Reach

Reach Hirschsprung's disease occurs in approximately 1 in 5000.

REACH is committed to improving the lives of children and families with Hirschsprung's Disease by increasing awareness, promoting education, connecting individuals and supporting research. Hirschsprung’s disease occurs when nerve cells (also called ganglion cells) are absent from the lower part of the colon. The segment without nerve cells is called the aganglionic segment and it always starts at

the bottom of the colon affecting the lower end, it can also extend up the
colon, even into the small intestine. The absence of ganglion cells leaves a portion of the colon essentially paralyzed and unable to propel waste products along its length.

We’re reaching for the stars this September ✨👟The Reach for the Stars Walkathon is officially back in celebration of Hir...
08/25/2026

We’re reaching for the stars this September ✨👟

The Reach for the Stars Walkathon is officially back in celebration of Hirschsprung Disease Awareness Month, and we’re launching early so you have plenty of time to gather your people, build your team and plan your September walk.

There’s no set city, route or date. Your team can participate anywhere, at any time throughout September. Walk, run, bike or create an activity that feels meaningful to you and the HD warrior in your life.

Registration is completely free. Once your team is registered, we’ll send you a personalized donation link so you can rally your family, friends, school, workplace and community to support your team and help us raise vital funds for Hirschsprung disease research.

Register your team today at reachhd.org/reach-events and start getting your crew together.

Every team matters. Every donation matters. Every step moves us forward. 🩵🏃🏃‍♀️✨

🔬 RESEARCH STUDY OPPORTUNITYAre you a parent/caregiver, person aged 12+ with a colorectal diagnosis, or sibling aged 12+...
08/18/2026

🔬 RESEARCH STUDY OPPORTUNITY

Are you a parent/caregiver, person aged 12+ with a colorectal diagnosis, or sibling aged 12+ of someone with a colorectal diagnosis?

Researchers are conducting a study to better understand how colorectal diagnoses, including Hirschsprung’s Disease (HD) can impact:

💙 Family relationships
🧠 Coping mechanisms and the ability to cope with stress
🍎 Relationships with food and body image

https://redcapweb.choc.org/surveys/?s=EAKX3DMDHTH3PFPA&utm_source=ig&utm_medium=social&utm_content=link_in_bio&fbclid=PAdGRleATxtK5wZG9mAmZkaWQWUMvkdfdUZAlv_7C9takNxTvVz3XytWV4dG4DYWVtAjExAHNydGMGYXBwX2lkDzEyNDAyNDU3NDI4NzQxNAABp4ebYbrwMFkP-wkA-kkaXHwxk08crYMa8kNGXw7QIqASu5VUdrF4EgFbd1nJ_aem_gtSmFtDHsbB-rGN5T-qXYA

Applications for the 2026 REACH Fellowship are now open! 🩺This fellowship supports early-career pediatric surgeons and p...
05/05/2026

Applications for the 2026 REACH Fellowship are now open! 🩺

This fellowship supports early-career pediatric surgeons and pediatric gastroenterologists who are passionate about making a real difference for children and families affected by Hirschsprung disease.

Click the link in our bio to learn more! ✨

Since 2013, The REACH research grant has provided a total of $355,000 of funding to not-for-profit organizations engaged...
05/04/2026

Since 2013, The REACH research grant has provided a total of $355,000 of funding to not-for-profit organizations engaged in cutting edge Hirschsprung disease research! 🔬🧫

We are thrilled to announce that applications for our 2026 research grant are open! 🧪

Click the link in our bio for more information!

☀️Find your people. Find your confidence.☀️Youth Rally is a camp experience for teens (11–17) living with bowel and/or b...
04/27/2026

☀️Find your people. Find your confidence.☀️

Youth Rally is a camp experience for teens (11–17) living with bowel and/or bladder conditions. At youth rally you will have the opportunity to connect, have fun and build confidence in a supportive environment.

Don’t miss your chance to be part of it! Registration deadline is June 1st! Sign up here:

https://youthrally.org/applications 🤍

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