Sickle Cell 101

Sickle Cell 101 Sickle Cell 101 specializes in sickle cell education.

Sickle Cell 101 is a 501(c)(3) nonprofit organization that specializes in sickle cell education on social media and other platforms. Our slogan is, "education + awareness" because we strongly believe these two factors are vital contributors to the progression of the disorder, with the end goal of a universal cure. Through education we are able to equip those affected by sickle cell, around the wor

ld, with a comprehensive understanding of the disorder. Equally, by raising awareness, our goal is for sickle cell to become a household name to encourage genetic testing, generate funding, and further research efforts.

🌍 World Sickle Cell Day is almost here, and we’re going BIG.Join us this Friday, June 19 for Ask the Experts Live: Exten...
06/17/2026

🌍 World Sickle Cell Day is almost here, and we’re going BIG.
Join us this Friday, June 19 for Ask the Experts Live: Extended — our biggest panel yet, packed with answers to your real questions about life with sickle cell.
🗣️ This time we’re tackling:

- Current Research in Sickle Cell
- Menopause and Reproductive Health
- Sickle Cell Pain
- Sickle Cell Trait
- Adult Care
- Mental Health
- Gene Therapy
- Fitness and so much more

Featuring leading experts from Emory, Duke, UI Health, and UCSF Benioff Children’s Hospital, plus our own SC101 team and lived experience voices sharing real stories through Flip the Script.

🕖 Starting 7 AM PT | 9 AM CT | 10 AM ET | 3 PM WAT/BST | 7:30 PM IST

📍 Catch it live on — Instagram, YouTube, TikTok, and LinkedIn
In partnership with Quilt Health.
Drop your questions below, we want this to be for YOU. 💛

06/17/2026

Jimi Olaghere is pulling up to answer your questions about gene therapy and life after transplant for this special edition of Ask the Experts Live!

We’re flipping the script this time, our lived experience experts are running the show and answering your questions.

Tune in from Instagram, YouTube, TikTok, or LinkedIn at 4pm EST and don’t sleep on this one!

The World Cup decides who wins on the field. decides who gets heard in healthcare. ⚽️The real final is June 20th and ev...
06/16/2026

The World Cup decides who wins on the field.
decides who gets heard in healthcare. ⚽️

The real final is June 20th and every response counts.

⏱ 15 minutes. 100% anonymous. Weekly giveaways.

👉 sc101.link/OurVoice

06/16/2026

Is it too late to still rock this trend?

06/15/2026

It doesn’t matter if you’re in Lagos, London or Los Angeles, we need your voice in this survey! It’s anonymous, it’s in 6 languages and it was built by our community for our community. Drop a 🌍 if you taken the survey or are taking it today. Link in bio and story!!

#الأنيميا المنجلية

How many of you have heard this?
06/13/2026

How many of you have heard this?

05/29/2026

Dr. Julie Kanter is taking out all the guesswork to managing sickle cell care for adults. Here’s her expert advice to adults with . Tons of gems 💎 in this episode go listen neowww!!

Feel like Nigeria should be in the lead since they have the highest sickle cell population 👀. Kenya knocked Canada out o...
05/15/2026

Feel like Nigeria should be in the lead since they have the highest sickle cell population 👀. Kenya knocked Canada out of th top 5. Make sure you to support the only global survey to accept responses from patients and caregivers from any country worldwide!!

What if 15 minutes of your time could win you $100 AND rewrite the future of global healthcare? We talk about change, bu...
05/07/2026

What if 15 minutes of your time could win you $100 AND rewrite the future of global healthcare? We talk about change, but data is the fuel that actually drives it. Whether you’re a warrior or a caregiver, your voice is the missing piece of the puzzle.

✅ 100% Anonymous
✅ Available in 6 languages
✅ Weekly $100, $50, and $35 prizes

Don’t let our history be written without us. Tap the link in our bio to represent! sc101.link/ourvoice

You coming? 👀 This Friday (Feb 13th)Don’t miss this vital conversation focused on lived experiences with curative therap...
02/10/2026

You coming? 👀 This Friday (Feb 13th)
Don’t miss this vital conversation focused on lived experiences with curative therapies for sickle cell disease. We’re moving beyond the clinical data to hear what these journeys actually look like from the people who have walked the path.

Get firsthand perspectives on both transplant and gene therapy, engage in honest dialogue, and bring your questions for the Live Q&A.

Register today! Even if you can’t make it live, register to receive event highlights and resources afterward.

🔗 Link to register: sc101.link/CT101M1Reg (also in bio and stories!)

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San Ramon, CA

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