Reach

Hirschsprung's disease occurs in approximately 1 in 5000.

REACH is committed to improving the lives of children and families with Hirschsprung's Disease by increasing awareness, promoting education, connecting individuals and supporting research. Hirschsprung’s disease occurs when nerve cells (also called ganglion cells) are absent from the lower part of the colon. The segment without nerve cells is called the aganglionic segment and it always starts at

the bottom of the colon affecting the lower end, it can also extend up the
colon, even into the small intestine. The absence of ganglion cells leaves a portion of the colon essentially paralyzed and unable to propel waste products along its length.

05/05/2026

Applications for the 2026 REACH Fellowship are now open! 🩺

This fellowship supports early-career pediatric surgeons and pediatric gastroenterologists who are passionate about making a real difference for children and families affected by Hirschsprung disease.

Click the link in our bio to learn more! ✨

05/04/2026

Since 2013, The REACH research grant has provided a total of $355,000 of funding to not-for-profit organizations engaged in cutting edge Hirschsprung disease research! 🔬🧫

We are thrilled to announce that applications for our 2026 research grant are open! 🧪

Click the link in our bio for more information!

04/27/2026

☀️Find your people. Find your confidence.☀️

Youth Rally is a camp experience for teens (11–17) living with bowel and/or bladder conditions. At youth rally you will have the opportunity to connect, have fun and build confidence in a supportive environment.

Don’t miss your chance to be part of it! Registration deadline is June 1st! Sign up here:

https://youthrally.org/applications 🤍

03/16/2026

The REACH Winter newsletter is out now! ❄️
Click the link in our bio to read about the latest REACH updates and hear from members of the Hirschsprung disease community!

✍🏻 In this Issue ✍🏻

🩺 2025 Fellowship Recipient Announcement

🎙️REACH Ambassador and Co-founder featured on Down Syndrome Center Podcast

💌 Fundraising Updates and Ideas

📢 HD Stories

👏🏻 Introducing our New REACH Ambassador

☃️ Winter Solutions

01/31/2026

Remembering Catherine O’Hara, whose willingness to lend her voice helped bring greater awareness to Hirschsprung disease. We’re grateful for her support, her kindness, and her role in helping important conversations reach more people.❤️

12/28/2025

We’re working toward a $25,000 goal to support children and families affected by Hirschsprung disease 💙

Thanks to a matching donor, every donation is doubled up to $25,000 until the New Year. Your donations will support vital research, education, and advocacy for children with Hirschsprung disease.

Together, we can reach this goal and make twice the difference.

Click the link below to donate!
https://www.paypal.com/donate/?hosted_button_id=M4EARH2N5NC2Y

12/23/2025

🎄✨ This holiday season, help us raise funds for research, education, and advocacy for children with Hirschsprung disease! Thanks to your generosity we’ve raised over $7,000 of our $25,000 goal and every donation is matched! 🙌

Your gift will go TWICE as far.

Click the link below to donate 💌
https://www.paypal.com/donate/?hosted_button_id=M4EARH2N5NC2Y

12/22/2025

This holiday, your gift can change a child’s future ❤️

We’re on a mission to raise $25,000 for children affected by Hirschsprung disease. Help us fund critical research, education, and advocacy and thanks to a matching donor, your gift is doubled!

Let’s keep the momentum going, every donation counts. 🎁

Click the link below to donate 🫶🏻
https://www.paypal.com/donate/?hosted_button_id=M4EARH2N5NC2Y

12/15/2025

✨ This holiday season, your generosity goes TWICE as far.✨

Every dollar donated to REACH is matched up to $25,000 for the rest of 2025, doubling support for children and families affected by Hirschsprung disease.

🎁 Give hope. Change lives.🎁
🔗 Click this link to donate: https://www.paypal.com/donate/?hosted_button_id=M4EARH2N5NC2Y

12/08/2025

🎙️ New episode alert!

Dr. Kinshore Vellody, Medical Director of the Down Syndrome Center of Western Virginia, sits down with REACH Co-Founder Isabelle Schnadig and REACH Ambassador Ashley Matthews to talk about the REACH mission, the DS x HD microsite, and what life looks like raising a child with a dual diagnosis of Hirschsprung disease and Down syndrome.

A conversation filled with honesty, hope, and resources for families walking a similar path. 💛✨

click here to listen! https://podcasts.apple.com/ca/podcast/213-reach-serving-children-with-hirschsprung-disease/id602494060?i=1000737571976

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Boston, MA

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http://www.reachhd.org/

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