RUNs NBA Initiative

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Delafield, WI
RUNs NBA Initiative

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When my husband, Justin Zanik, joined the NBA Utah Jazz in 2013, I had a dream to have rare and undiagnosed children honored during a NBA game.

To raise awareness within the NBA community and the general public for the 1 in 10 people living with a rare or undiagnosed disease. To bring NBA fun to the lives of 30 million people suffering daily with a rare or undiagnosed disease. It was started by Gina, Co-founder of RUN, and Justin Zanik, the Assistant General Manager of the Milwaukee Bucks.

03/24/2026

NBA Utah Jazz's Pregame KJZZ video for 2026 Rare Disease Day with Governor Cox, Rare & Undiagnosed Network RUN, the Utah Rare Disease Advisory Council (RDAC) and the Zanik family.

Thank you to the Utah Jazz and Governor Cox for honoring Rare Disease Day and the work of the Rare & Undiagnosed Network RUN and the Utah Rare Disease Advisory Council on February 28th! It was a very special evening for all of us. It was wonderful to see our rare families. There were a lot of hugs and happy tears. Thank you all for your continued support of our family, RUN, the RDAC and the entire rare and undiagnosed community!

Much Love,
The Zaniks

Link for photos:
https://rareundiagnosed.org/utah-jazz-governor-cox.../

Link to Jumbotron RDD video:
https://youtu.be/tj1YyWamCIk?feature=shared

Link to Utah Jazz Pregame KJZZ video: https://youtu.be/S4ND9CndhSg

NBA Utah Jazz's Pregame KJZZ video for 2026 Rare Disease Day with Governor Cox, Rare & Undiagnosed Network (RUN), the Utah Rare Disease Advisory Council (RDA...

02/27/2026

Thank you to Governor Spencer J. Cox for making Utah Rare Disease Day official again this Saturday, February 28th! It is a day dedicated to raising awareness about rare diseases, the impact on patients and caregivers as well as the need for research and treatments. Together, we stand with the 300 million people worldwide living with rare diseases. When this community comes together, it drives research, shapes policy and strengthens support systems. RARE is powerful.

Address

Delafield, WI
53018

Telephone

+13108834353

Website

http://www.rareundiagnosed.org/

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