Hereditary Angioedema Association - HAEA

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Fairfax, VA
Hereditary Angioedema Association - HAEA

The US HAEA is a non-profit advocacy and research organization serving people with HAE.

To lead a nationwide advocacy movement that focuses on increasing HAE awareness and education, empowering access to suitable treatment, and fostering ground-breaking research that includes searching for a cure.

06/12/2026

Stay safe and travel with confidence this summer with HAE! ☀️✈️🎧

Tune in to this short HAE Speaks Podcast episode featuring HAEA Director of Health & Research Services, Troyce Venturella, and HAEA Health Services Manager, Mandy Granat, who shares helpful tips on summer safety and traveling with HAE.

From planning ahead, to being prepared for the unexpected, this episode offers practical guidance to support you all season long!

👉 Listen now: https://open.spotify.com/episode/50FjMi3jGUmbqiNDExSClH

06/11/2026

Join us for the 2026 Virtual HAEA Meet & Greet! 📅 June 25, 2026 | 7:00 PM ET / 4:00 PM PT

Whether you're new to the HAEA community or have been involved for years, this is a great opportunity to connect with HAEA staff, meet fellow community members, and learn more about the programs, resources, and support available to individuals and families affected by HAE.

We'll also hear from HAEA community member and caregiver, Carol G. 👏

Register for free today: https://fundraise.haea.org/event/haea-2026-virtual-meet-and-greet/e800333

06/10/2026

This year, we gathered at the 2026 HAEi Global Angioedema Leadership Conference in Madrid, Spain. 🇪🇸

It was a meaningful time of learning, growth, and connection as we came together to strengthen our efforts in serving and supporting the hereditary angioedema community.

06/08/2026

📣 🔴 We invite you to watch the on-demand HAEA Treatment Education Series Webinar! HAE Treatment: Current Routes and the Road Ahead.

In this educational webinar, Dr. Aleena Banerji explores the current landscape of HAE treatment options, including existing administration routes and emerging advancements that may shape the future of care. This session provides valuable insights into evolving therapies and considerations for individuals living with HAE.

06/06/2026

⚾ What a wonderful afternoon in Phoenix, Arizona! Members of the HAEA community came together at Chase Field for a special Community Connections event filled with great conversations, new connections, and Diamondbacks baseball.

Attendees enjoyed lunch, spent time with fellow community members and HAEA staff, and shared an afternoon of fun and friendship. 💜

Thank you to everyone who joined us and helped make this event so memorable. Together, we are stronger, and together, we thrive.

➡️ Find upcoming HAEA events in your area: https://www.haea.org/page/events_home

06/05/2026

Did you miss the latest Podcast: Voices of the Next Generation? 🫶

➡️Watch the full episode here: https://open.spotify.com/episode/0GEx3Uyep46ik4bA4aChTB

In this episode, we met Ivy, Sadie, and Kayla, three new members of the HAEA Youth Leadership Council, as they share their personal journeys living with hereditary angioedema (HAE). They open up about their paths to diagnosis, how they manage their condition day to day, and the challenges they’ve faced along the way.

06/03/2026

Question of the Month: How Can You Prepare for Insurance Appeals?

Don’t navigate the process alone! Hear from Mandy Granat, HAEA Health Services Manager, who shares practical tips and guidance on how to prepare for an insurance appeal and access the support available to you.

For questions, or more information, please contact an HAE Health Advocate at [email protected].

06/01/2026

Still reminiscing about an incredible Youth Training in Washington, DC with our Youth Leadership Council members and Social Media Interns. 💜

From advocacy and storytelling to hands-on podcast and content creation training, this group brought so much creativity, passion, and leadership to every moment. 🎥🎙️✨

We’re so proud to help empower the next generation of HAE advocates!

05/30/2026

🎶🎳💜 What a wonderful day in Music City! Today, members of the HAEA community came together in Nashville, Tennessee, for a special Community Connections event filled with meaningful conversations, laughter, bowling, and new friendships.

Attendees enjoyed spending time with fellow community members and US HAEA staff members, Mandy, Adina, Sally, and Katie, sharing stories, building connections, and strengthening the bonds that make our community so special. Thank you to everyone who joined us and continues to make the HAEA community a place of support, understanding, and hope. Together, we are stronger, and together, we thrive.

➡️ Find upcoming HAEA events in your area: https://www.haea.org/page/events_home

05/28/2026

👀 In case you missed it…

On hae day :-) we launched our BRAND NEW educational video created especially for kids and teens in the hereditary angioedema (HAE) community!

💜 Watch now and visit our YouTube page!

Address

10560 Main Street, Suite PS40
Fairfax, VA
22030

Telephone

+18667985598

Website

http://www.haea.org/

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