Sail for Epilepsy

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Sail for Epilepsy Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Sail for Epilepsy, Charitable organisation, Warwick, RI.

Sail For Epilepsy’s mission is to sail the oceans of the world to: inspire people with epilepsy, raise funds to support research for a cure, and to promote awareness of epilepsy and educate the public.

Virtual Shipmate Cassandra is finding ways to lead a full and productive life, despite living with up to 50 seizures per...
10/08/2026

Virtual Shipmate Cassandra is finding ways to lead a full and productive life, despite living with up to 50 seizures per month. She is able to work from home, with a flexible schedule, at Dartmouth Health 's HOBSCOTCH Institute.

"The HOBSCOTCH (Home-Based Self-Management and Cognitive Training Changes Lives) program helps individuals living with epilepsy find ways to manage and cope with their cognitive challenges to lead a happier, more fulfilling life. I find significant value in this program as it looks beyond the medical diagnosis of epilepsy to a wider, more expansive scope. Uncontrolled seizures are certainly a concern for anyone living with epilepsy.

However, a person can have seizures AND live a joyous life, perhaps simply needing a bit of support or a different approach. Others may have their seizures well-controlled through medication or a procedure, but issues can remain that significantly impact their quality of life. Treatments can cause side effects that impact physical and mental health, leading one to feel they must suffer through these challenges to gain the benefits of seizure freedom or improvement.

But this is not true! HOBSCOTCH sees all of this and their amazing cognitive coaches work one-on-one with participants to show how they can restore value, confidence and joy using tools such as memory strengthening, relaxation, mindfulness, and more. Epilepsy does not define us and I appreciate that HOBSCOTCH earnestly seeks to restore a deep sense of self-worth in everyone they help."

Learn more about HOBSCOTCH: https://www.dartmouth-hitchcock.org/hobscotch-institute/program-details

One More Step Grant Recipient Gabby is living a fuller life through figure skating! "Finding a hobby with epilepsy has b...
09/24/2026

One More Step Grant Recipient Gabby is living a fuller life through figure skating!

"Finding a hobby with epilepsy has been difficult. I feel like so much of the time I’m told that I shouldn’t do something or that I can’t do something rather than that I can do something, which makes me often feel lonely and depressed. However, figure skating has given me not only achievable goals, but joy."

Gabby wears a helmet, knee pads, and butt pads to protect herself while on the ice. She's also spoken to her coach and friends at the rink about the medications she takes, where she keeps her safety medication, how long her seizures typically last, who her emergency contacts are, and how to administer seizure first aid.

Keep up the great work Gabby, we can't wait to hear about your progress!

08/15/2026

After 24.5 hrs competing in the Ida Lewis Distance Race, the wind died and the current pushed us into an exclusion zone set up by race committee. It was too deep to anchor and we determined we could not cross the finish line before the time limit for the race. So we have dropped sails and are motoring back to shore.

All part of sailboat racing - and challenging yourself. Sometimes you don’t complete the goal but the important part is you try, you learn, and if needed, choose a different path.

We look forward to the next race!

08/14/2026

The view as evening sets in during the Ida Lewis Distance Race! It was a slow start down Narragansett Bay as we looked for wind - our gamble west cost us but we caught up on some boats during the reaching leg. Time will tell if our next strategic decision pays off - another report in 6hrs or so! Follow the race on YB tracking.

08/14/2026

Let’s hope that the wind fills in soon! Join us starting around 10:45am ET for the LIVE start of the Ida Lewis Distance Race! Link in stories.

08/12/2026

A glimpse of some of the sailing you might see during the upcoming LIVE start of the Ida Lewis Yacht Club Distance Race. We'll have two less sailors aboard but hopefully just as much action.

Join us at 10:45am ET this Friday:
https://youtube.com/live/RrVCHKLCiUQ

Fear. Less. The name of the boat and also a mindset: live your life to the fullest. Try new things - even if they are di...
08/09/2026

Fear. Less. The name of the boat and also a mindset: live your life to the fullest. Try new things - even if they are difficult. Learn from your mistakes and change course if you need to. Put safety measures in place. Try again. Use your support network. All concepts we use in sailing and can use in life.

Join us for our last day of racing, starting at 11:45am ET: https://youtube.com/live/g9FAt0FXNcA

Yesterday's broadcast cut off early due to a switch accidentally getting knocked and losing Starlink for data transmission. Today we hope to bring you a full afternoon of action LIVE from Fearless!

Photos: Stephen Cloutier

08/08/2026

It’s another great day for racing!! Join us on YouTube starting at 11:45am ET. Racing has been delayed today by 30 minutes but we hope to be crossing the start line around 12:40pm. Today are Navigator Races, around government marks in Narragansett Bay. Please tune in and let us know where you are viewing from!

www.sailforepilepsy.org/live (link in stories)

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