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The Bonnell Foundation: Living with cystic fibrosis

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The Bonnell Foundation: Living with cystic fibrosis

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The Bonnell Foundation is helping parents who have children with CF. We strive to connect families with resources through their CF journey.
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The purpose of The Bonnell Foundation is to provide tools to navigate the difficulties of living with CF. With our website, roadmap to CF baskets, medical and academic scholarships we hope to equip families with a roadmap to guide their way.

11/02/2026

🎙️ NEW PODCAST OUT TODAY! The Power of Twinning!🌎

What happens when CF clinics in different countries work together? They learn from each other, share knowledge, and help improve care for people living with cystic fibrosis.

In this episode, we explore the CF Twinning Project, a mentoring program connecting CF centers around the world.

Dr. Elke De Wachter from Brussels shares how her team partnered with Dr. Csilla Eniko Szabo in Romania to introduce new respiratory techniques and strengthen CF care. We also hear about the personal connection to Oana Vivoid and her son, Patrick, who receives care at Dr. Szabo’s clinic.

It’s a powerful reminder that collaboration knows no borders. When medical teams share their knowledge and experience, patients everywhere can benefit.

🎧 Listen, watch, like, subscribe, and leave us a comment!

💜Support our mission: https://thebonnellfoundation.org/donate

🛍️ Shop Bonnell Foundation merchandise: https://thebonnellfoundation.org/product-shop

Thank you to our sponsors, Vertex Pharmaceuticals and Viatris , for supporting our work.

10/30/2026

New Podcast Coming Monday! 🎙️

What happens when CF clinics in different countries learn from one another?

This week, we’re exploring the CF Twinning Project, which connected Dr. Elke De Wachter in Brussels with Dr. Csilla Eniko Szabo in Romania to share knowledge, respiratory techniques, and new approaches to improving CF care.

We also hear from Oana Vivoid, whose son Patrick receives care at Dr. Szabo’s clinic, and the personal connection that makes this story even more meaningful.

Because when knowledge is shared and connections are made across borders, the impact reaches far beyond the clinic. It can change the lives of families living with cystic fibrosis around the world.

Listen Monday! 🎧

10/29/2026

Whatever we do, we do with YOU in mind. 💜

When a patient suggested adding eye masks to our Hospital Bags, we said YES! Because sometimes, it’s the little things that make a difference.

The Bonnell Foundation’s Hospital Bag Program provides thoughtfully curated bags filled with practical essentials and small comforts for individuals with cystic fibrosis (CF) and their caregivers during unexpected or extended hospital stays.

From phone chargers and toiletries to snacks, journals, earplugs and a little extra comfort, every item is chosen with the needs of our CF community in mind.

And when you tell us what would help, we listen.

This is our why. We see you. We’re here for you. 💜

10/27/2026

The Bonnell Foundation has been in Washington, D.C., for the National Organization for Rare Disorders (NORD) Breakthrough Summit, connecting with incredible people who are helping move the needle for the rare disease community. 💜

From learning about policy changes and emerging research in individualized gene therapies to connecting with FDA leadership, CNBC reporters, advocates, researchers and families, this conference has been a powerful reminder of what can happen when people come together with a shared mission.

Every conversation matters. Every story matters. And every step forward brings hope to individuals and families navigating rare diseases.

We are so thankful for conferences like this that bring the rare disease community together, elevate our voices and help drive meaningful change.

Together, we can keep moving the needle.💜

National Organization for Rare Disorders (NORD)

10/26/2026

What happens when doctors, researchers, CF families, friends, and supporters come together in one room?

You get an incredible night of connection, stories, laughter, and hope.

In this special Bonnell Foundation podcast, I’m bringing you conversations from our Sweet 16 Gala—from doctors and CF experts to families, friends, and the people who continue to stand beside the CF community.

You’ll hear the voices and stories that made this night so meaningful.

It’s more than a gala—it’s our CF community. And I can’t wait for you to hear it. The connection is amazing!

Like, subscribe, and comment on our podcasts!

Please consider making a donation: https://thebonnellfoundation.org/don

10/25/2026

At my happy place! At the Lincoln Memorial in DC!
It’s the way I like to either start or end my advocacy trip.
I always feel the presence of this great man who stood for the people. He fought for the people. He listened to the people. “We the people…” I also just read a fabulous book about Mary Todd Lincoln. She lost all but one of her children and then her husband. Yet, she persevered. Advocate my friends. Our voices matter and they are needed to speak up for those who need protection and strong laws to protect those with chronic illness and rare diseases.
I am here for the National Organization for Rare Disorders (NORD) Summit Thanks NORD!

As the Vice Chair of Pure Michigan Rare Disease Advisory Council (RDAC) we will meet with RDAC members from around the country. We’re giving a voice to the rare community.
The speakers, connections and discussion.

10/23/2026

This is our why. 💜

The Bonnell Foundation started the Hospital Bag Program to bring a little comfort to families navigating a hospital stay because of cystic fibrosis.

When a hospital stay happens, the little things are often the last things on your mind. A phone charger, a toothbrush, a journal, or a coffee gift card may seem simple, but they can make a difficult time feel a little less overwhelming.

Every bag is a reminder that someone cares, that you’re not alone, and that we see you.

Thank you to everyone who helps make this program possible. Your generosity allows us to show up for CF families when they need it most.

This is our why. This is what community looks like💜

10/19/2026

🎧 NEW PODCAST EPISODE OUT TODAY! 💜

Nutrition is such an important part of living with cystic fibrosis, and it’s about so much more than what’s on your plate.

Today, we’re talking with Stacey Fogarty-Brown, Registered Dietitian Nutritionist at Michigan Medicine and Certified Advanced Cystic Fibrosis Dietitian, about the role nutrition plays in CF care and the support people with CF and their families need.

Tune in, learn something new, and share this conversation. Every story helps us better understand the realities of living with CF.

🎙️ Listen today: [https://livingwithcysticfibrosis.simplecast.com](https://livingwithcysticfibrosis.simplecast.com)

10/18/2026

🎙️NEW PODCAST OUT!

Nutrition and cystic fibrosis have changed dramatically over the years. So what does that mean for CF families today?

Laura sits down with Stacey Fogarty-Brown, Registered Dietitian Nutritionist at Michigan Medicine and Certified Advanced Cystic Fibrosis Dietitian, for an important conversation about how CF care continues to evolve.

Here’s what they talk about:
• How Trikafta has changed the nutrition conversation
• Why nutrition needs are different for every person with CF
• Weight gain, body image and the challenges parents face around food
• Helping kids build healthy relationships with food and exercise
• Why having a CF-informed dietitian matters
• The importance of a strong care team and supporting families without judgment

CF care is changing, and families deserve the information and support to navigate those changes.

💜Tune in for an honest conversation about nutrition, CF and what families need to know today.

Listen wherever you get your podcasts or here: https://livingwithcysticfibrosis.simplecast.com/episodes/stacey-fogarty-brown-nt_ksQK2

10/16/2026

🎙️If you’re not listening to our podcasts yet, what are you waiting for!?!

Every person living with cystic fibrosis has a story. The challenges, the wins, the hard days, the hope, and the people who show up along the way.

On the *Living with Cystic Fibrosis* podcast, we bring those stories to life. From people living with CF and their families to advocates, medical professionals, and incredible people making a difference in the CF community, these are conversations that matter.

Because when we share our stories, we create understanding. We remind others they aren’t alone. And we give people a chance to learn something they may never have known.

**We invite you to subscribe, listen, and share.** You may discover a story that changes how you see CF, helps someone feel understood, or reminds someone that they aren’t alone in this journey.

Every story matters. Every voice matters. And these stories deserve to be heard. 💜

LISTEN ON SPOTIFY : https://open.spotify.com/show/6TEaf14uEjVC6KHJoGbb9c?si=SyBQHNkYQnKNPP08k8Bmzw&utm_source=copy-link

Address

PO Box 1215
Royal Oak, MI
48068

Opening Hours

Monday	8am - 6pm
Tuesday	8am - 6pm
Wednesday	8am - 6pm
Thursday	8am - 6pm
Friday	8am - 6pm

Telephone

+12485202329

Website

http://www.thebonnellfoundation.org/

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