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brainstrust brainstrust is a UK national brain tumour support charity.

We provide personalised support and build communities so people are less alone, less afraid and more in control

Feeling lucky? 💰️Enter the brainstrust Lottery and you could win a big cash prize!Every ticket helps fund vital support ...
12/10/2026

Feeling lucky? 💰️

Enter the brainstrust Lottery and you could win a big cash prize!

Every ticket helps fund vital support for those affected by brain tumours.

Follow the link in the comments below to get involved:

🚴 They’re off! 🚴This morning, Beth, along with her partner Lee and friend Carl, set off on an incredible 200-mile cycle ...
09/10/2026

🚴 They’re off! 🚴

This morning, Beth, along with her partner Lee and friend Carl, set off on an incredible 200-mile cycle from Coventry to the Isle of Wight, raising funds for brainstrust as part of our Wear Grey 2026 campaign.

Since being diagnosed with an acoustic neuroma, affectionately named “Pinky”, Beth has found comfort in the support brainstrust offers to patients, their families and friends. Now, she’s taking on this epic challenge to help make sure that support is there for others facing a brain tumour diagnosis too.

Beth, Lee and Carl are due to complete their challenge and reach the Isle of Wight on Monday afternoon, what an incredible few days they have ahead of them!

A huge thank you to all three of you for taking on this challenge and helping to raise vital funds and awareness for brainstrust. We’re incredibly grateful for your support.

From everyone at brainstrust, we’re wishing you safe travels, strong legs and lots of luck for the miles ahead!

We’ll be cheering you on every pedal of the way! 👏

If you'd like to donate to Beth's challenge, you can follow the link in the comments below.

The public places for the 2027 Manchester Marathon sold out in 10 days. if you missed out, we could help. We have a limi...
08/10/2026

The public places for the 2027 Manchester Marathon sold out in 10 days. if you missed out, we could help. We have a limited number of charity places for the UK's second biggest marathon. So, if you'd like to run, what is allegedly Britain's friendliest marathon, and raise money for our cause, please click on first link in comments.

The Barcelona Marathon (March 14th 2027) is one of most popular marathons in Europe. The course is fast, flat and passes...
07/10/2026

The Barcelona Marathon (March 14th 2027) is one of most popular marathons in Europe. The course is fast, flat and passes such landmarks such as the Camp Nou and the Sagrada Familia. Places are at a premium, however we have a limited number of places at brainstrust. If you'd like to have an amazing experience whilst supporting our cause, please click on link in comments.

07/10/2026

We Wear Grey to make sure no one has to face a brain tumour alone. Thank you Shanel for your support this October, and for sharing your story 🩶

brainstrust is here to help you live life with a brain tumour. Every day, 79 people will hear the devastating and life changing words ‘you have a brain tumour’. We are here to help them feel confident and in control of their diagnosis.

Get your Wear Grey merch today and show your support for the brain tumour community! Available via the link in our comments and our bio 🧠

79 people diagnosed accounts for both 45 primary brain tumours and 34 brain metastases*

Now this is the kind of science that makes us sit up.Imagine a brain implant that doesn't need brain surgery. Just an in...
06/10/2026

Now this is the kind of science that makes us sit up.

Imagine a brain implant that doesn't need brain surgery. Just an injection in the arm. MIT's team has built microscopic electronic devices, fused to living immune cells, that travel through the bloodstream, slip across the blood-brain barrier without damaging it, and settle precisely where they're needed. Once there, they can be powered wirelessly from outside the body to deliver targeted electrical stimulation.

For our community, two things stand out.

First, glioblastoma rarely stays in one tidy place. It spreads, sometimes in spots too small to see on a scan. A treatment that finds its own way to the target could change what's possible. Second, the team names DIPG, a tumour in the brainstem that surgeons usually can't reach, as a potential future use. For the families we know who have faced that diagnosis, even the possibility matters.

And there's something else we love here: the idea that a therapy could reach people without the cost and risk of major surgery. Access matters as much as innovation.

Let's be honest about where we are. This is early work in mice, and the team is aiming for first human trials within a very few years. There's a long road ahead. But it's real progress, it's creative, and it's the kind of bold thinking brain tumour patients deserve.

To the researchers: when you get to the clinic, bring patients and caregivers in early. We'd love to help shape what comes next.

For more information, you can read MIT's article via the link in comments below:

05/10/2026

Could writing give you a little space to pause, reflect and express what can be difficult to say when affected by a brain tumour? ✍️

In this video, writer and tutor Andrew Kauffmann introduces two upcoming creative writing workshops:

📅 15 October – Writing the tough stuff with care and self-compassion

📅 17 December – Exploring writing as a tool for wellbeing

Whether you write regularly or have never tried creative writing before, these workshops offer an accessible and supportive place to have a go. There is no expectation to share your writing or personal experiences.

Watch to hear more from Andrew, and visit our events page to book your place.

October is Wear Grey month, where we show our support for all those in the brain tumour community. Could you raise £79 t...
04/10/2026

October is Wear Grey month, where we show our support for all those in the brain tumour community. Could you raise £79 this month for our cause? Why £79? Because on average 79 people each month are given the devastating news that they have a brain tumour (figure includes primary and secondary tumours). To fund raise, donate or to buy a t shirt, please click on link in comments.

Sometimes taking a moment to pause and do something creative can help stresses and worries fade into the background. 🎨Jo...
03/10/2026

Sometimes taking a moment to pause and do something creative can help stresses and worries fade into the background. 🎨

Join us on Wednesday 7th October, from 10:30am–12:30pm, for Art Time, a gentle online session for people living with a brain tumour and caregivers to express, connect and simply enjoy being creative together.

Led by artist and qualified tutor Maddy James, the session isn’t about following instructions or creating something perfect. Instead, Maddy will gently guide you to explore your own style and experience painting as a mindful, soothing activity.

Whether you’re a seasoned artist or a complete beginner, everyone is welcome. Just grab some pencils, paints or whatever art materials you have to hand.

Find out more and book your place via the link in the comments below.

02/10/2026

What do the results of the ROAM trial mean for people living with a grade 2 atypical meningioma?

Ella, our PRIME manager, is breaking down the findings from the ROAM trial, what researchers learned, and what they could mean for conversations about treatment after surgery.

Not sure whether your meningioma is typical or atypical? This is determined by examining the tumour tissue after surgery or biopsy, and your clinical team can tell you the grade of your tumour.

Radiotherapy is a significant treatment decision, and personal preferences and individual circumstances remain important. The new evidence doesn't necessarily make that decision simple, but it can help make conversations about the options more informed.

If you’d like more information on this, you can read our article on the ROAM trial via the link in the comments below.

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4 Yvery Court, Castle Road
Cowes
PO317QG

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