The Joey Fund

The Joey Fund The Joey Fund works in partnership with the Cystic Fibrosis Foundation and was established in 1986.

The Joey Fund, which works in partnership with the Cystic Fibrosis Foundation,
is an independent fund established by individuals in November 1986 in memory of
Joey O’Donnell, a courageous fighter and victim of cystic fibrosis. In times of extreme sickness or need, New England cystic fibrosis patients and
their families through the Joey Fund and various Cystic Fibrosis clinics throughout Massachuse

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have a unique opportunity to receive financial assistance for CF related problems. Today,
Joey O’Donnell lives on through the Joey Fund, which has raised over $100,000,000. Together the Cystic Fibrosis Foundation and the Joey Fund supply financial support for both patients and research. Working as a team they have created a future for children with cystic fibrosis, and are working even harder to achieve the ultimate goal–a cure for CF and to make cystic fibrosis…HISTORY.

06/01/2026

Tomorrow, I’m heading to Lisbon for the 49th European CF Conference, one of the biggest gatherings in the cystic fibrosis world.

I’ll be there representing The Joey Fund, and I’m bringing you with me. Daily posts. Real-time stories. Plain English breakdowns of what’s being announced.

Drop your CF questions in the comments. I’m taking them with me. 💙

05/26/2026

Did you know Frédéric Chopin may have had cystic fibrosis?

He died at 39. Chronic cough since childhood. Severely underweight his entire life. Repeated respiratory infections. Possible infertility. His sister died at 14 with nearly identical symptoms.

His autopsy baffled one of Europe’s most respected pathologists, who wrote that he had never encountered anything like it. His lungs didn’t match tuberculosis, the assumed cause of death for 150 years.

Chopin’s heart is preserved in a church in Warsaw. DNA testing could potentially confirm the CF theory. His descendants have refused. So we may never know the truth.

What I do know is that if it’s true, one of the greatest composers in human history spent his life quietly fighting what so many people we know and love fight. And that is beautiful.

Did you know this?

Follow along! I share CF stories, facts, and the work we do at the Joey Fund every week.

05/23/2026

7 continents.
60 countries.
33 states.

Where has YOUR Joey Hat been?

Get us to 100% - want your own? Let us know!
✈️🧢🌎

05/21/2026

You think you’re donating to help CF patients.

You’re actually funding the future of medicine.

And I think that’s pretty cool!
🧬🫁🧬

05/19/2026

Cystic fibrosis quiz - 🔥LEVEL 4🔥

How many did you get right this time? Let me know in the comments! 🤓

05/12/2026

Same people.

Same network.

Smarter ask.

Tell me the best gift card you’ve ever gotten - I’m turning these into auction ideas! 💸

05/11/2026

Leveling up with the CF Quiz, level 3!

How many did you get right this time? Comment below!

🫁🤓🫁

05/06/2026

THESE ARE MY (new Joey Hats!) LADIES.

Want your own? Let me know your favorite hat!

🧢🫁🧢

Address

Boston, MA
02116

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