Nothing down about Bilee

12/17/2024

I haven’t made a Bilee update in awhile bc we are so busy with therapy and appointments! She is busy all week long! Since she has been home she has been to the ER countless times and a few overnight stays and a couple surgeries. She is doing very well❤️ This time last year she was recovering from heart surgery, it’s amazing how life has changed for the better for my baby! All glory to God✝️

09/17/2024

Pray for Bilee baby she is getting her gtube closed today! Ones less tube 🎉 She’s been eating and taking most of her medication orally!!!

06/27/2024

Bilee Jean Lee 🩷

Check out l.i.s.a.l.e.e’s video.

06/23/2024

Happy birthday Bilee girl! I can’t believe she is already one! I was really hoping she wouldn’t be in the hospital for her birthday but she is 😢 It hasn’t been easiest year but we’ve came a long way! I love you so much sweet girl 🩷

05/31/2024

Bilee right before surgery 🥹

05/31/2024

It’s been a rough couple days for Bilee girl. She had to go to the ER the last three days in a row. Her central line had a hole and broke the next day. Yesterday she had a fever so I had to rush her to the hospital. She needed up having an infection. Now they are removing her line tomorrow because the line wasnt in the right spot. She will have to be under to have it removed, it’s right next to her heart. Please keep her in your prayers! 🩷

05/07/2024

My emotions have been everywhere all day 🥹

04/29/2024

8 more days til forever!! I didn’t know what life what going to look like when I found the news out about Bilee I could barley look at blood now I’m out here learning how to change feeding tubes and putting medication thru a IV! Gods plan is so much better than mine! Forever grateful for all nurses! 💖

04/25/2024

💖💖💖Bilee is coming home💖💖💖

After 307 long days in the hospital we finally have a discharge date! May 7th she will finally be at home with her family 🥹 I can’t express the gratitude I have for everyone that has prayed for my baby. This has been the hardest road I have faced by far, but there is always light at the end of the tunnel. God is so sweet! I will have all my babies with me together for Mother’s Day 💐

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