The Joey Fund

The Joey Fund The Joey Fund works in partnership with the Cystic Fibrosis Foundation and was established in 1986.

The Joey Fund, which works in partnership with the Cystic Fibrosis Foundation,
is an independent fund established by individuals in November 1986 in memory of
Joey O’Donnell, a courageous fighter and victim of cystic fibrosis. In times of extreme sickness or need, New England cystic fibrosis patients and
their families through the Joey Fund and various Cystic Fibrosis clinics throughout Massachuse

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have a unique opportunity to receive financial assistance for CF related problems. Today,
Joey O’Donnell lives on through the Joey Fund, which has raised over $100,000,000. Together the Cystic Fibrosis Foundation and the Joey Fund supply financial support for both patients and research. Working as a team they have created a future for children with cystic fibrosis, and are working even harder to achieve the ultimate goal–a cure for CF and to make cystic fibrosis…HISTORY.

08/03/2026

Spent a year planning the 35th Kluzak Scarpa Joey Fund golf tournament.

Ended up hosting a very successful rainstorm.

Huge thanks to everyone who rolled with it, laughed with us, and kept showing up for people with cystic fibrosis. Turns out this community is stronger than the weather. 🌧️💙

Four emojis. One destination. Zero spoilers about the movie. 🍿42nd Annual Joey O’Donnell Film PremiereSunday, November 8...
08/01/2026

Four emojis. One destination. Zero spoilers about the movie. 🍿

42nd Annual Joey O’Donnell Film Premiere

Sunday, November 8 · save the date 💙

07/29/2026

Peak 1980s:

✔️ Giant aviators
✔️ VHS quality
✔️ Sgt. Slaughter
✔️ A homemade sign
✔️ Lynchie in a tux

Then Sgt. Slaughter says:

“Joey made that sign with love… we’re all together in this.”

At the time, he probably had no idea how much those words would still mean nearly 40 years later.

Turns out, he was right.

We’re all together in this.

For nearly 40 years, that’s been the heart of The Joey Fund’s mission, and it’s why the lives of people with cystic fibrosis look so different today.

Thank you, Sgt. Slaughter, for giving one little boy a night he never forgot.

He ended up giving a whole lot of us something we’ll never forget, either. 🫁💪🏻🕶️

07/28/2026

The progress in cystic fibrosis has been nothing short of extraordinary.

We should celebrate every breakthrough, every new treatment, and every extra birthday.

But treatments are not cures.

Until every person with CF has access to life-changing therapies (and ultimately a cure), we’re not finished.

That’s why we keep funding research.

For everyone. 💙

07/27/2026

31 more birthdays.

Over the past two decades, the median predicted survival for people with cystic fibrosis has increased from 35 to 66 years.

That’s one of the greatest success stories in modern medicine.

But it’s not the whole story. This statistic doesn’t apply equally to everyone with CF, and thousands still don’t have access to highly effective treatments.

That’s why we celebrate progress, and keep fighting for more. Until everyone with CF has a treatment, and a cure. 💙

07/17/2026

Some books raise awareness. This one named people.

“Alex: The Life of a Child” did more for cystic fibrosis than any book at the time. A bestseller, a movie, and the start of Frank Deford’s seventeen years leading the CF Foundation.

But my favorite of its legacies is in the end, where Alex helps her nurse Tina name her baby: Kate. After Alex passes away, Tina adds Alexandra.

My brother Joey read that ending while my mom was pregnant with me. I’ve been Kate Alexandra ever since.

And I’ve heard I may not be the only one. That other families closed this book and named their daughters from that same page. If that’s you, or you know one, I’d love to hear from you. 💙

07/15/2026

I’ve said ‘it’s not cured’ so many times I now say it in my sleep. 🎥

For real though: today’s CF treatments are life-changing for many, but they’re not a cure, they don’t work for everyone with CF, and daily treatments and serious complications remain.

That’s why we’re still here. Full story in our CF 101 highlight. 💙

07/14/2026

The only “worth the money” list that matters to us.

🧢🎬💌

Address

Boston, MA
02116

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