Lowe Syndrome Association, Inc.

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Lowe Syndrome Association, Inc.

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Lowe Syndrome Association, Inc., Nonprofit Organization, Chicago Ridge, IL.

Our mission is to improve the lives of persons with Lowe syndrome and their families through fostering communication, providing education and supporting research so that individuals can attain their highest potential.

06/16/2026

Caregivers, we see you 🤍

The long days
The quiet sacrifices
The strength you carry, even when it feels heavy

Your dedication, patience, and love make a difference every single day

You are valued
You are appreciated
And you are never alone

06/13/2026

Community Moments That Matter 💙

We love celebrating the everyday moments that make this community so special, no matter if it’s a major milestone or a small win, every moment matters.

Thank you to the individuals and families who continue to share their stories and photos with us. These moments remind us of the strength, joy, and love within our community.

📸 Share your moments here: https://forms.gle/GgEsBsBURRrBD5iU9

06/12/2026

Reminder! 💙

There’s still time to help us celebrate the incredible dads and father figures in the Lowe Syndrome community this Father’s Day.

We’re inviting families to share:
✨ A message of appreciation
📸 An optional photo
🤍 A favorite memory or story

Selected submissions may be featured on our social media leading up to Father’s Day and included in a collaborative Father’s Day post.

Submit your responses here: https://forms.gle/LMRZST1mYpj8zodQ8

Thank you for helping us honor the love, strength, and dedication of the dads in our community.

06/11/2026

Living with Lowe Syndrome 💙

Summer brings a mix of new routines, challenges, and moments of joy

From adaptive activities
To time spent with loved ones
To the small wins that mean everything

Every experience looks different
And every moment carries meaning

06/10/2026

“One day” holds so much meaning in the Lowe Syndrome community

For some families, it’s hope for milestones once thought impossible. For others, it’s hope for answers, understanding, inclusion, better treatments, and one day… a cure. 💙

Thank you to Chrissie for sharing this beautiful reminder of the power held in a single word: “Mama.” Moments like these mean everything

Want to share your own “One Day” hope or story with us? We’d love to hear from you: https://docs.google.com/forms/d/e/1FAIpQLSd5UPzaLjlm9zohIZGKN_7iVK9BJS0bEJicQt2k0L9LvQNBpg/viewform?usp=header

06/08/2026

Community Moments 💙

Today we're celebrating Casey, who is graduating 2nd grade at PG Chambers! 🎓

Congratulations, Casey! We are so proud of all you've accomplished this year and can't wait to see what 3rd grade has in store for you. Wishing you a summer full of fun, adventure, and plenty of reasons to smile!

Do you have a special milestone, achievement, celebration, or memory you'd like to share with the Lowe Syndrome community? We'd love to feature more of our amazing families in future Community Moments posts.

Share your moments with us: https://forms.gle/RvS9u78xMmjveW268

06/07/2026

☀️Lowe Syndrome Summer Bucket List☀️

Summer is all about making memories, trying new things, and spending time with the people who matter most. 💙

We created this Lowe Syndrome Family Edition Summer Bucket List as a fun way to celebrate the season together. Whether you're connecting with another family, enjoying a favorite summer treat, celebrating a milestone, or simply spending time outside, every moment matters.

How many can your family check off this summer? ✅
Tell us in the comments:

🌻 Which activity are you most excited about?
📸 Share a photo if you complete one of the items on the list!

Let's fill this summer with connection, joy, and unforgettable memories. Together, we are stronger.

06/05/2026

Father’s Day is coming up, and we want to celebrate the incredible dads and father figures in the Lowe Syndrome community 💙

We’re inviting families to share:
✨ A special message
📸 An optional photo
🤍 A favorite memory or words of appreciation

Selected submissions may be featured on our social media leading up to Father’s Day and included in a collaborative Father’s Day post.

Submit your responses here: https://forms.gle/LMRZST1mYpj8zodQ8

Thank you for helping us honor the love, strength, and dedication of the dads in our community.

05/30/2026

School's out and it's time to celebrate! 🎉🎓

The Lowe Syndrome Association would love to recognize the incredible boys in our community who are graduating or completing another school year milestone.

Whether your son is finishing preschool, elementary school, middle school, high school, a transition program, or another educational achievement, we want to celebrate with you! 💙

Submit a photo through Community Moments and share a few details: https://forms.gle/GgEsBsBURRrBD5iU9

📚 Grade completed or graduation milestone
🎓 School or program (optional)
⭐ Favorite accomplishment, memory, or achievement from the year
📸 A photo you'd like us to feature

We look forward to highlighting these special moments and celebrating the hard work, growth, and accomplishments of our amazing community members.

Submit your Community Moment today and help us celebrate the Class of 2026 and all of this year's student successes! 🎉💙

05/28/2026

Let’s reflect together🫶

What has been a highlight of your journey so far this year?

Big or small, your moments matter and can inspire others in this community

Address

Chicago Ridge, IL

Telephone

+12166307723

Website

http://www.lowesyndrome.org/

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