Alström Angels

Alström Angels www.alstromangels.org It is one of the most brutal diseases there is, as it touches every organ in the body.

Alström Syndrome is a very rare genetic disease that affects children by causing complete blindness, deafness, type 2 diabetes, dilated cardiomyopathy, congestive heart failure, COPD, and kidney and liver failure. Most children are lost in their late teens and early twenties due to these medical complications. Symptoms of Alström Syndrome:
Nystagmus (wobbly eyes) and photophobia (light sensitivit

y) in early infancy
Progressive vision loss, eventually leading to blindness
Childhood obesity, often moderating in early adulthood
Mild to moderate bilateral sensorineural hearing loss (Frequent glue ear and ear infections in childhood)
Normal intelligence—delayed developmental milestones in some
Normal height in childhood, but early growth cessation results in short adult stature
High levels of insulin in the blood (hyperinsulinemia) and insulin resistance
Type 2 diabetes mellitus, usually developing in early adulthood
Progressive, chronic kidney insufficiency
Congestive heart failure secondary to dilated cardiomyopathy occurring in infancy, adolescence, and/or adulthood
Fatty liver, elevation of liver enzymes, or liver dysfunction
Elevated amounts of protein in the urine
High cholesterol / high triglycerides
Hypothyroidism
Acanthosis nigricans (dark, leathery patches of the skin probably due to insulin resistance)
Small genitalia in males; female hormonal irregularities
Frequent urinary tract infections (UTI) or other urological problems
Frequent pulmonary infections, asthma or chronic obstructive pulmonary disease (COPD)
Learning difficulties, possibly due to vision and hearing loss
Scoliosis or kyphosis (curvature of the spine)
Dental abnormalities (extra or missing teeth, gap between front teeth)
Absence seizures (episodes of ―zoning out)

We couldn’t do this without YOU 💫 Every like, share, and donation helps fuel our mission, and we’re so grateful for your...
06/15/2026

We couldn’t do this without YOU 💫 Every like, share, and donation helps fuel our mission, and we’re so grateful for your support 🪽

Your generosity makes a difference 💫 Every donation helps advance research and bring hope to our Angels. Give today: htt...
06/11/2026

Your generosity makes a difference 💫 Every donation helps advance research and bring hope to our Angels. Give today: https://alstromangels.com/

Every Angel deserves to be celebrated! 🪽 Nominate your child for Angel of the Month by sharing their name, age, and hobb...
06/08/2026

Every Angel deserves to be celebrated! 🪽 Nominate your child for Angel of the Month by sharing their name, age, and hobbies in the comments or send us a message. We can’t wait to celebrate them! 🫶

Together, we can fuel the fight for a cure. 💪😇 Make a difference by becoming a Guardian Angel for just $25 a month! 💙 ht...
06/06/2026

Together, we can fuel the fight for a cure. 💪😇 Make a difference by becoming a Guardian Angel for just $25 a month! 💙 https://f.mtr.cool/namhtwlkuf

Make your special day mean even more 🎈🌟 Create a Facebook fundraiser for Alström Angels and help fuel research that chan...
06/04/2026

Make your special day mean even more 🎈🌟 Create a Facebook fundraiser for Alström Angels and help fuel research that changes lives. 🫶 Start here: https://f.mtr.cool/cjojlzoypt

Help us celebrate your Angel! 🥳💙 Share a photo along with their name, age, and favorite hobbies in the comments (or send...
05/11/2026

Help us celebrate your Angel! 🥳💙 Share a photo along with their name, age, and favorite hobbies in the comments (or send us a message) to nominate them for Angel of the Month. 🌟

Address

6305 Marsha Sharp Freeway W
Lubbock, TX
79407

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm
Saturday 9am - 12pm
Sunday 9am - 4pm

Telephone

+18067015290

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