08/28/2026
If the future of healthcare is being shaped in the room, the rare disease community deserves to be in that room.
Over the past two days, Beth Nguyen and Trena Myers have proudly represented Rare STRIDES and Rare Wish at the Georgia Life Sciences Summit, beginning with the awards ceremony and continuing through a full day of conversations, learning, connection, and collaboration.
But we weren’t there simply to network.
We were there because the voices of people living with rare diseases belong in conversations about the future of healthcare.
We were there to listen, to learn, to build relationships, and to make sure RARE is remembered when innovation moves from an idea to action.
Because sometimes change begins with one conversation.
One introduction can open a door.
One conversation can spark an idea.
One connection can become a collaboration.
And one collaboration can ultimately change a life.
That is why showing up in these rooms matters.
Beth and Trena spent these two days connecting with leaders across healthcare, research, biotechnology, life sciences, and innovation while sharing the missions behind Rare STRIDES and Rare Wish.
And a special thank you to Maria at Georgia Life Sciences for her support. Having people who recognize the importance of including rare disease voices in these spaces matters more than they may ever realize. We are incredibly grateful for the welcome, encouragement, and support.
We left these two days with new connections, new possibilities, and an even stronger commitment to ensuring the rare disease community is seen, heard, represented, and included.
🦓 We don’t just want people to know rare disease exists. We want them to remember the people behind it.
That’s how we .
