CMT Research Foundation

09/26/2026

A thoroughly deserved standing ovation for Susan Ruediger, who was honored with the Catalyst Award for her contributions to the field of CMT research. The award is presented at the Global CMT Research Convention, which wouldn't exist without Susan's leadership, vision and effort both as CMTRF's Chief Mission Officer and Co-Founder.

09/24/2026

It can make CMT research faster, cheaper and more conclusive.

And it's live.

Read "Announcing NODE: A New Shared Home for Peripheral Nerve Research Data", and other CMTRF Funded Research articles from the CMT Research Foundation.

09/24/2026

Let the learning begin! The 2026 Global CMT Research Convention is underway, with leaders from across the field sharing their ideas, building on them with colleagues, and developing new collaborative relationships.

09/24/2026

It starts today! Looking forward to hosting discussion on the most advanced and pressing research questions for Charcot-Marie-Tooth disease.

09/16/2026

One way to help get treatments into the hands of people with CMT faster is to accelerate the progress and usefulness of clinical trials.

This effort brought together patients, advocates, biotechs and clinicians to make unified recommendations.

A new Charcot-Marie-Tooth guidance introduces practical recommendations to help sponsors design clearer, more patient-centered, regulator-ready trials.

09/10/2026

We're two weeks out from the 2026 Global CMT Research Convention in Boston!

Here's some travel info for those already planning to be there; registration is still available for those looking to make plans.

Read "Global CMT Research Convention: Travel Guide ", and other CMTRF Blog & Articles articles from the CMT Research Foundation.

09/01/2026

September is CMT Action Month, and that means it's also time for the Global CMT Research Convention. CEO Laura MacNeill shares how the convention helped her with a difficult decision about her CMT.

REGISTER: https://cmtconvention.cmtrf.org/patient-registration/

08/31/2026

Today marks the end of Planned Giving Month!

Here's five reasons you might want to put some plan your giving now.

Read "Five Reasons to Consider a Planned Gift to CMTRF", and other CMTRF Foundation News articles from the CMT Research Foundation.

08/27/2026

Planned Giving Month is ending soon! Explore our new way to contribute to the future of CMT research with no minimum gift amount, no immediate financial commitment.

Read "The Promise Society: A New Way to Support CMT Research", and other CMTRF Foundation News articles from the CMT Research Foundation.

08/26/2026

We are one month out from the Global CMT Research Convention! Patients will find their most hands-on experience yet, including our first ever Clinical Trial Fair, letting patients meet directly with companies who are running or planning CMT trials for therapies that are in development but do not yet have regulatory approval.

Read "What Makes This CMT Research Convention Our Most Hands-On Event Yet", and other CMTRF Blog & Articles articles from the CMT Research Foundation.