10/15/2026
Back to the start...
I realized I never explained how Dylan ended up at the children's hospital to start with. Dylan was spending the night with Johnny and Casey. Johnny called me the next morning because Dylan was complaining his chest hurt. I was working so I had Gary go pick him up and bring him to my work. One of the nurses listened to his lungs and didnt really hear anything concerning. But he was hurting so I figured we better get it checked. It was labor day so the pediatrician office was closed. We had to take him to the ER. They did a chest x-ray and said they did not see anything concerning but he did have some fluid in the plural space around the lung. They gave him an antibiotic and sent us on our way. Wish I knew then what I know now. We would have never left without a CT scan. My boss, who was a nurse was concerned about the fluid especially for a 14 year old. A week went by and Dylan was almost done with the antibiotic. He was still having chest pains. So I called the pediatrician and made an appointment. We saw Dr. Mangun (love her) she was our regular doctor. She wanted to do her own x-ray. She had me come in the hall and she had the x-ray hanging up. She pointed out this big dark shadow. She said we need to get a CT scan today. We went straight to the hospital and had it done. It was late in the day so Dr. Mangun called me the next morning. She started telling me there was a mass in his chest and we had to go to the children's hospital today, they are expecting us. I just faded away as she was talking and my worst fears were coming true. I just started crying, I could not even hold it together to talk to her. I was so scared. I left work and called Gary right away. I then had to go pick Dylan up from school. We went home and got a bag together for the night and off to Greenville we went. Dylan was a direct admit to the children's hospital. They started blood work and a CT scan. My entire family and alot of Dylan friends and our friends flooded the hospital that same night we arrived. We were so thankful for all the support. The second day in the hospital they came in to explain what was going on. That is when we met Dr. Fuh. (love him) He had an entire team with him. I was sitting on the side of Dylans bed and Gary on the other. Some of our family was in the room. They rolled a monitor in the room and he started talking. He was showing us the CT of Dylans chest. He started pointing out all the nodules that shouldn't be there. My heart was coming out of my chest, I felt sick. I said I think I need an Ativan. It was like having an out of body experience listening to what he was saying. Thinking there is no way this is my child's body. I was so terrified but I immediately got this overwhelming feeling to be strong and don't scare Dylan, protect Gary and Brandon's heart. I don't want any of them be scared and hurt. Dr. Fuh and Dr. Walsh came up with a plan for surgery the next day. That started this 5 year journey.