ITSAN - Topical Steroid Withdrawal Syndrome Support

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ITSAN - Topical Steroid Withdrawal Syndrome Support

This is the official public page for the International Topical Steroid Awareness Network. Please find a supportive doctor for that purpose.

The ITSAN page offers information and inspiration about Topical Steroid Withdrawal Syndrome, but does not answer specific questions or medically advise. Please join our official ITSAN Facebook support group in the link below for discussion and support from other members:

https://www.facebook.com/groups/ITSANSupport/

Neither ITSAN nor its support group members are permitted to give medical advice or diagnose.

06/15/2026

Thinking about joining us for the TSW Summit next month? Today is the last day to snag early bird discounted tickets, saving $30 per registration!

We are so excited for this gathering and hope you will join us to hear from top-notch doctors, researchers, and our own amazing TSW survivors and advocates.

If you haven't secured your ticket for the TSW Summit yet, now's the time. There is limited space, so we encourage you to book your tickets early to ensure we are not sold out.

We understand that going through TSW can make traveling away from home tricky and you may feel hesitant to commit (we've been there). Rest assured that we understand and are doing everything we can to make the event as TSW friendly and comfortable as possible for you! And if your skin takes a turn (as we know it can in this roller-coaster of TSW), we are happy to exchange an in-person ticket to a virtual one and refund you the difference.

Book tickets by clicking here: https://www.itsan.org/tsw-summit-event/

06/05/2026

The TSW Summit just keeps getting better and better! We have added new speakers who will be sharing with us - check them out below!

The Director of the National Institute of Arthritis, Musculoskeletal and Skin Diseases (NIAMS), Dr. Anna Mazzucco, confirmed she will be presenting along with Melody Hartzler, a pharmacist now practicing functional medicine with an emphasis on hormonal and gut health. Also joining us are TSW survivors, Clare Crawley (known for her role on The Bachelorette), Empress Aryial Griffin (founder of Luxurious Peace), and Stephanie Philpot (founder of The Eczema Sample Store).

We are so excited for this gathering!! We hope you will join us too!

If you haven't secured your ticket for the TSW Summit yet, now's the time. There is limited space and early bird registration closes on June 15th, so we encourage you to book your tickets early to ensure we are not sold out.

We understand that going through TSW can make traveling away from home tricky and you may feel hesitant to commit (we've been there). Rest assured that we understand and are doing everything we can to make the event as TSW friendly and comfortable as possible for you! And if your skin takes a turn (as we know it can in this roller-coaster of TSW), we are happy to exchange an in-person ticket to a virtual one and refund you the difference.

Book tickets by clicking here: https://www.itsan.org/tsw-summit-event/

👇👇👇👇👇👇👇

05/26/2026

There is something about art that reaches another human in a way nothing else can.

That is why we are hosting an art exhibit at the upcoming TSW Summit in Atlanta, Georgia July 24-25. This summit will be a gathering of key thought leaders, cllinicians, and researchers along with TSW community. We want to showcase pieces not only in an effort to create solidarity, but also to highlight the TSW experience so that those who are not living in our skin can better understand just how deep this condition affects a person.

If you would like to learn more, join us today on zoom to get all the details.

Click here to join at 2 pm EST today:
https://us06web.zoom.us/j/86190383018?pwd=GmGptBggmAcnej9L9iOd0RAfXySzME.1

Hope to see you there!

05/23/2026

This past week, ITSAN representatives, Kristin Fletcher, Sarat Pothuri, Reva Vaddi and Kelly Barta met with US legislators and their staff to share their experiences with eczema and TSW, and the major unmet needs our community face. They joined 75 advocates affiliated with other national skin advocacy groups who are also part of the Coalition of Skin Diseases. Together the group had over 100 meetings with Members of Congress!

Our representatives shared how they spoke with many, from a US Congressman in Ohio to legislative fellow from Germany working for a Georgia Senator, who were currently dealing with eczema and have heard of TSW, but were not fully informed. This is why we advocate for our community! The more we share our stories with truth and urgency, the more the word spreads. And the more the word spreads, the more quickly this issue will be taken up by those in places of authority who are in a position to change the way topical steroids are prescribed and used.

05/22/2026

We have some big news to share! Fera Tallow has officially partnered with ITSAN (International Topical Steroid Awareness Network). 🤝

Fera Tallow is passionate about supporting people with challenging skin conditions like eczema and TSW, and believe everyone deserves a safe path to healing.

Founded by Joanna Hopkins following her own experience managing eczema and long-term steroid use, Fera Tallow was built on a determination to offer a gentle alternative for eczema-prone skin and to ensure others navigating similar journeys know that different options exist.

Fera Tallow makes small-batch tallow balms using grass-fed tallow sourced from regenerative, high-welfare, certified organic British farms. Tallow's fatty acid profile closely mirrors the composition of the skin’s natural oils, making it compatible with the skin barrier, particularly for skin that is sensitive, reactive, or recovering.

We are so grateful for companies like Fera Tallow who are aligned with our mission to support individuals and families going through TSW and welcome them to our Healthy Skin Club!

05/21/2026

We are thrilled to share the launch of a new app called SkinPal, created by those going through TSW for those in TSW!

After months of building, testing, learning and listening…Skinpal is now available on the App Store.

Skinpal was built for the people who feel alone in their skin journey.

For the nights you can’t sleep. For the flares you don’t understand. For the endless guessing. For the days when you just need to feel seen.

With Skinpal you can track your symptoms, food, sleep, stress, environment and routines, see your progress over time, get daily AI insights, and connect with a community that truly understands.

Skinpal is here for every flare. Download now on the App Store. ✨

Thank you Lukas and the SkinPal Team, for developing this amazing tool to support people going through TSW. You all are rock stars! 🤩

05/19/2026

Today ITSAN in Washington, D.C., with the Coalition of Skin Diseases to advocate for meaningful change for the skin disease community.

We’re here to:
• Meet with congressional leaders
• Rally on Capitol Hill
• Push for real solutions for patients and families

Our goals:
• Urge Congress to pass the and
• Call for robust to support life saving skin disease research
• Encourage Members of Congress to join the Congressional Skin Disease Caucus to
address the growing health, economic and social burdens of dermatologic conditions

Join us by taking action: https://skincoalition.org/take-action/ #/

05/14/2026

This is the event we have long been waiting for....A gathering of TSW thought leaders, clinicians, researchers, and those who have been fighting for their (or their loved one's) recovery.

If you haven't secured your ticket for the TSW Summit yet, now's the time! There is limited space, so we encourage you to book your tickets early to ensure we are not sold out.

We understand that going through TSW can make traveling away from home tricky and you may feel hesitant to commit (we've been there). Rest assured that we understand and are doing everything we can to make the event as TSW friendly and comfortable as possible for you! And if your skin takes a turn (as we know it can in this roller-coaster of TSW), we are happy to exchange an in-person ticket to a virtual one and refund you the difference. ❤

Book tickets by clicking here: https://www.itsan.org/tsw-summit-event/

Also, we do have a number of scholarships available to help cover ticket price. Priority is given to:
• Those facing financial hardship
• People experiencing TSW or eczema and their caregivers

If this would make attending possible for you, we encourage you to apply!

Apply by clicking here: https://form.jotform.com/261167225022043

Deadline is extended to: May 25, 2026, with awardees notified by June 1st.

05/13/2026

TSW can affect so much more than just the skin — especially during the teen years. ❤️‍🩹

Join us for a special live conversation led by Reva Vaddi, a TSW teen advocate, sharing the real mental and emotional challenges of navigating Topical Steroid Withdrawal. Together, we’ll discuss the realities many young people face during TSW, including anxiety, isolation, self-image, friendships, school, and finding hope during the healing process.

Our goal is to create a supportive and honest conversation where teens and families feel understood, encouraged, and connected to others who truly “get it.”

Reva is a 17-year-old junior at Weston High School in Massachusetts. Outside of school, she has a passion for dance and singing, and dedicates her free time to volunteering at local healthcare facilities. Reva is also a dedicated advocate for awareness of Topical Steroid Withdrawal (TSW). Having experienced TSW firsthand, she is committed to sharing her story to support others navigating the same journey and to ensure that patients feel seen and heard.

🗓 May 23, 2026
⏰ 2:00 pm EST
📍 Live Webinar
🎟 Register: https://us06web.zoom.us/webinar/register/WN_RJe8Lsf9SJq4jfIDDUI6DQ

Please share with teens, parents, caregivers, and anyone impacted by TSW.

05/12/2026

Hey ITSAN community!

Next week we’re heading to Capitol Hill next week to advocate for:

• Robust NIH and NIAMS FY27 funding
• Support for the Safe Step Act (S. 2903/H.R. 5509) and HELP Copays Act (S.864/H.R. 6423)
• Signing on as a member of the Congressional Skin Disease Caucus.

Will you stand with us? Sharing your story could help tip the scales.

Join us by taking action: https://skincoalition.org/take-action/ #/

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North Palm Beach, FL

Website

http://itsan.org/

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