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Monday 9am - 5:30pm Tuesday 9am - 5:30pm Wednesday 9am - 5:30pm Thursday 9am - 5:30pm Friday 9am - 5:30pm

PSPA

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PSPA is the only UK charity dedicated to improving the lives of people living with PSP & C*D

Please note, if you request information to be posted or emailed to you, your contact details will be stored on the PSPA database. If you would prefer for your details not to be stored, please make this clear in your correspondence.

03/11/2026

A huge thank you to all of our wonderful volunteers and staff who attended our Volunteer Development Day over the weekend. The event was full of connection, deep discussions and learning.

03/11/2026

The 2026 PSPA Bauble Appeal is here! 🎄💜

PSP & C*D can leave families feeling isolated, especially at Christmas. After losing his wife Rosalind to PSP, David Pugh became a Volunteer Support Group Coordinator and Befriender, helping others like Paul Campbell, who also lost his wife and felt alone—until David offered understanding and support 🧡

This Christmas, you can help families facing PSP & C*D by dedicating a Bauble to a loved one. Your donation funds more Befrienders and Support Groups, so no one faces these conditions alone.

Dedicate your Christmas Bauble: https://www.pspassociation.org.uk/christmas/

02/11/2026

This week's is Julia Collingburn, who ran the Great North Run and then only a month later, ran the Great South Run! Julia took on these challenges to honour her Mum who died from PSP in February of this year, and her Dad who was her Mum's carer until he was sadly diagnosed with stage 4 inoperable bowel cancer and died in December 2025. Julie ran alongside her son Josh, and nephew Joe to raise awareness and money for PSPA. Julia has raised an incredible £2, 973!

31/10/2026

Rareminds, the specialist mental health and wellbeing services for the rare condition community, are running a survey to better understand your experiences with professional mental health services.

If you're living with PSP & C*D, caring for someone with the conditions or are a family member please consider taking part in this survey and sharing your experiences. The survey takes around 10 minutes to complete: https://www.smartsurvey.co.uk/t/RMSurvey2026/

30/10/2026

PSPA is currently working in partnership with the Free Wills Network to provide free Will-Writing for our supporters. With the nature of these neurodegenerative conditions, it can help everyone's peace of mind to have a Will in place for when the time comes.

You can find out more here: https://www.pspassociation.org.uk/fundraising/legacy/

29/10/2026

It was announced in yesterday's Budget, that the Government will give a one-off £100 payment to certain council tax bands, to help towards energy costs. If you pay by direct debit you won't need to do anything, the payment will go straight into your bank account. If you don't, your council will invite you to apply for the rebate directly. Find out if you're eligible and more information here: https://ow.ly/LisP510206p. Since the announcement was made, the website has been very busy. It you can't access it now, please try again later.

28/10/2026

Giving a regular gift to PSPA every month could help us provide:

💜Better understanding to health and social care professionals through resources
🧡More connection and less isolation through our support groups
💜More online exercise classes to help people with PSP & C*D to maintain their strength and mobility

You can decide how much you would like to give and can stop the payment at any time. To find out more and set up a regular gift, visit our website here: https://ow.ly/NbAy50ZYUcr

*D

26/10/2026

Our Volunteer Support Group Coordinator for Country Durham Maria Rodrigues, alongside Val Richardson and Bob Ruskin who have both lost their partners to PSP, met with their local MP Liz Twist. They discussed their experiences of caring for their loved ones, eligibility for CHC Funding, and high risks around PSP & C*D. They have also contacted other MPs in their areas.

23/10/2026

Watch the recording from our latest Research Information Day! We were joined by an array of speakers including:

👉Laura - NeuroHeroes
👉Dr Joji Verghese – University of Exeter
👉Mark Jackson – PSPA
👉Katarina Gunter – University of Oxford
👉Isabella Caraiscos and Dr Ed Jabbari – UCL

You can watch the recording at any time from our website here: https://ow.ly/HMap50ZYkwa

22/10/2026

Gifting the cost of your monthly streaming service to PSPA could provide life-changing support to people living with PSP & C*D, and their families. Your monthly gift could provide more families with understanding and connection through more Support Groups. If you would like to find out more and set up a regular monthly gift, please visit our website: https://ow.ly/VjMi50ZXU6Q

Address

Margaret Powell House, 415a Midsummer Boulevard
Milton Keynes
MK93BN

Opening Hours

Monday	9am - 5:30pm
Tuesday	9am - 5:30pm
Wednesday	9am - 5:30pm
Thursday	9am - 5:30pm
Friday	9am - 5:30pm

Website

http://www.pspassociation.org.uk/

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