝗵 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲

The National Centre for Neuroimmunology and Emerging Diseases (NCNED) is proud to announce that Distinguished Professor Sonya Marshall-Gradisnik and Dr Natalie Eaton-Fitch were recently invited speakers at the National Pro Patria Centre Conference in Canberra, a leading forum focused on advancing the health and wellbeing of Australian veterans.

During the conference, Professor Marshall-Gradisnik presented NCNED's research examining the significant and long-lasting impacts of Gulf War Illness on the health and wellbeing of Gulf War veterans. Her presentation highlighted the ongoing challenges faced by veterans and the importance of continued scientific investigation to better understand the biological mechanisms underlying chronic illness following military service.

Dr Eaton-Fitch delivered a presentation showcasing the latest findings from NCNED's epidemiological research involving veterans who served during the 1990-1991 Gulf War. Her presentation provided valuable insights into the long-term health outcomes, disease burden and lived experiences of this veteran population, reinforcing the need for ongoing research and evidence-based support services.

The invitation to present at this prestigious national conference reflects NCNED's growing leadership and expertise in veteran health research. Through multidisciplinary investigations and strong stakeholder engagement, NCNED continues to contribute important knowledge that informs clinical practice, policy development and future research directions for veterans living with complex chronic health conditions.

We extend our sincere thanks to the National Pro Patria Centre for the opportunity to share our work and engage with researchers, clinicians, policymakers and veteran advocates from across Australia.

Best wishes,
Sonya and the NCNED team

NCNED would like to express our gratitude and appreciation to all the volunteers, Support Groups and the following Organizations:
• The Stafford Fox Medical Research Foundation
• National Health and Medical Research Council
• MERUK
• Dr John Hamwood
• The McCusker Charitable Foundation
• Mr Adrian Flack
• Talei Stewart
• The Alison Hunter Memorial Foundation
• The Buxton Foundation
• The Henty Community
• The Blake Beckett Foundation
• Change for ME Charity
• QLD ME/CFS/FM Support Association
• WA ME/CFS and Lyme Association
• Fibromyalgia ME/CFS Gold Coast Support Group Inc
• Tweed ME/CFS/FM Lyme Support Group
• ME/CFS South Australia Inc
• ME/CFS & FM Association NSW Inc
• ME/CFS Australia Ltd

Griffith University, Griffith Health, , , , , , , , , , , , , , , , , , Tom Kindlon's ME CFS & related page: News, Research and more, ME/CFS Australia, ME Australia, ME CFS and Lyme Association of WA, ME/CFS/FM Support Association QLD Inc, Fibromyalgia me/cfs Gold Coast Support Group Inc., Chronic Fatigue Syndrome & Fibromyalgia NSW, Australia, My QoL, ME/ CFS South Australia Inc, Myalgic Encephalomyelitis Group Australia Ltd, ME Research UK, Me/cfs San Diego, Myalgic Encephalomyelitis M.E Chronic Fatigue Syndrome CFS Science, Leeds ME Network, Stichting ME Research, Bristol ME Support Group, Oxfordshire ME Group for Action, ME Long Covid unite SA, May 12th International ME CFS FM Awareness Day Australia, FJD/Robotech Robot line markers Australia

07/10/2026

Happy October!

Here is our October Newsletter!

We hope you enjoy this edition and find it interesting and informative. 🍀Thank you for being part of our community and supporting our work.

Warmly
Team MEGA 💙

https://sh1.sendinblue.com/mk/sc/PCPCYHGlKDuE7yWRM6nQ5KZZjl4lQbSIw0KbRQ8ACwV_Ph9QVk0JYMI0wUSD3_GYz82KChZiGfWZoxH_67hGiNCpS9Y4pA?t=1791295858716