Sickle Cell Thalassemia Patients Network

Sickle Cell Thalassemia Patients Network Sickle Cell Thalassemia Patients Network (SCTPN) by adults living with sickle cell disease, thalassemia, and other hemoglobin disorders.

Sickle Cell Thalassemia Patients Network (SCTPN) was incorporated in 1992 as a volunteer, community-based organization (CBO). Their desire was tto serve the larger community by providing a face and a voice for these under represented health issues. SCTPN provides scholarships to young adults with SCD to assist them with college expenses. We also provide public education programs to help increase awareness and knowledge of hemoglobin disorders. We serve as advocates/liaisons for families and healthcare professionals at hospitals, throughout the New York Tri-State area, that provide comprehensive care for sickle cell disease and coordinate referrals to needed services. SCTPN is committed to helping diminish the negative social, psychological, and economic impact of these debilitative disorders on our community.

October is Breast Cancer Awareness Month! This ia a time to raise awareness about early detection, screenings, and the i...
10/10/2026

October is Breast Cancer Awareness Month! This ia a time to raise awareness about early detection, screenings, and the importance of breast health. Advances in care continue to improve outcomes, but disparities remain. Black women are 40% more likely to die from breast cancer. Access to timely screening and treatment remains critical.
This October, let's encourage awareness, support those impacted by breast cancer, and empower our communities to prioritize their health.

SC Thal Patients — Yesterday, Tuesday, September 30, the Brooklyn Borough President’s Office and the SCTPN Executive Tea...
09/30/2026

SC Thal Patients — Yesterday, Tuesday, September 30, the Brooklyn Borough President’s Office and the SCTPN Executive Team held a meeting at Borough Hall to discuss support, access to resources, education, and awareness around maternal health, sickle cell disease, and thalassemia in Brooklyn, New York City, and beyond.

Representing the Brooklyn Borough President’s Office - Antonio Reynoso were Deputy Brooklyn Borough President Kim Council, Chief of Staff Laura Imperiale, and several other members of the team. Representing SCTPN were President Dr. Ginger Davis and Vice President Mr. Joel Desouve, MPA.

The meeting was engaging and productive. Both teams discussed the critical need for greater resources, education, public policy, and community awareness around sickle cell disease, thalassemia, and maternal health. There was a shared understanding of the importance of these issues and a commitment to exploring ways to work together to improve outcomes for communities in Brooklyn, New York City, and beyond.

This meeting marks the beginning of what we believe will be a fruitful and ongoing partnership. More activities and opportunities for collaboration will follow as a result of this important conversation.

Please stay tuned — and stay engaged! 👏🏾

The SCTPN team and the entire community impacted by sickle cell disease, thalassemia, and other blood disorders are grateful to the Brooklyn Borough President’s Office for its leadership and attention to issues related to maternal health. We also appreciate the professionalism and dedication of the entire team that helped make this meeting possible and ensured that it ran smoothly.

❤️

SC Thal Patients — Last Thursday, September 24, 2026, our President, Dr. Davis, participated in “Closing the Gap: A Conv...
09/27/2026

SC Thal Patients — Last Thursday, September 24, 2026, our President, Dr. Davis, participated in “Closing the Gap: A Conversation Addressing Equity, Access, and Collective Action in Sickle Cell Disease — From ER to Transformative Care,” a networking and panel discussion hosted by Bridging Healthcare Communities.

Several healthcare professionals and representatives from the NYC Health Department were in attendance.

Our President had the opportunity to discuss several of the challenges facing Sickle Cell Warriors in New York City and across the state. She also shared personal experiences and perspectives that helped bring greater awareness to the realities of living with sickle cell disease.

At the conclusion of the event, she took time to connect with and speak with other professionals who are passionate about sickle cell disease, research, healthcare, and advancing better outcomes for the sickle cell community.

The campaign for greater awareness, education, advocacy, and access to quality care continues.

We encourage you to get involved in what is happening in your community, reach out to your elected officials, advocate for change, and stay engaged. Your voice matters.

The SCTPN President and team are doing our part. Now, continue to do your part.

Tell a friend. Involve a colleague. Get engaged. Get informed. Advocate for the sickle cell community.

SC Thal Patients — Important Announcement!!! The fundraising effort continues… Fundraise too!! Although the walk is over...
09/27/2026

SC Thal Patients — Important Announcement!!!

The fundraising effort continues… Fundraise too!!

Although the walk is over, the fundraising campaign to raise $25,000 will continue until October 31. Funds raised will support academic/vocational scholarships, family support, and public outreach and education services.

We thank all of the participants who shared the day with us for adding to the joy of the day, and your contributions towards this year’s fundraising goal,” said Joel Desouve, Vice President of SCTPN..

Fundraise! Click on the link in our bio and start your fundraising campaign now!!

SC Thal Patients — A snapshot of our 28th Annual Sickle Cell Walk in Central Park last Saturday, Sept 19, 2026.HUGE THAN...
09/27/2026

SC Thal Patients — A snapshot of our 28th Annual Sickle Cell Walk in Central Park last Saturday, Sept 19, 2026.

HUGE THANKS to everyone who showed up last Saturday, in Central Park and made the 28th Annual SCTPNWalk for Sickle Cell Disease Education & Awareness a great success!

Saturday, September 19, 2026, at Central Park in Manhattan, NYC community-based organizations (CBO) - Amina K. Sickle Cell Support Circle of Harlem (Amina K.), SCTPN Manhattan Chapter, Candice’s Sickle Cell Fund (CSCF), Bronx, Sickle Cell Awareness Foundation Corp International (SCAFCI), Queens, and Sickle Cell Empowerment Initiative (SXEI), Brooklyn, joined Sickle Cell/Thalassemia Patients Networks (SCTPN), in a day of .

Please stay in touch for our upcoming events. Follow us on all the social media platforms. And sign up for our newsletter. Go to our SCTPN website.

So glad to kick off the SCTPN Annual Central Park Walk! 🖤🌿✨️ Our first registrants brought beautiful weather with them! ...
09/19/2026

So glad to kick off the SCTPN Annual Central Park Walk! 🖤🌿✨️ Our first registrants brought beautiful weather with them! 💪🩸✨️

🎉 TGIF! We’re ONE DAY AWAY! ❤️Friday is here, which means we are officially ONE (1) DAY away from our Annual Sickle Cell...
09/18/2026

🎉 TGIF! We’re ONE DAY AWAY! ❤️
Friday is here, which means we are officially ONE (1) DAY away from our Annual Sickle Cell Awareness & Education Fundraising Walk!
📅 Tomorrow — Saturday, September 19
⏰ 9:00 AM
📍 Central Park

Come out and walk with us for awareness, education, community, and a cause that matters! Every step we take helps shine a light on sickle cell disease and supports efforts to educate, empower, and make a difference in the lives of those affected.

❤️ Sickle cell warriors, families, friends, supporters, and the entire SCTPN team will be there—and we’re waiting for YOU!

Whether you’re walking, fundraising, donating, or simply showing your support, your presence matters. Together, we can raise awareness, build community, and make an impact—one step at a time!

📲 Need directions or additional details? Send us a DM right here on Instagram. We’re happy to help!

Lace up, bring your family and friends, and COME WALK WITH US! ❤️

SC Thal Patients — Hello, Amazing SCTPN Community! ❤️Quick quiz for you all—let’s hear those “YAYs!” 🙌🏾🎉How many of you ...
09/17/2026

SC Thal Patients — Hello, Amazing SCTPN Community! ❤️
Quick quiz for you all—let’s hear those “YAYs!” 🙌🏾🎉

How many of you are excited to join the SCTPN team, alongside sickle cell warriors, their parents and families, colleagues, elected officials, communication leaders, and advocates, as we walk together in Central Park this Saturday, September 19, at 9:00 AM?

YES?! 🙌🏾❤️

September is Sickle Cell Awareness Month—a time to shine an even brighter light on the lives, strength, resilience, and everyday experiences of people living with sickle cell disease and their families.

Every single day, CBOs, sickle cell warriors and their loved ones work hard to live fulfilling lives while advocating for greater awareness, resources, support, education, and understanding. That work takes commitment, compassion, professionalism, patience, and a whole lot of heart. ❤️

So this Saturday, come show them the love and support you’ve shown for years! Let’s stand together, walk together, and make our voices heard. Let’s walk for sickle cell awareness and education!

❤️ Let’s walk for families.
❤️ Let’s walk for hope, understanding, and support.
❤️ Let’s walk together as a community!

Tell a friend. Bring a colleague. Bring your family. Bring your YAY! 🎉🙌🏾

We can’t wait to see you there! ❤️

SickleCellCommunity SCTPN WalkForAwareness

SC Thal Patients — On Thursday, September 10, our President, Dr. Teresa Ginger Davis, had the honor and privilege of ser...
09/17/2026

SC Thal Patients — On Thursday, September 10, our President, Dr. Teresa Ginger Davis, had the honor and privilege of serving as a panelist at the Sickle Cell Disease Symposium held at the Schwartz Lecture Hall E. at NYU.

Her panel, titled Nutrition, Inflammation, and Energy Balance,” brought together medical and nutrition professionals for an important conversation surrounding sickle cell disease and thalassemia. Drawing from years of firsthand experience, academic study, research, and the stories of countless individuals living with these conditions, Dr. Davis shared valuable insights and raised important concerns that deserve to be heard.

We are happy to share a few short videos from this impactful and well-organized symposium.

We would also like to extend our sincere congratulations to the organizers, panelists, speakers, and all participants for a successful and meaningful event. Thank you for creating a space for education, awareness, dialogue, and collaboration.

Please enjoy the videos, and reach out to us with any questions or for more information. We look forward to continuing the conversation and supporting greater awareness around sickle cell disease and thalassemia.

All Sickle Cell Community-Based Organizations (CBO), were founded by parent/caregivers or individuals living with sickle...
09/14/2026

All Sickle Cell Community-Based Organizations (CBO), were founded by parent/caregivers or individuals living with sickle cell disease. Raising to fulfill the needs of the community and give sickle cell trait and disease a stronger voice.

The relationship between the community and CBOs need to be symbiotic.

Support your local sickle cell CBO
Raising Hope International Friends - RHIF

Address

1139 Saint Johns Place
New York, NY
11213

Opening Hours

Monday 11am - 11pm
Tuesday 11am - 11pm
Wednesday 10am - 11pm
Thursday 10am - 11pm
Friday 10am - 11pm

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