Epilepsy Awareness of America

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Epilepsy Awareness of America

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Epilepsy Awareness of America is a non-profit organization that was established to conduct a yearly walk to help bring knowledge and awareness about the way epilepsy affects the person and we are looking to raise funds to help families pay for surgery.

10/29/2026

Have a seizure free day!

10/29/2026

The ad for The Advocate/Times Picayune:

10/29/2026

Please read. Do not stop taking your meds. Work with your doctor on making changes.

https://www.facebook.com/share/p/1EFzFxxEex/

Bowen Wan was on the phone with her father when she suddenly stopped speaking.

10/26/2026

See Where Y'At Ad!!!

Please forward to anyone you know.

If then can not make the walk, they can donate!

https://epilepsyaa.org/support-us/

10/25/2026

Just finished putting up the rest of the signs for the walk! Yeah!

But then I got upset because another walk is the same day in a a different but close park. I checked the website and it has already raised $31,000 dollars. I just don't understand why epilepsy just seems to be set aside but is probably because it is an invisible disability.
But EPILEPSY CAN KILL YOU.
In March of this year, a little child passed away from epilepsy. The pain is bad. I sometimes wonder why I was lucky. My seizures are focal so I just stare off. But it zips my memory. I do not remember my kids growing up. After 2 brain surgeries, I still have seizures but they are rare but still working on seizure freedom.

I am sorry to tell bad news and/or complain but I am truly trying to get awareness out.
EPILEPSY AWARENESS IS NEEDED!!

10/25/2026

Trying to get all the signs out for announcement of the Epilepsy Awareness Walk. Tired.
Then going out of town for a Halloween Wedding. Coming back and then the walk!

10/23/2026

I had a seizure last night. I was tired and out putting signs for the walk. All I had was a staring spell, I knew everything going on around me and of course, my brain was saying to me to stop staring, which I did. I believe that is why a lot of individuals get missed as having epilepsy.

What does a seizure look like?
Everybody recognizes convulsions but the more subtle signs of seizures a person has, the longer it takes for them to be diagnosed. Seizure symptoms include:
1. Strange uncontrollable muscle movements;
2. Staring spells;
3. Drooling or foaming at the mouth;
4. Teeth or jaw clenching;
5. Loss of bladder or bowel control;
6. Trouble with speaking or understanding;
7. Experiencing strange smells, sounds, feelings, tastes, or visual images; and
8. Uncontrolled repetitive movements such as chewing, walking or fidgeting.

I am fine. A little depressed after all I have done to stop having seizures but I am a fighter!

People with epilepsy are fighters!

10/22/2026

Ok, what do we talk about today?

Sudep Action Day was yesterday, October 21st. SUDEP is sudden unexplained death in epilepsy.

Famous individuals who passed away from SUDEP:

Florence Griffith-Joyner (Flo Jo). She had 3 gold medals and 1 silver medal in the Olympics. Her cause of death was an epileptic seizure that led to suffocation; and
Cameron Boyce. His death was due to an epileptic seizure in his sleep. He had been previously diagnosed with epilepsy.

ANYONE diagnosed with epilepsy can die SUDEP.

10/20/2026

My Independence Back vs. Memory

I lived with epilepsy and experienced five or six focal seizures every day. It affected not only me, but my entire family.

I had my first surgery on my left temporal lobe to help control the seizures, and afterward, the daily seizures stopped. That made a tremendous difference in my life.
But your left temporal lobe is where the short term memory is. I do not remember my kids growing up because of epilepsy. That truly hurts.

I still had seizures from the right side of the brain not nearly as often but it was a stronger seizure where I needed to take a 2 to 3 hour nap afterwards. But then I could get up and go.

So, I said yes for surgery number 2. I have the RNS device in my brain.

My surgeries also made a difference in my children's lives.

They no longer have to worry so much about their mom.
I received so much independence.

My journey also includes challenges with memory.

Sometimes I work too quickly because I worry I'll forget what I need to do. And I do not want people to think I am unreliable or stupid.

My story shows that epilepsy affects more than seizures. It touches the whole family, independence, peace of mind, and everyday life.

I always tell me kids to tell Dad because I know I will probably forget. So even after my quality of life has improved my kids can not depend on me for remembering anything so it literally takes me out of their lives even if I see them everyday.

I'm grateful that my surgeries lowered my chance of having a seizure and gave me a better quality of life.

I share my story because epilepsy awareness matters. People need to understand that epilepsy is more than seizures. It's about people, families, independence, and the chance to live a fuller life.

That is why Epilepsy Awareness of America was started. After the walk people get time to talk and know that they are not ALONE.

10/20/2026

💜 Epilepsy Can Take Away Your Independence

Epilepsy can affect so many parts of a person's life. For some, it means giving up driving, depending on others for transportation, needing help with everyday activities, or worrying about when the next seizure might happen.

Losing some independence can be frustrating, painful, and emotionally exhausting. You may feel that you have lost control over parts of your own life.

But having epilepsy does not mean losing your worth, your voice, or your ability to live a meaningful life.

People living with epilepsy deserve understanding, respect, opportunities, and support—not judgment.

💜 Epilepsy Awareness of America wants people to understand that epilepsy affects more than the brain. It can affect freedom, family life, relationships, and independence.

Let's raise awareness. Let's listen to those living with epilepsy. And let's remind them that they are not alone.

Epilepsy deserves to be understood.

Address

Metairie, LA
70003

Telephone

+15042361889

Website

http://www.epilepsyaa.org/

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