HAE International - HAEi

HAE International - HAEi HAE International (HAEi) is the global umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups. Founded 2004.

πŸ“£ News from Mediterranean, North Africa, Benelux, and British IslesHAEi's Regional Patient Advocate, Maria Ferron, repor...
06/14/2026

πŸ“£ News from Mediterranean, North Africa, Benelux, and British Isles

HAEi's Regional Patient Advocate, Maria Ferron, reports from her region, Mediterranean, North Africa, Benelux, and British Isles, in the latest edition of our Global Perspectives magazine 🌍 🌎 🌏

Read all about the activities and initiatives in Maria's region πŸ‘‰πŸ‘‰ https://buff.ly/QFvV5Zs

πŸ—žοΈ Want to read the entire magazine? Global Perspectives in a fully online format with translation options at your fingertips πŸ“± head over to the Global Perspectives online version πŸ‘‰πŸ‘‰ https://buff.ly/DoReZUV

❗RC Americas 2026 – abstract submission is open for two more weeks❗ Participants in the Scientific Track at the 2026 HAE...
06/12/2026

❗RC Americas 2026 – abstract submission is open for two more weeks❗

Participants in the Scientific Track at the 2026 HAEi Regional Conference Americas, 23-25 October, in Ottawa, Ontario, Canada, are invited to submit abstracts related to all aspects of HAE diagnosis and management. This includes diagnostic approaches, prodromal symptoms, screening, markers of HAE, treatment/management methods, the impact of HAE on the patient, HAE measurement tools, HAE care centers, multidisciplinary approaches, or patient registry/real-world data. Case report submissions are also welcome.

We ask you to share this news with healthcare professionals, physicians, and researchers in your country who may be interested in submitting their work to the conference. Young Researchers/Investigators may also be interested to know more about our Award: https://buff.ly/sqFwlSi

You can find and share the guidelines for submission specific to the 2026 HAEi Regional Conference Americas here πŸ‘‰πŸ‘‰ https://buff.ly/hCYqU0h

The abstract submission deadline is Friday 26 June, 23:00 (11:00 pm) CEST.

πŸ“£ News from South America and MexicoHAEi's Regional Patient Advocate, Fernanda De Oliveira Martins, reports from her reg...
06/11/2026

πŸ“£ News from South America and Mexico

HAEi's Regional Patient Advocate, Fernanda De Oliveira Martins, reports from her region, South America and Mexico, in the latest edition of our Global Perspectives magazine 🌍 🌎 🌏

Read all about the activities and initiatives in Fernanda's region πŸ‘‰πŸ‘‰ https://buff.ly/t781Lqp

πŸ—žοΈ Want to read the entire magazine? Global Perspectives in a fully online format with translation options at your fingertips πŸ“± head over to the Global Perspectives online version πŸ‘‰πŸ‘‰ https://buff.ly/DoReZUV

πŸ“£ News from South Eastern EuropeHAEi's Regional Patient Advocate, Natasa Angjeleska, reports from her region, South East...
06/10/2026

πŸ“£ News from South Eastern Europe

HAEi's Regional Patient Advocate, Natasa Angjeleska, reports from her region, South Eastern Europe, in the latest edition of our Global Perspectives magazine 🌍 🌎 🌏

Read all about the activities and initiatives in Natasa's region πŸ‘‰πŸ‘‰ https://buff.ly/C9lqmU0

πŸ—žοΈ Want to read the entire magazine? Global Perspectives in a fully online format with translation options at your fingertips πŸ“± head over to the Global Perspectives online version πŸ‘‰πŸ‘‰ https://buff.ly/DoReZUV

πŸ“£ News from Sub Sahara AfricaIn the latest edition of our Global Perspectives magazine, Patricia Karani, who is HAEi's R...
06/09/2026

πŸ“£ News from Sub Sahara Africa

In the latest edition of our Global Perspectives magazine, Patricia Karani, who is HAEi's Regional Patient Advocate for Sub Sahara Africa, reports from her region 🌍 🌎 🌏

Read all about the activities and initiatives in Patricia's region πŸ‘‰πŸ‘‰ https://buff.ly/vbsN3YV

πŸ—žοΈ Want to read the entire magazine? Global Perspectives in a fully online format with translation options at your fingertips πŸ“± head over to the Global Perspectives online version πŸ‘‰πŸ‘‰ https://buff.ly/DoReZUV

πŸ“£ News from Central Eastern Europe and the Middle EastIn the latest edition of our Global Perspectives magazine, Michal ...
06/08/2026

πŸ“£ News from Central Eastern Europe and the Middle East

In the latest edition of our Global Perspectives magazine, Michal Rutkowski, who is HAEi's Regional Patient Advocate for Central Eastern Europe and Middle East, reports from his region 🌍 🌎 🌏

Read all about the activities and initiatives in Michal's region πŸ‘‰πŸ‘‰https://buff.ly/W0x1lGF

πŸ—žοΈ Want to read the entire magazine? Global Perspectives in a fully online format with translation options at your fingertips πŸ“± head over to the Global Perspectives online version πŸ‘‰πŸ‘‰ https://buff.ly/DoReZUV

‼️ LAST CHANCE: Tomorrow it is too late ... ‼️ Today, 7 June, is the last chance to register activities for this year's ...
06/07/2026

‼️ LAST CHANCE: Tomorrow it is too late ... ‼️

Today, 7 June, is the last chance to register activities for this year's hae day:-) activity challenge, in which we were in purple. The challenge ended on 31 May, but you have until the end of today to submit any activities you completed during the challenge.

You can enter your activities in HAE Companion or on our πŸ‘‰πŸ‘‰ https://haeday.org/

Download HAE Companion from The App Store πŸ‘‰οΈπŸ‘‰οΈ https://buff.ly/i1Smi6H
Download HAE Companion from Google Play πŸ‘‰οΈπŸ‘‰οΈhttps://buff.ly/0RNkSyG

'Academic Event AMAEH' in Mexico πŸ‡²πŸ‡½ As a celebration of hae day:-), HAE Mexico – AMEAH – hosted an educational event for...
06/05/2026

'Academic Event AMAEH' in Mexico πŸ‡²πŸ‡½

As a celebration of hae day:-), HAE Mexico – AMEAH – hosted an educational event for healthcare professionals and people with HAE.

HAEi's regional patient advocate for the region, Fernanda de Oliveira Martins, gave a presentation about HAEi, our resources and tools for Member Organizations, and talked about the importance of patient groups and advocacy work for HAE in the country.

Find more information about HAE and our Member Countries on our website πŸ‘‰οΈπŸ‘‰οΈ https://haei.org/

New issue of Global Perspectives in the fully online format available now πŸ™ŒThe second 2026 edition of Global Perspective...
06/04/2026

New issue of Global Perspectives in the fully online format available now πŸ™Œ

The second 2026 edition of Global Perspectives is now available online, allowing you to translate all articles into your preferred language.

Read the latest news and hear from our global community – this issue includes:
βœ”οΈ News from HAEi’s Regional Advocacy team
βœ”οΈ News from HAEi countries around the globe
βœ”οΈ Special feature: Making a Difference: 2026 Global Angioedema Leadership Conference
βœ”οΈ LEAPing behind the scenes
βœ”οΈ New HAE Companion App
βœ”οΈ and much, much more …

Please share with anybody who would find the magazine interesting to read.

Head over to the magazine website and read this year's last edition of Global Perspectives πŸ‘‰πŸ‘‰ https://buff.ly/sTh3Tlx

Call for Abstracts is open for the 2026 HAEi Regional Conference Americas πŸ™Œ Continuing our successful regional conferenc...
06/03/2026

Call for Abstracts is open for the 2026 HAEi Regional Conference Americas πŸ™Œ

Continuing our successful regional conference program, we’re looking forward to hosting the next Americas regional conference – the 2026 HAEi Regional Conference Americas – in Ottawa, Ontario, Canada, from 23 to 25 October 2026.

This conference is for people living in the Americas region, North, Central, and South America, including people with HAE and their caregivers, youngsters, representatives from our Member Organizations, HAE healthcare professionals with an interest in HAE, and industry supporters.

All participants in the Scientific Track are invited to submit abstracts related to all aspects of HAE diagnosis and management. Case report submissions are also welcome. Additionally, we are hosting a Young Researcher/Investigator Award.

You can find and share the guidelines for submission specific to the 2026 HAEi Regional Conference Americas here πŸ‘‰πŸ‘‰ https://buff.ly/hCYqU0h

Please note, the abstract submission deadline is Friday 26 June, 23:00 (11:00 pm) CEST.

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