Filotimo Foundation

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Filotimo Foundation

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Supporting adults with cystic fibrosis (CF)
💟 Hardship support
🧑‍🧑‍🧒 Family-building support

10/14/2026

In a room full of people, we kept finding our people. 💙

Four days at in Atlanta, and the best parts weren’t on the agenda. Hugs in the exhibit hall. Coffee with organizations doing this work right alongside us. Talking openly about male fertility and sharing resources along sister CF non-profits. Old friends, new faces, and a lot of “it’s so good to finally meet you in person.”

To the social workers, care teams, partners and CF community who made room for us this week: you are the reason this works. We’re so grateful.

10/10/2026

“There’s no noise. There’s no buzzing in my head. You just walk.”

Living with cystic fibrosis comes with a lot of noise: treatments, appointments, bills, the daily math of what your body can do today. For Pete, the volume goes down on a walk. No overthinking. No overcomplicating. One foot, then the other.

This year’s World Mental Health Day is about lived experiences being heard. So here’s one from our founder: find the thing that quiets your head, and do it on purpose. (He’ll also tell you he doesn’t get enough steps. We’re working on it.)

What’s your walk? Tell us in the comments. 👇

With Love. No conditions.

10/09/2026

“These conversations need to happen at 15 and 16.” (Part 3)

At 15, CF care teams already talk with teens about their health and independence. Pete’s point: fertility belongs in that conversation too.

He knows how fast things shift once a teen moves to adult clinic. At 18, away at college and without a parent reminding him, he stopped doing his treatments. His lung function dropped 30%. In his words, he was rebelling against the whole system, and he didn’t realize until later how much his parents had been keeping him well.

The years when a young man with CF is most likely to drift from his care are the same years he’s building toward the life he wants. If fertility is part of the conversation early, family isn’t a shock later. It’s something he’s already planning for.
Care teams, add fertility to the transition talk. Teens and parents, you can ask first.

When the time comes, Filotimo helps adults with CF pay for s***m retrieval, IVF, genetic testing and fertility medications.

Tap the link in our bio.

With Love. No conditions.

10/09/2026

“That was the gentle touch I needed after the shock.” (Part 2)

Right after that conversation, the doctor in the room stepped in. There’s a urologist down the street, he told Pete, and he’ll explain that you can still have a kid.

Pete went home and didn’t tell his wife that night. He didn’t know what to say.

The next morning brought the rest of the story. A s***m retrieval is very possible, the doctor said. Best case, his wife could be pregnant in about five months.

Most men with CF are infertile, but infertile doesn’t mean sterile. Pete’s story shows how much it matters who tells you, and how.

Part 3 is coming soon: when Pete believes this conversation should happen, and why.

10/08/2026

“Oh honey, don’t you know that you’re infertile?” (Part 1)

That’s how Pete found out. He’d just gotten married, and when he mentioned at a clinic visit that he and his wife were thinking about kids, that one sentence was the answer. And it was shocking.

He heard “infertile,” and his mind went straight to “never.”

That gasp you hear is a room full of CF social workers at NACFC. No one knows better than they do how much that first conversation shapes everything after it.

Part 2 is coming soon: what happened next, and what Pete wishes every man with CF knew sooner. Follow along so you don’t miss it. 💙

10/02/2026

☑️ Disc held downward like a pancake
☑️ Foot hit the ground
… Chains bang-a-langin’

Loved our time playing disc golf and raising funds for lung transplant with Small Hands Big Hearts United. Some of us were better than others. Together we have raised over $45k to support Skylar’s lung transplant.

09/29/2026

One of the more loving things you can do with someone you’re planning a life with? Carrier testing. 🧬

It’s Sexual Health Awareness Month, and knowledge is power. Let’s get into it.

A carrier has one copy of a gene mutation and one working copy. Carriers are almost always perfectly healthy, with no symptoms and no reason to suspect anything. About 1 in 31 Americans carries a cystic fibrosis mutation and most will never find out.

It becomes relevant when both partners carry a mutation, or when one partner has CF and the other is a carrier. Swipe for how the math actually works.

The screening itself is a blood draw or a cheek swab. Ask your OB-GYN, your primary care doctor, or a fertility clinic. Anyone can ask to see a genetic counselor. You don’t need a diagnosis or referral or a reason beyond “we’re thinking about kids and we’d like to know”

Knowing doesn’t make a decision for you. It means the decision is yours, made early, with time to plan: what to expect, what support you might want, which path to building a family is best for you.

Filotimo Foundation can help adults with cystic fibrosis by covering genetic testing and the family-building road that comes after it. If that’s you, the Get Help page is in our bio.

And, if it isn’t you, go anyway. Bring your person. Call it a date.

09/26/2026

The Filotimo Foundation would like to shine a light on a truly generous and beautiful soul. 🩵🪽

Our beloved family member and friend, Nancy Hronopoulos, passed away last week. In lieu of flowers, Nancy requested that donations be made to the Filotimo Foundation in her memory.

We are eternally grateful for her incredible generosity and deeply moved that, even in her final days, she was thinking of ways to help others. That selflessness speaks so beautifully to the kind of person Nancy was and the legacy she leaves behind.

Nancy was deeply loved by so many and will be missed beyond words. 💙 We will forever carry her kindness, love, and generosity in our hearts.

Address

2710 Wycliff Road Suite G40
Raleigh, NC
27607

Telephone

+19842311680

Website

http://www.filotimofoundation.org/

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