Rare Wish

Rare Wish Rare Wish is a nonprofit with the mission to grant wishes to people with rare diseases.

04/24/2026

Millions are suffering from conditions that don’t show up on standard tests — and insurance companies are deciding what care they deserve.
We’re grateful when those in power use their voice for the chronically invisible.
This is why Rare Wish exists. 🤍

04/08/2026

Dr. Tammy Smith, an autoimmune neurologist from the University of Utah, will discuss how autoimmunity can affect the brain in a primary immunodeficiency diagnosis.

Another rare queen gone way too soon! 🙏🫶👑🦓
04/06/2026

Another rare queen gone way too soon! 🙏🫶👑🦓

03/21/2026

Sunny was so excited to meet Tiny Miss Colorado! Nya was so excited to meet Sunny!

This little Zebra Queen is making rare visible with me! It was such a great honor to meet Nya. 🫶🦓👑
03/21/2026

This little Zebra Queen is making rare visible with me! It was such a great honor to meet Nya. 🫶🦓👑

03/16/2026

It's still Rare Disease Day in my house!!

02/28/2026

1 in 10 Americans live with a rare disease — yet 95% have no approved treatment. Today, we showed up to change that. 🖤🦓 show your support, show us your stripes!

02/18/2026

EveryLife Foundation for Rare Diseases

Love comes in many forms…It’s the hug from a hospital bed.The courage in a diagnosis.The strength of a family that refus...
02/14/2026

Love comes in many forms…
It’s the hug from a hospital bed.
The courage in a diagnosis.
The strength of a family that refuses to give up.

This Valentine’s Day, we’re celebrating the bravest hearts we know — our rare warriors. 💙

Through the mission of Rare Wish and the innovation of Rare STRIDES, we continue to make rare visible, fund life-changing wishes, and create pathways to hope, healing, and community.

And of course… delivering love one hug at a time is our favorite ambassador — 🧸 Sunny the Rare Bear.

Because every rare patient deserves to feel seen, supported, and deeply loved.

💙 Happy Valentine’s Day from all of us at Rare Wish & Rare STRIDES

Address

1461 Valley Trail Way
Lawrenceville, GA
30043

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