Northwest Rett Syndrome Association

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Northwest Rett Syndrome Association Welcome to the NWRSA page. Please join our network to receive updated information and to keep up with your friends in the community.

10/17/2026
10/12/2026

Learn why nutrition and diet are so important in Rett syndrome, where gastrointestinal issues can affect eating habits and growth: https://bit.ly/4xKlDrx

Working with dietitians to ensure adequate calories, calcium, vitamin D, fiber, and fluids can support healthy weight and strong bones.

10/10/2026

While you enjoy our Fall Festival don’t forget your purple!

10/10/2026

Jim Smith, our Transition Coordinator at SSP2P, is our go-to expert...

10/06/2026

Siblings in the community, we see you.

This , we’re excited to announce that Rett Sibling Scholarship applications are now open for the 2027-2028 academic year.

Siblings in families affected by Rett syndrome have their own unique experiences. This scholarship intends to recognize siblings in the Rett community and support them as they take the next step toward their educational goals of higher education, graduate programs, trade and technical school, or vocational training.

Learn more and apply: https://bit.ly/46P7UEi.

10/06/2026

New month, new profile pic 💜

It's time to put Rett in the 📸picture - Our 2026 Know Rett profile frames are officially HERE!

Choose your favorite design, update your profile picture, and help us turn social media PURPLE for Rett Syndrome Awareness Month! Every profile picture is another opportunity to spark conversations, share stories, and spread awareness.

💜 Grab your frame at https://www.rettsyndrome.org/get-involved/raise-awareness/ and tag us so we can see your purple pride!

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Salem, OR

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