RUNs NBA Initiative

03/24/2026

NBA Utah Jazz's Pregame KJZZ video for 2026 Rare Disease Day with Governor Cox, Rare & Undiagnosed Network RUN, the Utah Rare Disease Advisory Council (RDAC) and the Zanik family.

Thank you to the Utah Jazz and Governor Cox for honoring Rare Disease Day and the work of the Rare & Undiagnosed Network RUN and the Utah Rare Disease Advisory Council on February 28th! It was a very special evening for all of us. It was wonderful to see our rare families. There were a lot of hugs and happy tears. Thank you all for your continued support of our family, RUN, the RDAC and the entire rare and undiagnosed community!

Much Love,
The Zaniks

Link for photos:
https://rareundiagnosed.org/utah-jazz-governor-cox.../

Link to Jumbotron RDD video:
https://youtu.be/tj1YyWamCIk?feature=shared

Link to Utah Jazz Pregame KJZZ video: https://youtu.be/S4ND9CndhSg

NBA Utah Jazz's Pregame KJZZ video for 2026 Rare Disease Day with Governor Cox, Rare & Undiagnosed Network (RUN), the Utah Rare Disease Advisory Council (RDA...

02/27/2026

Thank you to Governor Spencer J. Cox for making Utah Rare Disease Day official again this Saturday, February 28th! It is a day dedicated to raising awareness about rare diseases, the impact on patients and caregivers as well as the need for research and treatments. Together, we stand with the 300 million people worldwide living with rare diseases. When this community comes together, it drives research, shapes policy and strengthens support systems. RARE is powerful.

06/27/2024

JZ’s Draft Night!!! Thank you to our Utah Jazz family, our family and all of our friends for your continued support, love and prayers!!
Much Love, Gina💜🖤🤍

04/29/2022

Today is ! A special thank you to everyone that shares this information to raise awareness for our undiagnosed community!

How can you participate? Please help us raise awareness for the undiagnosed disease community by

04/29/2022

Family Love Laughter Hugs Smiles Kisses Togetherness Blessed Hope Appreciation Perseverance Advocacy
Continue the fight
Calm and Strong
Always Pray...Safe & Healthy
Still have two feet on this Earth
Thank you all for your continued support of our journey!

04/04/2022

Please help us raise awareness for the undiagnosed rare disease community by supporting Undiagnosed Rare Disease Day on April 29th!

Please help us raise awareness for the undiagnosed rare disease community by supporting Undiagnosed Rare

03/13/2022

Worse than that, way worse, was no one knew why any of them were sick. Medical science was stumped. They could treat the symptoms but not the source. Gina and the kids had entered the wilderness of the undiagnosed. - Lee Benson, Deseret News

“Her determination, her relentless pursuit of care for our children, is never ending,” says Justin Zanik. Utah Jazz

Gina Szajnuk’s kids suffer from undiagnosed disease; so does she. She is determined to find answers, and help

05/11/2019

Our family is incredibly grateful to the Larry H. Miller family, Steve Starks, Dennis Lindsey,

04/05/2019

The Golden State Warriors are hosting their first Rare Disease Awareness Night when they host

04/04/2019

RUNs NBA Initiative​: We hosted August Teuscher​ and her inspiring family for the Utah Jazz​ game! You can learn more about Tyler's journey through ONE IN A MILLION, an original short documentary co-directed by two acclaimed independent filmmakers, Jeremiah Zagar and Ross Kauffman. Thank you to the University of Utah Health​, Dr. Lorenzo Botto​ and everyone involved in the Penelope Program for your dedicaiton to the rare and undiagnosed community.
Much love, Gina & Justin Zanik​
Learn more at https://rareundiagnosed.org/run-nba-initiative-utah-jazz-march-29th/

04/03/2019

On March 29th, RUN hosted the Teuscher family for dinner and a pre-game experience. It

04/01/2019

Thank you to the Boston Celtics for hosting the Paradis family for a pre-game experience