Jennah's Journey Inc.

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Jennah's Journey Inc. Jennah’s Journey Inc.

is a nonprofit organization that was established in memory of the beautiful and brave 4 year old Jennah who passed after fighting a form of Childhood Cancer called Rhabdomyosarcoma.

10/15/2026

There's something about fall days. The cool air. Sun rays making their way through the clouds, enough to tingle your face and give you a sense of warmth, and you still run back into the house for a sweatshirt. There's something about the smell, too. I don't mean pumpkin latte scented hand wash. I mean the smell of cold air in the morning, of gray rainy days and dark skies. It's all so beautiful, and for me it's also a reminder of days that cannot be washed away with the fall rain.

Days of looking out the clinic window while Jennah got an infusion. Movies playing in the background while she lay in my lap, cuddled in her favorite blanket, her chemo dripping. Those movies are forever engraved in my memory with the rain, the gray skies, the chemo, and the clinic.

Cold nights, and the guilt of being under warm blankets when my child never will have that chance again. I hate cold evenings, but I love fall. I don't like all my memories, but I like that I get to see her face when I close my eyes, even when it's with a drip, or in a clinic.
I am grateful this fall, not only for her memory but for the people carrying it.

Two weeks ago, the Oneida Girls' Field Hockey team honored cancer warriors during one of their games, those fighting and those who have passed. One special young lady reached out and asked if they could include Jennah in the ceremony. The boys' varsity soccer team was there, along with members of the football team.

On the hill, on a windy, chilly afternoon, we stood as they read the names, Jennah's being one of them. Girls who never met her. Who would have been no older than 7 or 8 when she passed. They chose to include her, and that was warm.

I loved that cold fall day. As much as I wish she could be here, I am always grateful that even when she isn't, she is remembered.

Cancer cluster investigations rarely produce action items. I have not seen one end in a clear cause, a policy change, or...
09/26/2026

Cancer cluster investigations rarely produce action items. I have not seen one end in a clear cause, a policy change, or accountability.
Awareness months exist to turn stories like this into pressure. Rare or not, when a pattern surfaces, the investigation owes families more than "inconclusive."

Residents of Ladera Ranch have tallied cancer cases and raised concerns about pesticides in parks and playing fields. Scientists say proving a cause is complicated.

On multiple incidents, when speaking of Jennah, people have a hard time pronouncing her cancer and their eyes look to us...
09/15/2026

On multiple incidents, when speaking of Jennah, people have a hard time pronouncing her cancer and their eyes look to us for guidance. We wouldn’t have been able to pronounce it prior to Aug 2015 either. We also knew close to nothing about sarcomas.

09/11/2026

Day 8: Meet the Rhabdomyoblast
Okay, this is weird.
Those giant cells are called rhabdomyoblasts, and they are found in rhabdomyosarcoma.

Some are enormous. Some contain multiple nuclei (the site of DNA for the cell). And they have features of muscle differentiation.

But here's the question scientists want to answer:

Where do these cells come from—and what are they doing?

Sometimes, a strange-looking cell under a microscope is the beginning of a very important scientific question.

My son is 17. We lost his sister when he was 8, and since then he's continued to learn of other kids with pediatric canc...
09/10/2026

My son is 17. We lost his sister when he was 8, and since then he's continued to learn of other kids with pediatric cancer — not by design, just by living. Kids from school. Kids from his online games. Friends of friends, kids he hung out with or played sports with at some point. This should be a shocking fact, and it isn't, and that's the problem.
One child his age — someone he knew, played sports with, was in the same circle of friends — passed away yesterday after a battle with cancer. The devastation to his family, friends, team, school, and close and extended community is hard to put into words. This is a loss that should never happen. Not in this day and age.

The gap in his family ‘s soul. The life he had ahead of him. The contributions he could've made to the world. A family left to watch the person he could've grown up to be — and never getting to.

This should not just be a September post. Not an October post. Not November, not December. This should be every month, every day. We should all be so pained to the point of being livid.

Kids deserve better. Rest easy, child. On behalf of the world — we failed you, and we are terrible for it.

It is with unimaginable sadness that we share the heartbreaking news that our Hope In Action family has lost one of our own this morning.

While cancer may have taken Levi from us, he never lost his battle. He fought every single day with incredible bravery, strength, and courage. He showed us what it truly means to be strong, and he inspired everyone who had the privilege of knowing him.

Levi’s journey touched so many lives. The impact he had on his family, friends, church, and everyone around him will never be forgotten.

Our hearts are absolutely broken for DeMatteis family. There are no words that can take away the unimaginable pain of losing a child. During this heartbreaking time, we ask our Hope in Action supporters and community to please keep Levi’s family in your thoughts and prayers.

Fly high, Levi. Your memory will forever be a part of Hope in Action 🕊️🎗️💚🥑🙏🏻

09/08/2026
Today marks the first day of Childhood Cancer Awareness Month. For years I posted a fact a day. I was under the illusion...
09/02/2026

Today marks the first day of Childhood Cancer Awareness Month.

For years I posted a fact a day. I was under the illusion that if I did that, and people saw the frightening statistics, maybe we’d see change in my lifetime. So every September, I’d get my facts and numbers ready and post one a day. And every year, we’d learn about kids newly diagnosed — some never making it. I would tell myself that getting frustrated doesn’t do anything, and we should stay the course anyway. I would still plan events for Jennah’s Journey to raise money, with the same familiar faces showing up every year, and no one new to push it forward.

The world of trying to make a difference is as exhausting and lonely as the world of a family going through it.

Today is even more frustrating, if that’s possible — because today, September 1st, I heard the news of a child heading to hospice.
When will we realize September isn’t just gold ribbons and frightening facts? It’s also news of new diagnoses, kids starting treatment, and others ending it with no positive outcome.

Welcome to September — where Jennah, who would be going into 9th grade, is my reason, but all these babies are the goal.

09/01/2026

🎗️ September is Childhood Cancer Awareness Month 🎗️

This month, we’re shining a light on the incredible kids and families who face childhood cancer with courage, strength, and so much heart.

Behind every diagnosis is a child who still wants to laugh, play, grow, dream, and just be a kid. And behind every child is a family navigating a journey they never expected.

Our pediatric oncology team is honored to walk alongside our patients and families through the hard days, the milestones, the celebrations, and everything in between. We celebrate our survivors, remember the children we have lost, and continue to advocate for better treatments, more research, and a future where every child with cancer has the chance to thrive.

💛 This month, and every month, we stand with our patients, survivors, families, and our entire pediatric oncology community.

For those new to the page, Jennah had Rhabdomyosarcoma. Most people can't even pronounce it, let alone know what it mean...
07/19/2026

For those new to the page, Jennah had Rhabdomyosarcoma. Most people can't even pronounce it, let alone know what it means. Truth be told, neither did we — 11 years ago. Then it took her life at just 4 years old.

July is Sarcoma Awareness Month. Our awareness came at the worst possible cost.

Levant will be there tomorrow. If you’re in Oneida , or you’re at Walmart Oneida - Genesee St, go support the cause. Thi...
06/27/2026

Levant will be there tomorrow. If you’re in Oneida , or you’re at Walmart Oneida - Genesee St, go support the cause. This is a great support for Golisano Children’s.

Tomorrow, we will be at the CMN Market — upper Walmart parking lot Walmart Oneida - Genesee St June 27th until supplies last.

This is an event that is near and dear to our hearts. A portion of our proceeds will go to the overall event total supporting Golisano Children’s Hospital in Syracuse. This is exactly the kind of event worth showing up for — good food, good people, and a cause that hits home. ❤️

Come eat, shop the garage sale, browse the craft vendors, and do something good while you’re at it.

Tag someone who needs to be there. 👇

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Oneida, NY
13421

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