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"Westley's Wish"

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Logan, OH
"Westley's Wish"

This page has been created to help bring awareness to Batten Disease and support Westley and his fam There is currently NO CURE for this disease.

As many of you all know Westley was diagnosed October(2010)with Late Infantile Batten Disease. Batten Disease is a genetic neurological disease that brings an early death to each child it affects. Over time, children suffer mental impairment, worsening seizures, and progressive loss of sight and motor skills. Eventually, children with Batten disease become blind, bedridden, and unable to communicate. Just in April(2011) Westley had experimental brain surgery done at the New York-Presbyterian/Weill Cornell Medical Center. The surgery involved putting the gene that Westley is missing into his brain. Only time will tell if this will help him or not. This surgery is to just slow down the progression of the disease it does not cure it. According to the Batten Disease Support and Research Association, approximately 30 children will be diagnosed with Batten Disease this year, and about the same number will also pass away before the end of 2011. Please join our family in bringing awareness to this awful disease. There will be a few fundraisers taking place this summer for Westley! We will keep everyone posted on these dates. Our family has realized that we are currently in a race against time and we will never give up this race until there is a cure. Charles Darwin once said, “A man who dares to waste one hour of time has not discovered the value of life.” Our family can say we have found the value of life because of Westley…:)

God Bless,
The McKinley's

10/14/2026

Love you sweetheart!❤️

09/12/2026

Some days i really dont know what to post. I hate to keep repeating that we miss you! Everyone one knows and im sure they all miss you too. I see your message… weather it a wishy, a bee or some random cardinal leaving me presents, OR a special song you’ve timed on the radio!!

Your dad and I still continue to have our adventures with the pups you have sent!

Life still goes on and people still ask of you. Not a day goes by without me or you dad thinking of you!
We visited you Grandma Maggie last week. Im sure you and Grandpa was watching.

09/01/2026

Happy 4th birthday to our rainbow dog. She has been the best companion and therapy dog. Definitely filling in some of he heartbreak for us. She is definitely a mommas girl and follows me everywhere making sure i am ok. Thank you Westley for sending us the best dog! We love her. 🌻

08/03/2026

Happy Heavenly Birthday to the most beautiful angel. 🕊️

Can’t believe you’d be 20 years old. Here are twenty balloons just for you!

🎈🎈🎈🎈🎈🎈🎈
🎈🎈🎈🎈🎈🎈
🎈🎈🎈🎈🎈🎈🎈

07/26/2026

07/03/2026

Some Stars and Stripes for this 4th of July to remember Westley! ❤️🤍💙 We miss you. Have a beautiful view of the Sky this weekend!

06/21/2026

Every day I speak to you! Thanks for watching over me and your dad. Thanks for sending us Daisee and Chelsee they are the best two dogs we’ve had. I still see you secret messages. Love you forever!🕊️

04/19/2026

We booked our hotel today for the Batten Conference in July. Willie and I haven’t been back to the conference since Westley passed in 2022.
The pups will be going with us. Im sure they will be an asset for some therapy.
On Sunday of the conference they have a memorial ceremony for the children that have passed away, we haven’t to conference in 4years and we need to celebrate Westley.

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Logan, OH

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