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Scarring Alopecia Foundation - SAF

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Scarring Alopecia Foundation - SAF

Scarring Alopecia Foundation (SAF) is a nonprofit public charity organization for scarring alopecia!

The Scarring Alopecia Foundation (SAF) was formed as a result of one person's experience with scarring alopecia (cicatricial means scarring). When the patient realized that little is known about such disorders, she decided, with the help of her doctor, to initiate a grassroots effort to raise funds to study these problems. When you join SAF you'll be able to access our physician referral list, join local support groups, receive newsletters, be notified about upcoming patient-doctor conferences and other pertinent information.

09/29/2026

Special Launch Announcement 🚨 A member of our SAF community — Mary Geter, founder of Beyond the Hairline — has developed an app to help people track and understand their hair-loss journey.

Beyond the Hairline is an education-first platform on a mission to get scarring alopecia noticed sooner — before more is lost.

Founded by Mary Geter, it trains the people closest to the scalp — cosmetologists, barbers, and instructors — and gives people simple tools to notice changes, keep a record, and bring them to a dermatologist early.

Beyond the Hairline is an education and awareness platform. It does not diagnose, treat, or provide medical advice. The apps are record-keeping and tracking tools only. Always consult a board-certified dermatologist about any scalp or hair concern.

Details and the download link will follow in our monthly Buzz - sign up today to get more information on BTH and all things SAF.

Learn the signs, keep a record, protect what’s left.

09/21/2026

Thank you for joining us for The Future of Scarring Alopecia! 💙

We’re incredibly grateful to our speakers, attendees, and supporters who made this event possible. Your thoughtful questions, participation, and continued commitment help move scarring alopecia awareness, education, and research forward.

🎥 Missed the event or want to watch it again? The event recording will be shared by the end of this week, so stay tuned!

Thank you for being part of the Scarring Alopecia Foundation community. 💙

09/19/2026

It's happening TODAY! 🔬✨

Where is scarring alopecia research taking us? Join the Scarring Alopecia Foundation for The Future of Scarring Alopecia, a virtual event featuring expert insights into the latest research, what we’re learning, and what’s ahead for the scarring alopecia community.

📅 Today, September 19
⏰ 12–4 PM ET
💻 Virtual Event

There’s still time to join us! Visit scarringalopecia.org for details.

09/18/2026

Join the Scarring Alopecia Foundation for The Future of Scarring Alopecia, featuring leading experts in scarring alopecia research, treatment, and patient care.

We’re excited to welcome Jeff Donovan, MD, PhD, SAF Board Member, dermatologist and hair specialist, for his featured presentation, “History Is Our Best Teacher.”

📅 September 19, 2026
⏰ 12–4 PM ET
💻 Virtual Event

There’s still time to register at scarringalopecia.org. We hope to see you there!

SAF AlopeciaResearch

09/17/2026

Speaker Spotlight 🔬✨

We’re honored to welcome Dr. Crystal Aguh, Director of the Ethnic Skin Program at Johns Hopkins Medicine, to The Future of Scarring Alopecia.

Dr. Aguh’s work focuses on scarring alopecia and other hair and skin conditions that disproportionately affect minority populations. During our virtual event, attendees will have the opportunity to hear her recorded presentation focused on Central Centrifugal Cicatricial Alopecia (CCCA) and the research helping move our understanding of scarring alopecia forward.

📅 September 19, 2026
⏰ 12–4 PM ET
💻 Virtual Event

Join SAF for an afternoon of education, research, and conversations about what’s next in scarring alopecia.

Register at scarringalopecia.org

09/15/2026

Research is shaping the future of scarring alopecia. 🔬💙

From improving early diagnosis to understanding genetic, immune, and environmental factors, ongoing research is helping us learn more about scarring alopecia—and explore new possibilities for treatment and care.

During National Scarring Alopecia Awareness Month, we’re highlighting the importance of continued research, collaboration, and advocacy. Every study brings us one step closer to better answers and better outcomes for those affected by scarring alopecia.

Learn more and get involved at scarringalopecia.org.

09/14/2026

The future of scarring alopecia starts with research, expertise, and conversation. 💙

We’re honored to welcome Dr. Amy McMichael, Professor of Dermatology at Wake Forest School of Medicine, to The Future of Scarring Alopecia.

Dr. McMichael is a past president of the Skin of Color Society, co-editor of Fitzpatrick’s Dermatology, and a leading expert in dermatology and hair and scalp disorders. She’ll join us for an expert presentation on CCCA genetics and what emerging research can tell us about the future of diagnosis, treatment, and care.

📅 September 19, 2026
⏰ 12–4 PM ET
💻 Virtual event

Register today at scarringalopecia.org.

09/11/2026

Speaker Spotlight: Kristen Lo Sicco, MD ✨

We’re excited to have Dr. Kristen Lo Sicco presenting at The Future of Scarring Alopecia virtual event!

Dr. Lo Sicco is Director of the Skin and Cancer Unit at NYU Langone Health, an Associate Professor of Dermatology at NYU, and a member of the Scarring Alopecia Foundation Board.

During the event, Dr. Lo Sicco will share her expertise on emerging treatments and the evolving landscape of scarring alopecia care - giving attendees an opportunity to hear directly from a leading expert in the field.

🗓️ Join us virtually to learn, connect, and explore what’s ahead for the scarring alopecia community.

Register today and reserve your spot!

09/09/2026

Early bird pricing ends TOMORROW! ⏰

Join the Scarring Alopecia Foundation for The Future of Scarring Alopecia, a virtual educational fundraising event bringing together leading physicians, researchers, and members of our community for an afternoon focused on what’s next in scarring alopecia research, treatment, and care.

📅 Saturday, September 19, 2026
⏰ 12:00–4:00 PM EDT
💻 Virtual — attend from anywhere!

Don’t miss your chance to save with early bird pricing. Register today and be part of the conversation shaping the future of scarring alopecia care. 💙

PatientEducation

09/08/2026

✨ Speaker Spotlight: Dr. Maryanne Senna ✨

We're excited to welcome Dr. Maryanne Senna as an speaker at The Future of Scarring Alopecia on September 19, 2026.

A leading expert in hair disorders and scarring alopecia, Dr. Senna has dedicated her career to advancing research, improving patient care, and expanding treatment options for individuals living with hair loss conditions. Her work continues to shape the future of the field and brings hope to patients around the world.

Join us for an afternoon of education, innovation, and hope as leading physicians and researchers explore what's next in scarring alopecia care.

📅 The Future of Scarring Alopecia  🗓️ September 19, 2026  ⏰ 12:00–4:00 PM EDT  💻 Virtual Event via Zoom

Register today and be part of the conversation shaping the future of scarring alopecia. Link in bio.

Address

1900 Hamilton Street , UNIT 503
Kulpsville, PA
19130

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+12676139811

Website

https://scarringalopecia.org/, https://linktr.ee/scarringalopeciafoundation

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