George’s Journey with SMA type 1

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George’s Journey with SMA type 1 My name is George and I have SMA Type 1. My Mummy and Daddy found some very clever scientists, who created a drug that helps me. I AM NOW 4 YEARS OLD!

I am saving for a machine that turns me into a TRANSFORMER! I would like to share my journey with you all. My name is George and I have SMA type 1. My Mummy and Daddy was told that I have Spinal Muscular Atrophy when I was 3 months old, Mummy was told by the Doctors that I would only have a life expectancy of 6 months – 2 years. My journey in fighting SMA started when Mummy and Daddy found some very clever scientists, who have created a drug that helps me manage the effects of this rare genetic condition. I was a lucky boy to receive this life saving medicine and throughout my journey I have met so many lovely doctors and professionals who have helped me. I need a lot of equipment to help with my condition, I cannot walk on my own and I cannot even sit up without mobility aids as I also have scoliosis, my dream is to walk but to do this I need a machine called an Innowalk, I am strapped in, and the machine does the walking for me…. It is like being a TRANSFORMER!! Lots of my friends and family are helping Mummy and Daddy buy me this magic machine and I would like to share with you my journey and help others to raise awareness for SMA Type 1.

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Hoddesdon

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+447799411363

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