PSPA

PSPA PSPA is the only UK charity dedicated to improving the lives of people living with PSP & CBD

Please note, if you request information to be posted or emailed to you, your contact details will be stored on the PSPA database. If you would prefer for your details not to be stored, please make this clear in your correspondence.

A gift in your Will could be the gift of a lifetime 🌻Make your Will for free this autumn! As a special offer to PSPA sup...
03/09/2026

A gift in your Will could be the gift of a lifetime 🌻

Make your Will for free this autumn! As a special offer to PSPA supporters, we’ve partnered with the National Free Wills Network to give you the chance to make your Will for free with a local solicitor this September, October and November. Request your Information Pack here: https://www.pspassociation.org.uk/request-a-free-wills-pack/, or for more information: https://www.pspassociation.org.uk/fundraising/legacy/

Next we will be sharing our campaign for Remember a Charity Week, keep your eyes peeled for more information.

03/09/2026

As PSP & CBD progress, changes in swallowing and digestion can make mealtimes challenging—and sometimes, whole foods are no longer an option. In our latest PSPA Podcast episode, we sit down with Rhiannon Hinstridge, Lead Dietitian for Neurology at Hertfordshire Community NHS Trust, to break down the different types of food preparation that may help at each stage of the journey.

Whether you’re caring for a loved one or navigating these changes yourself, this clip offers clear definitions of the different types of food prep.

Listen to the full episode here or wherever you get your podcasts: https://www.pspassociation.org.uk/information-and-support/pspa-podcast/

01/09/2026

Watch as one of our Helpline Care Navigators, Kaysha, shares why you should attend our next regional awareness event in Basildon, Essex. These events provide a chance for families and carers to meet other families living with similar experiences. Find out more about the programme and book your free tickets here: https://ow.ly/8ikP50ZF9gu

Looking for a fun and meaningful way to make a difference? Fundraising for PSPA can be as creative as you like—host a co...
29/08/2026

Looking for a fun and meaningful way to make a difference? Fundraising for PSPA can be as creative as you like—host a coffee morning, organise a charity picnic, cycle for a cause, or take part in a community walk. Whatever you choose, we’re here to help every step of the way! Our dedicated Fundraising team has plenty of tips and support to get you started. Ready to make an impact? Discover how you can fundraise your own way: https://ow.ly/6ZC850ZAS3g

We would like to wish our Helpline Care Navigator Dionne the best of luck, for her upcoming Pathway to Progress challeng...
29/08/2026

We would like to wish our Helpline Care Navigator Dionne the best of luck, for her upcoming Pathway to Progress challenge! This weekend Dionne's taking on the Annual Chapel World Bog Snorkelling Championships to raise money for PSPA! If you can please support Dionne's fundraiser here: https://www.justgiving.com/page/dionne-ward-1 or you can wish Dionne good luck in the comments.

Caring for a loved one can be rewarding but can also be challenging with all the changes that the person with the condit...
28/08/2026

Caring for a loved one can be rewarding but can also be challenging with all the changes that the person with the condition and their families can experience. We have a dedicated Carers Hub with different resources to help carers look after themselves, so you are in the best position possible to support your loved one. The Hub features Helpful Worksheets, the PSPA Podcast and other information for external organisations that can support you. Find out more here: https://ow.ly/JKSw50ZAT5I

27/08/2026

🥑Pureed?
🥕Soft and bite-sized?
🍠Moist and mashed?

We know as PSP & CBD progress, swallowing and digestion often change and sometimes to a point where people can't swallow whole foods anymore. On the latest episode of the PSPA Podcast, we spoke with Rhiannon Hinstridge, Lead Dietitian for Neurology at the Hertfordshire Community Trust. In this helpful clip, Rhiannon shares the differences between the types of food prep that a loved one might need at different stages of their journey. You can listen to the podcast in full here or wherever you listen to your podcasts: https://www.pspassociation.org.uk/information-and-support/pspa-podcast/ 🎧

26/08/2026

Tickets are going fast for our next regional awareness event that's taking place in Basildon on 24 September 2026. Find out more from our Helpline Care Navigator, Kaysha, about what you can expect from the event. You can get your free tickets here: https://ow.ly/Jfcc50ZF7TQ

“Being unable to keep your eyes open. A painful muscle causing an arm to be in an uncomfortable position. A stiff neck m...
25/08/2026

“Being unable to keep your eyes open. A painful muscle causing an arm to be in an uncomfortable position. A stiff neck making it hard to sit comfortably. Problems swallowing and managing saliva. These are some of the most common symptoms of PSP & CBD that many people have to deal with daily.

These symptoms can affect much more than physical comfort. They can change your ability to work, communicate, move around safely or do the things that help you feel independent.

While there is currently no cure, treatments including Botulinum toxin or Botox may help with managing symptoms of PSP & CBD and improving comfort and quality of life.”

Our latest blog looks more at how Botox can be used including:

đź’‰What it is and how it works?
đź’‰Can it help with different stages of PSP & CBD?
đź’‰A personal experience and more

Take a look at the blog here: https://ow.ly/Z8Im50ZArEm

A UK Grand DĂ©part, for the first time in over a decade! Same road. Same climbs. One day early. Fully supported. Just tur...
24/08/2026

A UK Grand DĂ©part, for the first time in over a decade! Same road. Same climbs. One day early. Fully supported. Just turn up and pedal!

About the Challenge: In July 2027, the Grand Depart of the 114th Tour de France comes to the UK for the first time since 2014! And you can cycle the opening stage the day before the professionals race it!

Cycling the route of a Tour de France stage – one of the biggest and most gruelling sporting events in the world – is a fantastic achievement, and it’s very rare to be able to do it on British roads. Tackle this long day in the saddle with our experienced cycle-challenge support team and enjoy the atmosphere building up in the towns and villages as you ride. This is the closest most of us will get to feeling like we’re part of the world’s most famous bike race.

With two nights’ accommodation, and a transfer back to the start-point for a big celebration, we make the rest of the experience as convenient as possible for you – and leave you perfectly positioned to watch the pros the next day! For more information or to register your interest visit https://ow.ly/Rx8q50ZAs94

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Margaret Powell House, 415a Midsummer Boulevard
Milton Keynes
MK93BN

Opening Hours

Monday 9am - 5:30pm
Tuesday 9am - 5:30pm
Wednesday 9am - 5:30pm
Thursday 9am - 5:30pm
Friday 9am - 5:30pm

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