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We are a Genetic Support Foundation program that offers reliable, up-to-date information about genetic conditions.

10/15/2026

In "25 Things I Wish They'd Told Me in the Hospital When My Son Was Diagnosed with Down Syndrome," Dr. Stephanie Meredith looks back on the years since her son, Andy, was born and shares the things she wishes she could have known then.

She wishes she'd known that:
🩵 Her son would grow into a funny, independent person with his own interests, friendships, opinions, and sense of humor.
🩵 He would learn to ride a bike, earn his Eagle Scout award, get a job in high school, develop a passion for photography, and find ways to build on his strengths.
🩵 He would have friends who treated him like a brother and coaches, teachers, and other allies who assumed he could succeed.
🩵 Their family's life would still be full of adventures, travel, friendships, and fun.

Every child and every family's journey is unique. But sometimes, hearing from families who have walked this path before can offer something especially valuable in those first overwhelming days: a glimpse of the possibilities ahead.

Read "25 Things I Wish They'd Told Me in the Hospital When My Son Was Diagnosed with Down Syndrome" at DownSyndromePregnancy.org/articles 🩵

10/08/2026

Happy Down Syndrome Awareness Month! 💙💛

This month, Dr. Stephanie Meredith shares a reflection from the National Down Syndrome Congress (NDSC) Policy Summit in Washington, DC:

Many thanks to the advocates and leaders who brought their stories, energy, and passion to Capitol Hill this week. More than 250 self-advocates and parents came to DC to remind Congress that our community needs them to:

💙 Preserve special education services within the Department of Education
💙 Promote employment and financial security for people with disabilities
💙 Raise SSI asset limits that keep people with disabilities in poverty
💙 Protect and expand access to home- and community-based services, my area of focus right now!

I know how hard the NDSC policy team worked to pull this together, and how much energy and commitment it took for so many self-advocates and parents to travel to DC and walk the halls of Congress. I am so grateful to all of you.

I also experienced one of the highlights of my career on Wednesday, when I had the opportunity to represent the Senate Committee on Finance under Ranking Member Wyden and address the community I love so dearly. Standing in the Kennedy Caucus Room of the Russell Building, I shared how much your advocacy matters, especially amid current cuts to services and the erosion of disability infrastructure built over many years. You have power in your stories to reverse this tide. I've seen how much Senator Wyden and his staff genuinely care, and I know you can prevail!

I closed my remarks with these words:

"Even though my family isn't here with me right now, I'm not alone because my secret weapon is all of you. Your stories and mine have the power to change hearts and minds about which policies are most important. Our stories provide the details needed to make policies more effective, and they can be powerful tools in encouraging bipartisan collaboration.

I know what it takes to get here—the babysitters, the travel costs, and time—and I am genuinely so grateful to you for making the sacrifice to come."

10/02/2026

📚 20% OFF Lettercase & Down Syndrome Pregnancy resources!

October is Down Syndrome Awareness/Acceptance Month, and we're celebrating with 20% off Lettercase and Down Syndrome Pregnancy books and resources through October 31!

Our balanced, up-to-date, and medically reviewed resources support families and healthcare professionals navigating a Down syndrome diagnosis, with resources available in multiple languages.

Purchasing printed resources helps us send free resources to families, develop training for healthcare providers, carry out meaningful research, and advocate for disability justice.

❤️ Shop the sale: LettercaseBooks.org

Our resources are also available for free online through Lettercase.org and DownSyndromePregnancy.org!

09/24/2026

Beyond creating resources for families, Lettercase and Genetic Support Foundation also provide lectures for genetic counselors and other healthcare providers on important topics, including:

❤️ Disability history, justice, and health equity
❤️ How to sensitively deliver a diagnosis based on family experiences and preferences
❤️ Resources to improve health outcomes for people with disabilities

Last year, we trained over 300 healthcare providers and 140 students across 12 genetic counseling and disability studies programs!

Your support helps us continue providing these important educational opportunities and advancing more inclusive, equitable healthcare for people with Down syndrome and other conditions.

Please consider donating today to support our lectures: GeneticSupportFoundation.org/donate

09/17/2026

🎉 We're thrilled to celebrate an exciting new chapter for Dr. Stephanie Meredith!

On September 1, Stephanie began a one-year fellowship in Washington, DC, as a Joseph P. Kennedy, Jr. Foundation Public Policy Fellow. Through her fellowship placement with the U.S. Senate Finance Committee, Stephanie will focus on Medicaid and Home and Community-Based Services (HCBS) waivers.

These policies have a significant impact on people with disabilities and their families, and Stephanie is bringing her decades of experience in disability advocacy and family support to this important work.

While Stephanie is spending the year in DC, she remains deeply connected to the communities and families she serves through Lettercase and Down Syndrome Pregnancy. We are so proud of her and excited to see the impact she will make in this new role! 💙

09/13/2026

Happy Grandparents Day! Today, we're highlighting "Your Loved One Is Having a Baby with Down Syndrome," a book for grandparents, family members, and friends who are welcoming a new baby with Down syndrome.

Learning that a loved one is expecting a baby with Down syndrome can bring questions, uncertainty, and emotions. This book offers information and perspective to help you navigate those first reactions, better understand Down syndrome, and feel prepared to welcome the new baby into your family.

💙 Read online for free: DownSyndromePregnancy.org/book/your-loved-one

💙 Purchase a printed copy: LettercaseBooks.org

09/04/2026

Si ou fèk aprann ke tibebe w la gen Trizomi 21, ou pa poukont ou.

Liv Konprann Dyagnostik Trizomi 21 nou an disponib kounye a an kreyòl Ayisyen. Resous fyab sa a bay enfòmasyon ekilibre ak ajou sou Trizomi 21.

❤️ Kòmande yon kopi enprime lè w vizite LettercaseBooks.org.

❤️ Li liv konplè nou an sou entènèt gratis nan UnderstandingDownSyndrome.org (klike sou ikòn glòb ki nan kwen anwo dwat la pou chanje lang).

Tanpri pataje resous sa a pou ede plis fanmi jwenn aksè a enfòmasyon ki egzak e ki montre konpasyon.

___

If you've recently learned that your baby has Down syndrome, you are not alone.

Our Understanding a Down Syndrome Diagnosis bifold is now available in print in Haitian Creole. This trusted resource provides balanced, up-to-date information about Down syndrome.

❤️ Order a printed copy by visiting LettercaseBooks.org.

❤️ Read our free, comprehensive online book at UnderstandingDownSyndrome.org (click the globe icon in the upper right corner to change languages).

Please share this resource to help more families access accurate, compassionate information.

08/27/2026

Dr. Stephanie Meredith recently contributed a disability community perspective article on the growing role of private investment in reproductive genetics in Helen, The Journal of Human Exceptionality.

New embryo gene-editing research has reignited concerns about safety, consent, disability rights, and the growing commercialization of reproductive technologies. This article examines how private investment, embryo screening, and heritable genetic modification can reinforce ableist ideas about which lives are valued, while calling for disability-led policy advocacy and stronger public oversight before these technologies become normalized.

Read "Venture Capitalist Eugenics Is Coming" at HelenJournal.org/July-2026/venture-capitalist-eugenics-is-coming!

08/20/2026

During this month's Medical Outreach Meeting, we discussed the benefits of building medical outreach alliances with other disability advocacy organizations and shared examples of successful collaboration!

When disability organizations work together, we can expand our reach, share resources and expertise, and build stronger networks of support for patients, families, and healthcare providers.

Together, we can collaborate on:
❤️ Medical outreach projects
❤️ Grant applications
❤️ Provider education
❤️ And more!

Learn more by visiting Lettercase.org/news!

08/14/2026

August is National Breastfeeding Month! 🤱 This month, we're highlighting a resource designed to help families access the information and support they need when learning about breastfeeding a baby with Down syndrome.

📖 Breastfeeding and Down Syndrome: A Comprehensive Guide for Mothers and Medical Professionals was developed by Julia's Way, a non-profit program now integrated into the MDSC National Parents First Call Center. This book includes information on everything from preparing to breastfeed, breastfeeding after heart surgery, getting to the breast after tube feedings, and much more.

💛 This comprehensive resource is available through the Lettercase Bookstore at LettercaseBooks.org and can also be downloaded for free at DownSyndromePregnancy.org!

Address

PO Box 2649
Olympia, WA
98507

Website

http://www.lettercase.org/

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