Blue's Gift Foundation

Blue's Gift Foundation A 501(c)3 committed to honoring the generous and heroic gift of one young man.

We are creating the first kernicterus brain donation network & driving research to advance understanding and improve outcomes for those affected by or at risk for kernicterus.

04/19/2026

One last breath.
One last wish.
One vital milestone.

After 33 months, I finally got the email I have been praying for.

WE ARE HERE. đź’™

More to come.

If you want a comfy tank or tee, there is a little bit more time to order! $20 for tournament pickup at on 8/23 or $25...
08/10/2025

If you want a comfy tank or tee, there is a little bit more time to order! $20 for tournament pickup at on 8/23 or $25 for mailing in US. Venmo and put in comments: 1-“donation,” “tee,” or “tank”, 2-size, 4-address, and 4-phone. Deadline is Monday. can also take cash. For shirt orders, $20 for tournament pickup at on 8/23 or $25 for mailing in US. Venmo and put in comments: 1-“donation,” “tee,” or “tank”, 2-size, 4-address, and 4-phone. Deadline is Monday. can also take cash.

03/08/2025

We’re not just facilitating first-of-its-kind brain donation and research—we’re also preparing to launch something groundbreaking: the first-ever Kernicterus Registry in the U.S., with the goal of expanding it worldwide!

Until now, no regulatory body has ever tracked kernicterus cases, and since the passing of the beloved Dr. Lois Johnson, it's been 20 years since anyone even tried.

For decades, with Parents of Infants and Children with Kernicterus (PIC-K) we've pushed for this—without success. So now? We’re doing it ourselves!
Change starts with recognizing an issue. We are HERE.
If you’d like to beta test the registry or join our scientific committee, please reach out to Miriam I.

💙 Donations are always welcome at bluesgift.org/donate to help fund HIPAA compliance, manpower, and infrastructure—because this is the change we’ve been waiting for.

Our goal? A global registry that ensures kernicterus is counted, recognized, and prevented—everywhere.

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Valerie has been wowing us her whole life and now is no different! Kernicterus is never the whole story, is it?! ...
02/16/2025

Valerie has been wowing us her whole life and now is no different! Kernicterus is never the whole story, is it?!

Valerie shares her journey.

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Leawood, KS

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