ITSAN - Topical Steroid Withdrawal Syndrome Support

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ITSAN - Topical Steroid Withdrawal Syndrome Support This is the official public page for the International Topical Steroid Awareness Network. Please find a supportive doctor for that purpose.

The ITSAN page offers information and inspiration about Topical Steroid Withdrawal Syndrome, but does not answer specific questions or medically advise. Please join our official ITSAN Facebook support group in the link below for discussion and support from other members:

https://www.facebook.com/groups/ITSANSupport/

Neither ITSAN nor its support group members are permitted to give medical advice or diagnose.

đź’š Healthy Skin Club Spotlight: A BIG Thank You to Our Partners! đź’šAt ITSAN, we believe no one should have to navigate top...
10/30/2026

đź’š Healthy Skin Club Spotlight: A BIG Thank You to Our Partners! đź’š

At ITSAN, we believe no one should have to navigate topical steroid withdrawal (TSW) alone. Our mission to raise awareness, advance research, and provide resources and support to those affected by TSW is made stronger by the generous partners who stand alongside us.

Today, we’re sending a heartfelt THANK YOU to our Healthy Skin Club Partners, Phloilex and Lyon’s Leaf! ✨

Your support helps us continue our work to empower the TSW community, expand access to helpful resources, and build a future where people affected by TSW feel seen, heard, and supported.

We’re so grateful to have partners who care about the sensitive-skin community and believe in the importance of our mission.

Please join us in showing Phloilex and Lyon’s Leaf some love in the comments! 👇

Looking for connection and support on your TSW journey? You don’t have to navigate it alone. 💚Join the TSW Sharing Circl...
10/29/2026

Looking for connection and support on your TSW journey? You don’t have to navigate it alone. 💚

Join the TSW Sharing Circle, a free, online peer-to-peer support group created by TSW warrior and ITSAN friend, Rose-Anna Hyde.

These monthly gatherings offer a safe, supportive space to connect with others who understand the unique challenges of topical steroid withdrawal (TSW), share experiences, and learn from one another. Sometimes, simply being heard by someone who truly understands can make a meaningful difference.

Rose-Anna is a creative practitioner currently training in counselling skills with the London School of Counselling. Inspired by the power of mutual aid and peer support, she created this group to help people affected by TSW find connection and understanding.

Here’s what you need to know:
- Online monthly meetings for a six-month trial period
- Free to attend and volunteer-led
- Limited to 15 participants to help create a supportive environment

There’s still an opportunity to get involved! If you’re looking for a space to share, connect, and feel less alone, we encourage you to sign up.

Register on the link below: https://docs.google.com/forms/d/e/1FAIpQLSdmrvAEWteLKdGR8PxS1VUHjN7TyigJs6y4AE6hEI0X0U2xPg/viewform?pli=1

Please note: This is a peer-support group, not a substitute for professional therapy.

Share this post with someone who might benefit from connecting with others who understand.

10/28/2026

As eczema awareness month wraps up, we believe it’s more important than ever to highlight the fact that topical steroid withdrawal (TSW) is not simply severe eczema.

The experiences of those living with TSW needs to be heard, understood, and taken seriously. Sharing our stories helps raise awareness and shines a light on the urgent need for greater recognition, scientific research, and effective treatments.

In this ITSAN webinar that kicks off our "TSW Community Voices" series, President Kelly Barta sits down with Steven Daley, a biochemist, fitness trainer, and member of the TSW community, to explore his personal journey and insights.

In this conversation, we explore:

🔹 Steven’s journey with eczema, topical steroid use, and TSW
🔹 Topical steroids, hormones, and medication safety awareness
🔹 Understanding skin symptoms and diverse lived experiences
🔹 The physical and practical challenges of living with TSW
🔹 Resilience, hope, and finding purpose through community

Every story matters. Every voice deserves to be heard. Together, we can build greater understanding and advance TSW awareness, research, and support.

To view the entire interview click the link below:
https://www.youtube.com/watch?v=3TJYUIAdq6s

Some moments are a reminder that we’re never meant to walk this journey alone. 🤍ITSAN was so grateful to be part of Flau...
10/19/2026

Some moments are a reminder that we’re never meant to walk this journey alone. 🤍

ITSAN was so grateful to be part of Flaunt Your Flare this past weekend in Fort Lauderdale, FL, and to spend time with so many incredible people from the TSW, eczema and other skin communities.

Events like this remind us why community matters so much. Living through a challenging skin journey can often feel isolating, but we don’t have to walk it alone. There is strength in sharing our stories, listening to one another, offering encouragement, and simply being together with people who understand.

Thank you to everyone who shared their experiences, and helped create such a supportive and uplifting space. And a special thank you to Chi Villines and the Flaunt Your Flare team for bringing this community together and creating a space where people can feel seen, heard, celebrated, and supported beyond their skin.

We’re so grateful to be part of this community - and we’ll keep showing up for one another, every step of the way. 🤍

Together, we are stronger. Together, we heal. Together, we can make a difference.

Looking for support for navigating TSW? Sign up for the newly formed Peer-to-Peer TSW Sharing Circle starting this comin...
10/02/2026

Looking for support for navigating TSW? Sign up for the newly formed Peer-to-Peer TSW Sharing Circle starting this coming Monday, October 5th.

TSW warrior and friend of ITSAN, Rose-Anna Hyde, is launching a new online peer-to-peer support group, TSW Sharing Circle. The group will meet online monthly for a trial period of six months. The aim of the group is to create a safe and supportive space for those affected by TSW to share our experiences.

Rose-Anna is a creative practitioner and TSW warrior who is currently training in counseling skills with London School of Counselling. While these groups are not a replacement for therapy, Rose-Anna believes in the power of mutual aid and peer-to-peer support. We all know that the only ones who truly understand TSW are those who have experienced it—and those conversations can be very healing. Rose-Anna wants to create a safe, consistent space for them to happen.

The group is limited to 15 spaces. Sessions are free of charge and volunteer-led.

The first session will be Monday, 5th October at 2 pm NY time and 7pm UK time.

To register, click the link below:
https://docs.google.com/forms/d/e/1FAIpQLSdmrvAEWteLKdGR8PxS1VUHjN7TyigJs6y4AE6hEI0X0U2xPg/viewform

Two years ago, TSW warrior Rhiannon climbed Kilimanjaro to raise awareness of TSW and fundraise to help support ITSAN's ...
10/01/2026

Two years ago, TSW warrior Rhiannon climbed Kilimanjaro to raise awareness of TSW and fundraise to help support ITSAN's work. This year, she took on another challenge: an 11-day, 103-mile hike around the Tour du Mont Blanc, through France, Italy, and Switzerland.

Rhiannon is four years steroid free and fully healed, and her experience with TSW has left her passionate about spreading awareness, especially in the UK, where recognition and understanding still have a long way to go. Along the way, she shared 11 brave voice videos, one for each day of her hike, to reach warriors who might need to hear them.

Her GoFundMe raised ÂŁ2,181, and combined with her Kilimanjaro fundraising in 2023/24, Rhiannon has now raised roughly ÂŁ4,000 for ITSAN! She shared that ITSAN was there for her in some of the darkest days of her life, and we are so grateful to have her walking alongside us now.

Rhiannon, thank you for your generosity, your courage, and for showing our community that there is life and hope on the other side of TSW. We can't wait to share how gifts like yours are making a difference.

*Want to raise awareness and help support ITSAN's work too? Check out our fundraising ideas here: https://actionhub.itsan.org/fundraising

This year at the TSW Summit, we were honored to celebrate the individuals whose dedication, leadership, research, and ad...
09/30/2026

This year at the TSW Summit, we were honored to celebrate the individuals whose dedication, leadership, research, and advocacy continue to drive the global movement to raise awareness of Topical Steroid Withdrawal and provide much needed support for those suffering through TSW.

In case you weren't able to join us in person , we wanted to highlight them and their work here as well. 🧡

From the founding vision that launched ITSAN over a decade ago to the clinicians, researchers, and community leaders advancing the cause today, recipients represent the full breadth of what it takes to change the landscape of TSW recognition – courage, compassion, scientific rigor, and an unwavering commitment to patient voices.

Our community and world are indebted to these who have sacrificed so much of their time and energy to support patients and their caregivers, move this cause forward to prevent TSW from happening to anyone else in the future. BRAVO & THANK YOU!!!!

Have you checked out ITSAN lately? 👀We’ve given ITSAN a fresh new look across our website, social channels, and Action ...
09/17/2026

Have you checked out ITSAN lately? đź‘€

We’ve given ITSAN a fresh new look across our website, social channels, and Action Hub, but behind the new branding is the same organization committed to supporting people affected by Topical Steroid Withdrawal.

We’re making it easier to find resources, learn about the latest research, connect with support, and take action.

Visit our website and explore the Action Hub. There’s more happening than ever, and we’d love for you to be part of it. 💙

ITSAN's Website: https://www.itsan.org/
ITSAN's Action Hub: https://actionhub.itsan.org/

Same ITSAN. Fresh look. Moving forward together.

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