The Joey Fund

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The Joey Fund The Joey Fund works in partnership with the Cystic Fibrosis Foundation and was established in 1986.

The Joey Fund, which works in partnership with the Cystic Fibrosis Foundation,
is an independent fund established by individuals in November 1986 in memory of
Joey O’Donnell, a courageous fighter and victim of cystic fibrosis. In times of extreme sickness or need, New England cystic fibrosis patients and
their families through the Joey Fund and various Cystic Fibrosis clinics throughout Massachusetts
have a unique opportunity to receive financial assistance for CF related problems. Today,
Joey O’Donnell lives on through the Joey Fund, which has raised over $100,000,000. Together the Cystic Fibrosis Foundation and the Joey Fund supply financial support for both patients and research. Working as a team they have created a future for children with cystic fibrosis, and are working even harder to achieve the ultimate goal–a cure for CF and to make cystic fibrosis…HISTORY.

09/22/2026

Turns out we DO know how to host a golf tournament. ☀️⛳️

After Mother Nature had other plans for us the first time around, we came back to blue skies, some new faces, and a group of people who could not have been happier to finally get out there.

But my favorite part?

This one Kluzak/Scarpa Golf Challenge has raised more than $7 MILLION for cystic fibrosis over the last 35 years.

Thirty-five years of showing up. Rain or shine. (And apparently sometimes both.)

So grateful for everyone who has been part of it (especially Gordy and Carmen, who have kept this incredible tradition going year after year).

Worth the wait. 💙

This Week in CF with The Joey Fund 💛A big research investment, a fun podcast made by kids, and a chance to share your ne...
09/15/2026

This Week in CF with The Joey Fund 💛

A big research investment, a fun podcast made by kids, and a chance to share your news. Swipe through for this week’s roundup!

What should we celebrate next week? Tell us in the comments or DMs.

09/15/2026

Ireland was one of the places I was most excited to talk about CF. Here, it really is part of the fabric of so many families’ lives, including my own. 🇮🇪

The numbers are striking, but what they really represent is generations of people who have lived with this disease, pushed for better care, funded research, and helped move the science forward.

There’s a reason the CF story runs so deep here.

09/11/2026

A little CF history from Ireland 🇮🇪

One of the things I love about traveling is seeing how differently the cystic fibrosis story shows up around the world: in genetics, in research, in care, and in the families who have pushed all of it forward.

Ireland is such an interesting and important part of that story.

And yes, I will apparently find a CF angle everywhere I go. 😂

09/07/2026

Apparently I cannot take a normal vacation. 😂

A drive from Venice to Modena turned into an unexpected CF field trip when we discovered a research center in Ferrara dedicated to developing new therapies for cystic fibrosis.

And truly, this is why I love the phrase shots on goal.

Different labs. Different countries. Different ideas. All pushing toward the same thing: better treatments for everyone with CF, and ultimately, a cure.

Ryan has now learned that “quick stop on the way” may mean touring the international CF research landscape. 🇮🇹🧬

More shots on goal. Always.

09/06/2026

I came to Venice for the canals. I did not expect to find a piece of cystic fibrosis history.

Venice sits in the Veneto region, where some of Italy’s earliest and most important CF care infrastructure was built, including the country’s first specialized CF center in Verona.

It’s a reminder that progress doesn’t only look like a miracle drug.

Sometimes progress is earlier diagnosis.
Better care.
Better systems.
More people getting the right treatment at the right time.

Those are shots on goal, too.

And apparently, there’s CF history everywhere if you know where to look. 🇮🇹

ShotsOnGoal Venice Veneto

Talk about evolving our reach. 🧢🐢🌎The Joey hats have officially made it to the Galápagos Islands!Survival of the fitted,...
09/02/2026

Talk about evolving our reach. 🧢🐢🌎

The Joey hats have officially made it to the Galápagos Islands!

Survival of the fitted, if you will. 😂

Another incredible corner of the world with a little bit of Joey in it. 💙

09/01/2026

Nearly 1 in 4 people with cystic fibrosis in Italy is now over the age of 40.

That’s 1,468 people reaching an age that once felt nearly unimaginable for someone born with CF.

It’s extraordinary progress, and it’s also creating an entirely new chapter of CF care. People are living long enough to face careers, parenthood, aging and health challenges the CF community was never given the chance to plan for before.

CF is no longer just a childhood disease.

Progress is real. And we keep going until everyone gets to grow older. 🇮🇹

Source: Italian Cystic Fibrosis Registry, 2024

The Joey Fund, but make it elephant-sized. 🧢🐘🧢
08/25/2026

The Joey Fund, but make it elephant-sized.
🧢🐘🧢

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Boston, MA
02116

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