Cystic Fibrosis Foundation - New Jersey Chapter

Cystic Fibrosis Foundation - New Jersey Chapter We're helping to advance the Cystic Fibrosis Foundation’s mission to cure cystic fibrosis.

About CF:
Cystic fibrosis is a life-threatening genetic disease that affects the lungs and digestive system of approximately 30,000 children and adults in the United States. More than 10 million Americans are unknowing, symptomless carriers of a defective CF gene.

We are proud to introduce Kacy Catanzaro as the emcee for Sports Challenge 2026. As an American Ninja Warrior and former...
07/11/2026

We are proud to introduce Kacy Catanzaro as the emcee for Sports Challenge 2026.

As an American Ninja Warrior and former WWE Superstar, Kacy knows what it means to push limits, inspire others, and bring excitement to every challenge. Her energy is sure to keep the crowd engaged and motivated all day long.

Don't miss this event on Saturday, Oct. 24! To learn more about Sports Challenge, visit: https://fundraise.cff.org/sportschallenge

All experience levels are welcome to join our next training hike on July 20 at the Eagle Rock Red Trail Loop. Registrati...
07/10/2026

All experience levels are welcome to join our next training hike on July 20 at the Eagle Rock Red Trail Loop. Registration is required at least 24 hours in advance to attend - you do not need to be registered for our Xtreme Hike program to participate in this training hike.

We hope to see you on the trail! Sign up today: https://afasignup.formstack.com/forms/xtreme_hike_2026

If you have any questions, please contact Kelly at [email protected].

Curious about the latest research on infections in cystic fibrosis? Join us Monday, July 27 at 7 p.m. ET for a live web...
07/10/2026

Curious about the latest research on infections in cystic fibrosis?

Join us Monday, July 27 at 7 p.m. ET for a live webinar exploring updates on phage therapy, strategies to tackle difficult-to-treat bacteria, and new tools to detect and diagnose infections.

Can’t attend live? Register to receive the recording.
Save your seat: https://bit.ly/4pneOsP

Heather Gialanella is a 53-year-old mother of three from New Jersey living with Cystic Fibrosis, and she is looking forw...
07/07/2026

Heather Gialanella is a 53-year-old mother of three from New Jersey living with Cystic Fibrosis, and she is looking forward to conquering another Xtreme Hike.

Heather was the Ambassador of the 2017 Xtreme Hike in Harriman, NY, and managed to complete the 21-mile hike with 48% lung function before Trikafta was approved.

Heather is always determined and inspired to challenge herself to complete these huge tasks because she can’t ever accept that CF could stop her. The pressure she's put on herself through the years, working out, hiking, and staying active while struggling to breathe, has always led her to stay on top, and that’s where she's going to stay in the 2026 Xtreme Hike!

Join her and register for XTreme Hike: https://fundraise.cff.org/njxtremehike

Calling all undergraduate, graduate, and medical students! The CF Foundation College Program presented by Tomorrow's Lea...
07/06/2026

Calling all undergraduate, graduate, and medical students!

The CF Foundation College Program presented by Tomorrow's Leaders brings together students from across the country Aug. 3-7 for a free, virtual experience focused on leadership, professional development, and the cystic fibrosis community.

Participants will explore topics like data-driven storytelling, generative AI, and how science, policy, and advocacy work together to help those with CF — all while connecting with researchers, community members, and leaders in the cystic fibrosis space.

Register today: https://on.cff.org/4y6lLCD

Cystic fibrosis has never defined Nicole; it has challenged her to push harder and live stronger. From being a multi-spo...
07/02/2026

Cystic fibrosis has never defined Nicole; it has challenged her to push harder and live stronger. From being a multi-sport athlete and competitive softball player to running a marathon and staying active every day at 44, Nicole has always believed that movement is one reason her lungs remain as strong as they are. Although CF is an invisible disease and most people never see the daily battle behind her smile, that reality motivates her to keep fighting. She stays strong for more time with her husband, children, family, and friends, and she keeps moving because every day is a gift Nicole refuses to take for granted.

Show your support of the CF community by participating in our upcoming Sports Challenge at MetLife Stadium on Saturday, October 24! Register today: https://fundraise.cff.org/sportschallenge

Missed our first training hike? There's still time to join us!Get ready for our second training hike on Monday, July 20 ...
06/30/2026

Missed our first training hike? There's still time to join us!

Get ready for our second training hike on Monday, July 20 at Eagle Rock Red Trail Loop in West Orange, NJ. You do not need to be registered for the Xtreme Hike in order to participate in the training hike.

Registration is required at least 24 hours before the hike, so be sure to click the link below and sign up today: https://afasignup.formstack.com/forms/xtreme_hike_2026

If you have any questions, please contact Kelly at [email protected]

All experience levels are welcome to join our first training hike on Monday, June 29 at the Stairway to Heaven Trail. R...
06/26/2026

All experience levels are welcome to join our first training hike on Monday, June 29 at the Stairway to Heaven Trail. Registration is required at least 24 hours in advance to attend - you do not need to be registered for our Xtreme Hike program to participate in this training hike.

We hope to see you on the trail! Register today: https://afasignup.formstack.com/forms/xtreme_hike_2026

If you have any questions, please contact Kelly at [email protected].

Research funded by the National Institutes of Health (NIH) has driven decades of progress in cystic fibrosis. It led to ...
06/25/2026

Research funded by the National Institutes of Health (NIH) has driven decades of progress in cystic fibrosis. It led to the discovery of the CFTR gene and deepened our understanding of the disease, laying the foundation for today’s treatments and future therapies in development. Despite this progress, significant unmet needs remain. There is still no cure, and many people with CF cannot benefit from existing therapies.

Today, teens from across the country are advocating on Capitol Hill and online for the Foundation’s 18th annual Teen Advocacy Day. They are sharing their personal stories and asking members of Congress to increase funding for the NIH to sustain a robust research pipeline, support innovation, and accelerate progress toward treatments for every person with CF and, ultimately, a cure.

Help amplify their voices. Urge your members of Congress to increase NIH funding: https://act.cff.org/campaign/increasefundingNIH/

Meet one of our Xtreme Hike trail guides!
06/23/2026

Meet one of our Xtreme Hike trail guides!

Address

290 W. Mt. Pleasant Avenue, Suite 2240
Livingston, NJ
07039

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+19736569200

Website

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