HYDROCEPHALUS CANADA- formerly SB&H

HYDROCEPHALUS CANADA- formerly SB&H Hydrocephalus Canada is the voice of Canadians living with hydrocephalus and spina bifida.

Come Visit Us Today 🧠🎉 FREE Community Event – Brain Injury Awareness Fair! 🎉🧠Join us for a fun-filled day as we come tog...
06/04/2026

Come Visit Us Today 🧠🎉 FREE Community Event – Brain Injury Awareness Fair! 🎉🧠

Join us for a fun-filled day as we come together to recognize Brain Injury Awareness Month and connect with the amazing services, supports, and resources available throughout the Niagara Region.

📅 Thursday, June 4, 2026
🕙 10:00 AM – 2:00 PM
📍 Grantham Optimist Youth Centre
188 Linwell Rd, St. Catharines, ON

Enjoy:
✅ Community resource booths
✅ Brain injury education and prevention information
✅ Family-friendly activities
✅ Live music
✅ Food trucks
✅ Opportunities to connect with local organizations and supports

Whether you're a brain injury survivor, family member, caregiver, professional, or community member, everyone is welcome to attend this free event.

Help us raise awareness, build connections, and celebrate the strength of our community. We hope to see you there!

💙💚 Lights Across Canada Continues in Winnipeg! 💚💙The blue and green lights are shining across Canada in support of Spina...
06/04/2026

💙💚 Lights Across Canada Continues in Winnipeg! 💚💙

The blue and green lights are shining across Canada in support of Spina Bifida and Hydrocephalus Awareness Month!

✨ On June 5, two Winnipeg landmarks will be illuminated:

📍 Esplanade Riel Bridge
Winnipeg, MB R2H 3J2

📍 WINNIPEG Sign
The Forks, Winnipeg, MB R3C 0L5

These iconic landmarks will shine blue and green to help raise awareness, spark conversations, and show support for Canadians living with Spina Bifida and Hydrocephalus.

Every light tells a story. Every photo helps spread awareness.

📸 Visiting one of these locations? We'd love to see your photos!

Tag us:
💙
💚

Follow our hosts:
📍 (WINNIPEG Sign)
📍

Learn more about SB&H Awareness Month and upcoming events:
🔗 hydrocephalus.ca

💙💚✨

06/03/2026

🌟 Toronto and GTA Families: Looking for a fun family day out while creating change?
Join Us June 14t at Downsview Park for Celebrate Live Dream: Walk, Wheel or Run!
What's Included:
🎨 Face painting & temporary tattoos
✨ Favorite characters from
🎭 Puppets from
🎶 Live entertainment
💆 Complimentary massages from Bryan College RMT students
🏃‍♀️ 2K & 5K walk, wheel, or run
♿ Accessible for all abilities

💥 Family of 4 under $100
Family of 5 $110

Every registration helps support Canadians impacted by hydrocephalus and spina bifida.

📍 Downsview Park
📅 June 14
👉 Register now:
https://celebrate-live-dream-walk2026.raiselysite.com/en/

Thank you to for supporting this event.

🌿 Menopause & Mid-Life Webinar Recording Now Available 🌿Thank you to everyone who joined us for our conversation on meno...
06/03/2026

🌿 Menopause & Mid-Life Webinar Recording Now Available 🌿

Thank you to everyone who joined us for our conversation on menopause, mid-life, and disability featuring Margaret Conquest.

If you missed it (or want to rewatch), the recording is now available on our YouTube channel.

📺 Watch here: https://youtu.be/EQb1hlZOXS4

This webinar explored menopause through a disability lens, including sexual health, identity, lived experience, and practical strategies for navigating this stage of life.

📣 Research Opportunity for Women with Spina Bifida (UK Study)

We have also been asked to share an international research opportunity from the UK:

A study is currently recruiting women with spina bifida to better understand their experiences of menopause and the “change of life.” This research aims to improve knowledge and support for women navigating this transition.

🔗 Learn more / participate:
https://derby.questionpro.eu/spina-bifida

For questions, please contact:
📧 [email protected]
🌐 https://www.hydrocephalus.ca


06/03/2026

💙💚We want your help to shine bright with Lights Across Canada – June 4, 2026 💙💚

Today, we are calling on Vancouver, Charlottetown and St. John's, Newfoundland & Labrador to shine a light on Hydrocephalus and Spina Bifida Awareness Month as landmarks across in your cities and town illuminate in blue and green.

We invite families, friends, supporters, and community members to take a stroll, enjoy the lights, snap some photos or videos, and help spread awareness for the thousands of Canadians impacted by hydrocephalus and spina bifida. 📸 If you visit any of these locations, share your photos and videos and tag:

📍 Vancouver Convention Centre
1055 Canada Pl, Vancouver, BC V6C 0C3
🏢

📍 Charlottetown City Hall
199 Queen St, Charlottetown, PE C1A 4B7
🏢

📍 Confederation Building
Confederation Bldg, St. John's, NL A1B 4J6
&labrador

Together, we can increase understanding, build inclusion, and celebrate the strength of our community from coast to coast.

📸 If you visit any of these locations, share your photos and videos and tag:

💙
💚

💚💙 SB&H AWARENESS MONTHJune 2026 Events Calendar🌟 Ongoing Throughout June🤗 Hugs & Smiles Contest🍋 Lemons Across Canada (...
06/02/2026

💚💙 SB&H AWARENESS MONTH
June 2026 Events Calendar
🌟 Ongoing Throughout June

🤗 Hugs & Smiles Contest
🍋 Lemons Across Canada (June 1–October 1)
📺 SB&H Kidz YouTube Series

📅 June Events
June 2 | 7:00 PM EDT

💻 National Caregiver Support Webinar

June 3 | 7:00 PM EDT

🧘 Accessible Yoga
🔗 https://us02web.zoom.us/meeting/register/StGFP62TR8-R1nhOy-4l1A

June 4

👥 SHYNE
Youth & Young Adults with SB&H
🕖 7:00–8:00 PM EDT

🧠 Brain Injury Awareness Event
📍 St. Catharines, ON

June 13

🚶 Troy's Trail Spirit Wheel Walk/Run
📍 Sault Ste. Marie, ON

June 14

🎉 Celebrate Live Dream Walk
📍 Toronto, ON

June 17 | 7:00 PM EDT

🧘 Accessible Yoga
🔗 https://us02web.zoom.us/meeting/register/lmKEorgEQrOCEyiF80RvEg

June 25 | 7:00 PM EDT

🔬 Research Discussion Webinar
Fatigue & Chronic Conditions

June 29 | 7:00 PM EDT

📋 National Webinar
CPP Disability Benefits

July 1

🏆 Hugs & Smiles Contest Closes

💡 Lights Across Canada
June 4

📍 Vancouver Convention Centre, BC
📍 Charlottetown City Hall, PEI
📍 Confederation Building, NL

June 5

📍 Esplanade Riel Bridge, MB
📍 WINNIPEG Sign, MB

June 6

📍 CN Tower, ON
📍 Niagara Falls, ON (10 PM)
📍 Nova Scotia House of Assembly, NS

June 8–10

📍 Saskatoon City Hall & Prairie Wind Sculpture, SK

June 13

📍 Calgary Tower, AB
📍 High Level Bridge, AB

June 14

📍 Vancouver City Hall & Burrard Street Bridge, BC
📍 Halifax City Hall, NS

June 21–29

📍 Regina City Hall, SK

🌟 June is SB&H Awareness Month! 🌟This June, communities across Canada are coming together to raise awareness, share stor...
06/02/2026

🌟 June is SB&H Awareness Month! 🌟

This June, communities across Canada are coming together to raise awareness, share stories, build connections, and celebrate the strength of the Spina Bifida and Hydrocephalus community.

Whether you're attending a walk, joining a webinar, participating in a support group, taking part in our Hugs & Smiles Contest, or simply helping spread awareness, there are so many ways to get involved and make a difference.

Together, we can increase understanding, support families, amplify voices, and create a more inclusive future for everyone living with Spina Bifida and Hydrocephalus.

💚 Join us all month long as we celebrate, connect, learn, and advocate from coast to coast.

📅 Explore events and activities: https://ow.ly/GKfE50Z6IqN
📧 Questions? Contact us at [email protected]
Donate to help SPARK change: https://ow.ly/PhcI50Z6IqR

💚💙

Supporting caregivers starts with recognizing the vital role they play.Join us tomorrow as Hydrocephalus Canada on Jun...
06/01/2026

Supporting caregivers starts with recognizing the vital role they play.

Join us tomorrow as Hydrocephalus Canada on June 2 at 7:00 PM EDT for a free webinar focused on caregiving in the hydrocephalus and spina bifida community.

📅 June 2, 2026
🕖 7:00 PM EDT
🔗 Register: https://us06web.zoom.us/webinar/register/WN_7nr7UO2cQBiAhq2RkX2bYQ

Whether you're caring for a child, partner, family member, or friend, this session will provide practical information, valuable resources, and real-world perspectives from those with lived experience.

What You'll Gain

✅ Learn about free caregiver supports across Canada—and how to access them
✅ Learn how to support your own wellbeing and avoid burnout as a caregiver
✅ Learn about caregiving across the lifespan—from supporting a child to caring for an adult partner
✅ Learn from real caregiver voices and lived experiences in the hydrocephalus and spina bifida community

Featured Speaker

Sarah Calvin, Manager of Regional Engagement at the Ontario Caregiver Organization, will share practical guidance on caregiver wellness and the supports available to caregivers across Canada.

Community Voices & Lived Experience

We're also pleased to welcome:

Janitha Shanmugarajan, Strategic Partnerships Leader at the KITE Research Institute (UHN), where she builds collaborations across healthcare, research, and technology to advance accessibility and innovation. As the parent of a child with spina bifida and a member of Hydrocephalus Canada’s Board of Directors, she brings both professional expertise and lived experience to her advocacy and community leadership.

Teresa Steeves, caregiver to a spouse living with Normal Pressure Hydrocephalus (NPH), who will share her experience navigating caregiving, support, and advocacy.

📅 June 2, 2026
🕖 7:00 PM EDT
🔗 Register: https://us06web.zoom.us/webinar/register/WN_7nr7UO2cQBiAhq2RkX2bYQ

🎉 It’s time! The Hugs & Smiles Photo Contest is officially OPEN! 🎉June is Spina Bifida & Hydrocephalus Awareness Month 💙...
06/01/2026

🎉 It’s time! The Hugs & Smiles Photo Contest is officially OPEN! 🎉

June is Spina Bifida & Hydrocephalus Awareness Month 💙 and we’re kicking it off by celebrating YOU—our amazing community!

Smile, laugh, play, cuddle, adventure… we want to see it ALL 📸✨
Every photo tells a story, and every story matters.

🎁 Random draw prize: $50 gift card of your choice!
👉 Submit here: https://ow.ly/ljo050Z2JQ3

Let’s fill our feeds with HUGS & SMILES all month long 💙

05/28/2026

📸💙 Get your cameras ready! Smile, laugh, or play—because the Hugs & Smiles Photo Contest is about to begin!

June is all about celebrating our Hydrocephalus and Spina Bifida community, and we want to see YOUR moments of joy, connection, and love.

✨ Share a photo or short video
✨ Tell us the story behind it
✨ Celebrate the people who matter most

🎁 One winner will be selected by random draw to receive a $50 gift card of their choice!

👉 Submit your entry here:
https://ow.ly/6WR750Z2G08

Let’s fill June with HUGS & SMILES across Canada 💙

Address

16 Four Seasons Place, Suite 111
Toronto, ON
M9B6E5

Opening Hours

Monday 9am - 4:30pm
Tuesday 9am - 4:30pm
Wednesday 9am - 4:30pm
Thursday 9am - 4:30pm
Friday 9am - 4:30pm

Telephone

+14162141056

Website

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