Sickle Cell 101

Sickle Cell 101 Sickle Cell 101 specializes in sickle cell education.

Sickle Cell 101 is a 501(c)(3) nonprofit organization that specializes in sickle cell education on social media and other platforms. Our slogan is, "education + awareness" because we strongly believe these two factors are vital contributors to the progression of the disorder, with the end goal of a universal cure. Through education we are able to equip those affected by sickle cell, around the wor

ld, with a comprehensive understanding of the disorder. Equally, by raising awareness, our goal is for sickle cell to become a household name to encourage genetic testing, generate funding, and further research efforts.

08/31/2026

Making sick look good 💅🏾 New podcast episode! Dami from Netflix's Blue Therapy talks about her sister living with sickle cell disease. She shares the story behind their deeply personal decision and reflects on how her sister’s experience living with sickle cell has inspired and shaped her.

Listen to the episode on Apple, Spotify and everywhere you listen to podcasts!!

08/28/2026

Gene therapy without that large price tag. Leslie-Anne enrolled in a clinical trial to undergo gene therapy.

She's passed 100 days out and starting to feel the benefits! 🙌🏾

08/27/2026

Trait trivia!! How many did you get right though? đź‘€

08/26/2026

⚠️ Sickle cell trait is no joke when it comes to sports and high intensity exercise.
If you have sickle cell trait and you're an athlete, this is what you need to be aware of!

Know the red flag and be informed.

08/25/2026

One small change in the gene changes everything fr. This is how sickle cell is inherited.

This is why we state to know your genotype and if you don't get genetic testing, so you're informed! 💪🏾

08/12/2026

When our community is informed, we are empowered.

Renal Medullary Carcinoma, or RMC, is one of the rarest and most aggressive forms of kidney cancer, predominantly affecting young individuals with Sickle Cell Trait or Disease. Because it often presents at an advanced stage, raising awareness and demanding timely, informed medical evaluations can be life-saving.

To everyone navigating sickle cell and related health complications: your symptoms should never be overlooked, your concerns are valid, and knowledge is your strongest shield. We must continue to educate our community and healthcare providers to ensure early detection and compassionate care.

Let us Chat
Prior to this video, were you aware of the link between sickle cell trait and conditions like Renal Medullary Carcinoma?

Share your thoughts in the comments below.

Got questions about sickle cell trait? Save the date.We're going live with Dr Tomia Austin, DrPH, a sickle cell trait su...
08/12/2026

Got questions about sickle cell trait? Save the date.

We're going live with Dr Tomia Austin, DrPH, a sickle cell trait subject matter expert, and Dr John Strouse, MD, PhD, an adult and pediatric hematologist, for an extended Ask the Experts session. Longer session, more time for your questions.

Come with whatever's on your mind. Sickle cell trait, pain, adult care, mental health, fitness, reproductive health and menopause, gene therapy, current research, and general sickle cell questions.

🗓️ Friday, August 21
🕤 9:30 AM PT | 11:30 AM CT | 12:30 PM ET | 5:30 PM WAT/BST | 10:00 PM IST
đź’» Virtual via Zoom

Drop a question in the comments ahead of time so our experts can get to it during the session.

08/10/2026

Having sickle cell trait doesn’t mean you’re lazy. It means you’re fighting two battles at once.
Carrying the trait comes with real daily challenges, but it doesn’t have to hold you back. You have the power to work with your body, not against it.

Athlete Lance Kearse highlights an essential truth: contrary to the myth that SCT is entirely “benign,” living and competing with sickle cell trait requires a whole different level of preparation. From strict hydration and clean nutrition to stress management and longer recovery times, prevention is a daily lifestyle. Managing these extra steps might feel like spinning plates, but taking control of your routine allows you to compete and thrive safely.

Let’s Chat
Are you an athlete or active individual living with sickle cell trait? What does your daily preparation or recovery routine look like? Share your experiences in the comments below!

07/29/2026

Understanding how clinical studies work is key to taking control of our healthcare journey.

As a dedicated Sickle Cell 101 team member and community advocate, Vanessa is passionate about breaking down the complex criteria behind clinical research. She is here to remind us that not qualifying for a study is not a dead end, but simply a matter of finding the right fit for your unique health profile.

Whether it comes down to your genotype, your location, or specific age requirements, research criteria exist strictly for study design (and not to exclude you personally). If one door closes, there are always other trials and resources to explore.

Let's Chat
Did you know that factors like genotype or location could affect trial eligibility, or is this news to you?

Share your thoughts in the comments below!

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San Ramon, CA

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