Sail for Epilepsy

06/10/2026

Phil recently sat down with two of our Virtual Shipmates, Ellie and Jordana, to discuss their journey with epilepsy, challenges they faced as they moved into adulthood with this diagnosis, and advice they have not just for teens but for anyone who has the shared experience of navigating a life with epilepsy.

Watch the full video: https://youtu.be/jrDYANNHL1c

As teens with epilepsy become adults, medical care changes. Adult epilepsy care focuses on independence, long-term planning, and adult-specific issues such as driving, work, college, pregnancy, and mental health. Planning ahead helps prevent gaps in care and missed medications.

As teens with epilepsy become adults, medical care changes. Adult e...

06/04/2026

We wanted to share the initiative, energy, and advocacy of one of our 2026 One More Step Grant Recipients, Sophia, from Florida. She started an organization called Project TEEN and wants to grow:

Project TEEN is an already established initiative, and my focus is on expanding its reach and impact. To do this, I will strengthen existing hospital partnerships while building relationships with new neurological units to serve more teens. I will increase outreach to brands and community partners to secure consistent, large-scale donations of self-care items.

With expanded resources, I will streamline the assembly process to produce more care packages efficiently, while maintaining the intentional and personal touch that defines Project TEEN. Finally, I will implement a feedback system with patients and healthcare providers to continuously improve and adapt the packages as the program grows.

Learn more about Project TEEN at: https://www.epilepsysofisversion.com/

05/28/2026

Some clips from today's livestream! Follow along as Phil sails solo from Newport to NYC. Catch live broadcasts on our YouTube channel (https://bit.ly/4nWL6dA) or follow the boat tracker: https://share.garmin.com/sailforepilepsy

05/28/2026

We're going live for the first time for Phil's training voyage from Newport to New York City. Join us throughout the next 36 hours for broadcasts from this 180 nautical mile voyage.

https://www.youtube.com/live/uHwFya-xEAU?si=mCEVLaNwh6mJbSsF

Kingdom Marine Epilepsy Foundation New England

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05/27/2026

Tomorrow, Phil will begin a solo training voyage from Newport, RI to New York City. This 180 nautical mile journey will be the first overnight sail of the season - and we're going to bring it to you live!

Head on over to YouTube now to subscribe to our channel: https://bit.ly/3OGkb3F

We'll plan to have live broadcasts in the morning, the afternoon, and the evening, with the chance for some glimpses of overnight sailing.

Be sure to receive alerts for when we're live by clicking the bell icon and selecting all notifications after you subscribe.

05/24/2026

This season, we’re bringing you aboard Fearless LIVE.

The training. The races. The mistakes. The problem solving. The quiet moments offshore.

Raw. Unfiltered. Real.

For Phil, sailing is one way to live a fuller life with epilepsy while putting safety measures in place — and we hope these livestreams inspire others to take their own “one more step” toward living fully too.

Join us this season on YouTube, Facebook, and Twitch.

Subscribe on YouTube to be notified about upcoming livestreams: https://bit.ly/3OGkb3F

05/22/2026

We are thrilled to announce the 2026 One More Step Grant Recipients! Meet them: https://bit.ly/4dYcioG

We received so many creative and deserving proposals that we had a hard time choosing only 10. Peyton, pictured here, is going to learn to play the violin. She shared with us:

"I’ve had a lot of challenges physically and mentally because of the seizures. I became very socially isolated out of fear of having a seizure in public but also just very depressed about my health situation.

I want to learn the violin because it is something I’ve always wanted to do. Violin has always brought me joy and it is time I do things that bring me joy. The thing about almost dying is it teaches you how to live and I’m really really really trying to live it to my full potential."

We are inspired by the courage of all of this year's recipients - welcome aboard!

05/06/2026

The deadline to submit proposals for a 2026 One More Step Grant is this Friday, May 8th! Apply now: https://bit.ly/47m5wnM

Jordan, a 2025 OMS Grant recipient, has both epilepsy and autism. He set a goal to participate at the Ohio Star Ball Championships to dance a solo in the Cabaret category. We are so proud of Jordan's courage and perseverance while he lives a fuller life, despite his disabilities.

Epilepsy Foundation New England Epilepsy Alliance America Epilepsy Alliance Louisiana JoshProvides Epilepsy Assistance Foundation Epilepsy Services Foundation, Inc. Epilepsy Foundation of America Epilepsy Foundation Washington Empowering People's Independence