Lylas brain tumour journey

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Lylas brain tumour journey lyla rose was diagnosed with a brain stem tumour in 2016 and underwent a life threatening operation. To apply for funding please email

We offer support to families with a child who has a life threatening illness and provide a day out to make some special memories.

❤️🏅 We’ve been keeping a little secret… and we can finally share it! 🥹❤️Tomorrow is going to be one of the proudest days...
28/10/2026

❤️🏅 We’ve been keeping a little secret… and we can finally share it! 🥹❤️

Tomorrow is going to be one of the proudest days of our lives.

Ten years ago, our beautiful little girl was given a 50/50 chance of survival after being diagnosed with a brain tumour at just three years old.

More than 20 brain surgeries, hundreds of hospital procedures and more battles than any child should ever have to face… and look at her now. ❤️

Tomorrow, our incredible Lyla will be heading to the Palace of Westminster, House of Lords, to receive the British Citizen Youth Award Medal of Honour! 🇬🇧🏅

And what makes this even more special is that she’s not receiving this award for what she’s been through, but for everything she’s done for others.

Over £100,000 raised for charity, countless children and families helped, and so many smiles brought to those facing their own battles.

At just 13 years old, she’s continued to turn her own struggles into something that helps others.

Lyla, words will never explain how proud we are of you. From the little girl we were once terrified of losing to the incredible young lady you are today. ❤️

🥊❤️ GOING THE DISTANCE FOR LEE REEVES ❤️🥊When someone has always been there for you, how do you ever repay them? ❤️For y...
21/10/2026

🥊❤️ GOING THE DISTANCE FOR LEE REEVES ❤️🥊

When someone has always been there for you, how do you ever repay them? ❤️

For years, Lee Reeves has stood beside Lyla, supporting her charity, giving his time and helping her bring happiness to others. Never wanting anything in return.

Now Lee is fighting the biggest battle of his life, and seeing what he and his family are going through is heartbreaking. 💔

So Lyla has decided it’s her turn to do something for Lee. ❤️

Starting Sunday 1st November, Lyla and I will be running or walking 5km every day, combining our kilometres until we’ve covered the distance from our home in North Yorkshire to Lee’s hospital in Limerick, Ireland. 🇬🇧➡️🇮🇪

And here’s the special part…

We’re hoping to travel to Limerick to complete our final 5km alongside Lee’s friends and the boxing community.

Every step will be for Lee. Every penny raised will go towards supporting him and his family through the difficult road ahead.

Lee has spent years helping Lyla make a difference to other people’s lives. Now she wants to make a difference to his. ❤️

CAN YOU HELP US GO THE DISTANCE FOR LEE?

Whether it’s £1, £5 or simply sharing this post, every bit of kindness matters.

Let’s show Lee and his family that the people he has always been there for are now standing right behind him. ❤️

📅 WE START 1ST NOVEMBER 2026

Donation link will be in the bio

I’ll forever say that doctors need more training to recognise the signs of a brain tumour and also not to  tell mothers ...
18/10/2026

I’ll forever say that doctors need more training to recognise the signs of a brain tumour and also not to tell mothers that they’re just beening neurotic 🤷‍♂️🙈 ❤️

HELLO TO ALL OUR NEW FOLLOWERS We thought we’d introduce you to the little girl who started this incredible journey… Our...
13/10/2026

HELLO TO ALL OUR NEW FOLLOWERS

We thought we’d introduce you to the little girl who started this incredible journey… Our beautiful Lyla-Rose!

In October 2016, aged just 3, Lyla was diagnosed with a brain tumour.

Since then, she’s endured multiple major brain operations, meningitis, hydrocephalus, brain shunts, frightening seizure-like episodes and countless hospital appointments.

Her condition has affected her learning and development, and she continues to face challenges every single day.

But despite everything, Lyla has spent so much of her childhood making OTHER poorly children smile!

Alongside her sister, she helped create Lyla & Lilley’s Stars, recognising the bravery of seriously ill children.

She’s received incredible awards for her courage, kindness and inspirational work, including a WellChild Award.

In 2024, she was even invited to Buckingham Palace for afternoon tea with Queen Camilla! A memory we’ll treasure forever. ❤️

AND THERE’S MORE EXCITING NEWS… 👀🤫

We’ve recently received some absolutely AMAZING news about Lyla! Something we’re bursting with pride about, but we’re sworn to secrecy for just a little longer!

WATCH THIS SPACE

Behind the smiles, our lives aren’t always easy. There are hospital worries, difficult days and constant battles for the support Lyla deserves.

But we’re determined to make every moment count and create the most incredible family memories.

REAL FAMILY • REAL LIFE • REAL ADVENTURES

To our old followers and all our lovely new ones, THANK YOU for being part of our journey

Where are you following us from? We’d love to say hello!

Address

Crecent
Catterick Camp

Telephone

+447943975838

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